Author Topic: Share your cancer journey - and any other personal medical advice (Read 195956 times)

sneakypete · « **Reply #150 on:** February 25, 2021, 06:53:04 pm »

Quote from: Sled Dog on February 25, 2021, 06:45:45 pm

Well, okay, sharing is caring and all that.

I started getting fevers and turning yellow. And itchy. The jaundice caused by backed up bilirubin always itches like crazy.

Turned out to be some lump on my bile duct. Had to go to a specialist before getting the ultrasound. I decided to not take any Tylenol to drop the fever, so he sent me to the ER with a fever of 104. That speeded things up quite a bit.

Biopsy was iffy, they weren't sure what it was. They put a stent in the bile duct to drain the liver, because that was causing the infections and fevers.

I was getting better for a week or so, then getting worse. Turns out the stent was too short. Time to pop a new one in.

Then I got better and the surgery was scheduled.

Oh, wait. Gotta delay the cancer surgery, the surgeon's wife had a baby girl! Hooray!

Then they cut me open. Biliary cancer has something like a 60% two-year mortality rate. Cool.

Turns out, after the scar from sternum to belly button, that I didn't have biliary cancer, I had ampulary cancer. The ampulus is the teeny-tiny donut of a muscle that controls flow through the bile duct. Totally encapsulated by the bile duct, no wandering cancer cells escaping to infect the rest of me.

No cancer cells in the lymph nodes, the oncologists were bored with me and wanted nothing to do with me. No chemo for me.

Then the fun started. The procedure to treat biliary and ampulary cancer is the same, the Whipple procedure, where they surgeon plays "lets rearrange the plumbing" with my intestines.

So I couldn't eat real food. They at first forgot and sent me home, then called me back and gave me a permanent IV line in my arm. And then prescribed this TPN food or whatever its' called, shot straight into my arm.

Full of carbohydrates and stuff. Prescription mix, of course.

I'm a diabetic. They forgot to prescribe the insulin to go in the mix.

I was feeling crappy and wasn't checking my blood sugar levels. My 1528 didn't even break the hospital record.

So i spent another three weeks in the ICU/Rehab units. Rehab was cool. The guy on the bed across the room was a 95 year old marine who had been discharged in 1944 because a Jap had stitched some holes in his chest with a machine gun. And the other guy was a 95 year old Air Corps man who had been made partially deaf by the noise of the machine gun in his B-17 ball turret.

I lost 95 pounds thanks to that, and because the surgery was effectively a stomach bypass, I've regained just a bit of that and my weight is where the charts say it should have been.

What fun that was. That was more than five years ago so my surgeon says I am officially "cured".

@Sled Dog

Glad to hear all the suffering lead to a positive result.

I am sincerely hoping that if you get sick again you choose another hospital?

Sled Dog · « **Reply #151 on:** February 25, 2021, 07:01:38 pm »

Quote from: sneakypete on February 25, 2021, 06:53:04 pm

@Sled Dog

Glad to hear all the suffering lead to a positive result.

I am sincerely hoping that if you get sick again you choose another hospital?

Actually, that's one of the best hospitals in the area. Both my kids were born there, even.

Sometimes shit happens and this wasn't an intentional "let's mess with him" incident.

The reality is that in the aftermath of the surgery I feel better now than I have in a long time. I was overweight and now I'm not.

The insurance covered all but the 10K co-pay...so they paid some 200k in bills.

My questions are going to be for when I retire...as an honorably discharged Navy veteran, would the VA cover my routine maintenance? Especially the pills I take because of the re-piping they did to me? We'll see.

I read some of this this thread and you sound like you've been through hell, and that's just not right.

sneakypete · « **Reply #152 on:** February 25, 2021, 07:19:19 pm »

Quote from: Sled Dog on February 25, 2021, 07:01:38 pm

Actually, that's one of the best hospitals in the area. Both my kids were born there, even.

Sometimes shit happens and this wasn't an intentional "let's mess with him" incident.

The reality is that in the aftermath of the surgery I feel better now than I have in a long time. I was overweight and now I'm not.

The insurance covered all but the 10K co-pay...so they paid some 200k in bills.

My questions are going to be for when I retire...as an honorably discharged Navy veteran, would the VA cover my routine maintenance? Especially the pills I take because of the re-piping they did to me? We'll see.

I read some of this this thread and you sound like you've been through hell, and that's just not right.

@Sled Dog

Don't count on it. I am a 100 percent service-connected disabled VN vet,and I have trouble getting the VA to pay for my hospital and ER bills. I even live over 50 miles away from the closest VA hospital and a trip there would involved crossing a long bridge tunnel that doesn't allow ambulances,which means I would have to hire a boat or a helicopter to get to it,and the freaking VA is still refusing to pay my local Hospital ER and other bills by telling me I should have gone to the VA hospital for treatment.

And one of those ER trips was for flesh-eating bacteria and ended up with my receiving emergency surgery and being in intensive care for 2 weeks. The surgeon later told me if I had gotten there a half-hour later I would have died,and there would have been nothing he could have done to save me.

My choice was to go to the local hospital,a 35 minute drive,or to the VA hospital,a 1 hour plus drive,and they wouldn't even have been able to do the surgery. In cases like mine,they would have just transferred me to a local hospital up there,wasting more time and insuring I would have died.

If you have read my posts,you have read about all the trouble I have had with an infected leg the last 6 months or so,and today is the FIRST time I was able to go to a local hospital for treatment with the VA setting up the appointment and agreeing to pay the bills. I have paid hundreds of dollars out of pocket to a local doc that recently opened shop here,and owe thousands of dollars at the same hospital and to doctors there for previous leg treatments,and the VA still hasn't paid a dime because I didn't get approval before I received the treatment.

Try to buy geezer insurance by joining some group like AARP before you retire. You will still have to pay out of pocket,but they will cover most of it.

Victoria33 · « **Reply #153 on:** February 25, 2021, 09:04:19 pm »

@sleddog
@sneaky pete

I have Medicare and through AARP, UnitedHealthCare, Plan "J", the best plan they have. I pay nothing to any doctor. I have Blue Cross for medicines and I take a bunch of them. I pay a lot but if I did not have Blue Cross, I could not buy the medicines - some of them are over $1,000 with no insurance.

When I got insurance to go with Medicare, I looked for a plan that would not go up the older I got. That is why I have the UnitedHealthCare, Plan "J" from AARP. They will not raise the cost of the insurance as I get older. What I pay now is it.

sneakypete · « **Reply #154 on:** February 25, 2021, 09:21:28 pm »

Sounds like you made some good choices.

mountaineer · « **Reply #155 on:** February 25, 2021, 09:33:45 pm »

Thanks for sharing. I'm so sorry for suffering that might have been prevented. So frustrating.

jafo2010 · « **Reply #156 on:** February 27, 2021, 04:14:18 am »

I am saddened any of you have to suffer because of incompetent healthcare operations. There is no excuse. The good news, if the Dems have their way, everyone will have Medicare(all my personal friends on Medicare hate it). I'm being sarcastic. Things will continue to worsen healthcare wise because our politicians are not worth a good BM!

sneakypete...if you have a phone, I would love to speak to you and share more of what I know. If interested in talking, send me a personal note with your phone number. I know if you do what I suggest, I can help you. Definitively so. I am talking about reducing or eliminating pain, without taking substances that screw with your mental/physical functioning.

And I believe it was SledDog that had stents installed. I suspect the inner diameter of those stents is very small. I highly recommend you start using only distilled water for drinking, for water, coffee, tea and frozen juices. Stents almost guarantee future blockages, and distilled water will help that not to happen.

Sadly, American medicine is grossly deficient because of AMA procedures that hamstring physicians. And anything they do is further hampered by insurance companies that work exceptionally hard NOT to pay claims. I have spent over 20 years in healthcare, being a director for two Blues plans, and consulting to a dozen others, as well as consulting to different state government healthcare operations.

I promise all of you, if you are willing to take the time, I can tell you things that will help your situation. Cost you nothing to listen. I have helped many through the years. Those with cancer need not suffer with pain, need not take pain killers that leave you loopy. And for those that are suffering from nausea with chemo, there is a simple solution for that too. I am talking about solutions that do not entail taking pharma! Doctors will not advise you as such, why? Because largely they do not make any money and the AMA disapproves of anything that does not make money. Really that simple.

I have been drinking distilled water since 1979. I will never have a blocked artery, never a kidney or gall stone, no arthritis with deposits, no cataracts in the eyes, and with a recent study that indicated that for Alzheimer patients, a particular protein is being found built up in the brain, I am fairly certain I will never suffer from Alzheimers. What distilled water does for the body is keep thing that do not belong out of the body. No buildup of things that do not belong. Anyone that believes that tap water is safe to consume, think again. It is not a Jim Jones cocktail, but I believe it will cause cancer and other maladies and shorten the average person's life by ten years.

100% of the people that have taken shark cartilage for cancer have benefited that I know have followed my advice. 100%! I also recommend one particular brand, based on research done by a friend. You can get online and search to see who sells it for the best price. There is much to know about it to take it properly.

Please feel free to call me. Write me a personal message and call, or I will call you. I hate to see anyone suffer.

sneakypete · « **Reply #157 on:** February 27, 2021, 06:53:33 am »

Quote from: jafo2010 on February 27, 2021, 04:14:18 am

I have been drinking distilled water since 1979.

@jafo2010

I started using it for cooking and coffee about 5 years ago.

Gefn · « **Reply #158 on:** February 27, 2021, 08:10:16 am »

I donâ€™t know about bills. I know that when @To-Whose-Benefit? passed, his brother sold his most prized possession, his Les Paul guitar to pay off remaining bills and other expenses.

That was so sad. And I would have dipped into my 401K to help, so that guitar could have stayed in the family, who knows, maybe his niece or nephew would have a child that would like music and want it. And remember their amazing and cool great uncle too.

sneakypete · « **Reply #159 on:** November 15, 2021, 09:30:07 pm »

See my update on the health board.

sneakypete · « **Reply #160 on:** December 06, 2021, 07:22:03 pm »

Well,I have done it again. Managed to escape from the clutches of the hospital.

Pay attention. Some of this nonsense may save your life.

Ok,was feeling kinda under the weather for a week or so. Not really bad,and not in any pain,I just had no appetite at all,and due to not eating for a week (obvious hint something was wrong that I obviously overlooked),was very weak. I knew I had a problem when suddenly even coffee had no appeal. If you knew me personally,you would know THAT was a hint things were wrong that I should have NEVER ignored.

So,I am in the house,watching teebee,and fading in and out of consciousness. I was thinking that was due to just not having been able to get much/any sleep. I sometimes go through that,so I pretty much ignored that one,too.

So,I am VERY weak (should NEVER be ignored) and making sure I move carefully and have something to grab hold of when I move. (Duhhhhhh!)

Suddenly I am very hot instead of being a little chilled,so I get off the couch and move to cut on the overhead fan to cool down a little. Suddenly I am wondering "WHY is the floor 3 inches from my nose?".

An unknown time later I am wondering "WHY is my nose in a puddle of blood,and WHY am I laying face down on the floor?"

Being a clever man,I then figured out something was wrong,so I VERY carefully used a bookcase to hold on to in order to get to my knees,and then managed to pull myself upright.
Using the bookcase and a stand,I managed to make it back to the couch,where I sat down and pondered the situation.

"Was I in pain?" Nope.

"Why am I fading in and out of consciousness?" Good question!

"What do I need to do about this? Should I call an ambulance at midnight,or should I just lay down and go to sleep and call the ambulance in the morning if I am still having problems"

BEST QUESTION OF ALL!

Looked at my watch,saw it was midnight,and just said "Screw it,I'm going to the hospital",and called my ex,whose oldest daughter is a MD,and told her to have her daughter call the hospital and tell them I am coming and to call an ambulance to come pick me up. BTW,the local hospital is about 60 miles away.

My ex then called her sister,who lives closer to me,and told the sister to come help me get ready. Which she did. I gave her a key to the house so she could feed and water the cats for me,she helped me get dressed,and she helped me to the ambulance when it got here.

Got to the ER,and later on was told I was literally dying when I came in. I was bleeding internally due to a tumor on my intestines and my stomach was filling with my blood. Which is why I was both weak and unable to eat or drink anything.

The ER nurse told me I was 3 quarts low on blood,and my body had stopped producing it.

They immediately put me on blood transfusions and did a few other things I can't remember right now because the pain meds are kicking in.

The really tricky part about all this is at no time was I ever in any pain,and when I wasn't fading out mentally,I was as alert as ever. I did NOT have even the slightest hint I was in REAL trouble because there was no pain.

What convinced me to go ahead and call for help was being confused one moment,and mentally alert the next.

During one of my mentally alert moments it DID occur to me that I MIGHT be dying,but since there was no pain or discomfort involved,and given my age and other physical problems,I was REALLY tempted to just let nature take over and do it's "thing",IF that was what was happening. After all,dying with no pain and by just going to sleep can seem more like a positive thing than a bad thing when you are used to dealing with pain every day of your life.

But......,I am just not a quitter by nature,so I made the phone call and am now glad that I did.

The surgeon told me I had a bleeding ulcer/tumor on my intestine,and it had to heal itself,which it did due to the anti-biotics he had injected or shoveled into my mouth. Or mostly healed itself. The tumor/ulcer is still there,it's just not bleeding any longer,and my body is once again producing blood.

He took a sample from the tumor and sent it off for a biopsy. I guess I will get the report in a week or so,but judging by the huge smile on the surgeon's face when he was telling me this,it seems like he thinks he won a battle he had not expected to win.

I guess the moral of this story is to NOT just assume you are in no danger because there is no pain,and there is no bleeding that you can see. All my bleeding was internal,and my blood was somehow mixing with the feces and urine in my body,and my body was being poisoned by it.

You can't always see or feel the danger,and you can NOT rely on pain as an indicator that you are in trouble. Which honestly surprised the hell out of me.

When in ANY doubt at all,shout for help. Trust me on this one.

Kamaji · « **Reply #161 on:** December 06, 2021, 07:31:48 pm »

Quote from: sneakypete on December 06, 2021, 07:22:03 pm

Well,I have done it again. Managed to escape from the clutches of the hospital.

Pay attention. Some of this nonsense may save your life.

Ok,was feeling kinda under the weather for a week or so. Not really bad,and not in any pain,I just had no appetite at all,and due to not eating for a week (obvious hint something was wrong that I obviously overlooked),was very weak. I knew I had a problem when suddenly even coffee had no appeal. If you knew me personally,you would know THAT was a hint things were wrong that I should have NEVER ignored.

So,I am in the house,watching teebee,and fading in and out of consciousness. I was thinking that was due to just not having been able to get much/any sleep. I sometimes go through that,so I pretty much ignored that one,too.

So,I am VERY weak (should NEVER be ignored) and making sure I move carefully and have something to grab hold of when I move. (Duhhhhhh!)

Suddenly I am very hot instead of being a little chilled,so I get off the couch and move to cut on the overhead fan to cool down a little. Suddenly I am wondering "WHY is the floor 3 inches from my nose?".

An unknown time later I am wondering "WHY is my nose in a puddle of blood,and WHY am I laying face down on the floor?"

Being a clever man,I then figured out something was wrong,so I VERY carefully used a bookcase to hold on to in order to get to my knees,and then managed to pull myself upright.
Using the bookcase and a stand,I managed to make it back to the couch,where I sat down and pondered the situation.

"Was I in pain?" Nope.

"Why am I fading in and out of consciousness?" Good question!

"What do I need to do about this? Should I call an ambulance at midnight,or should I just lay down and go to sleep and call the ambulance in the morning if I am still having problems"

BEST QUESTION OF ALL!

Looked at my watch,saw it was midnight,and just said "Screw it,I'm going to the hospital",and called my ex,whose oldest daughter is a MD,and told her to have her daughter call the hospital and tell them I am coming and to call an ambulance to come pick me up. BTW,the local hospital is about 60 miles away.

My ex then called her sister,who lives closer to me,and told the sister to come help me get ready. Which she did. I gave her a key to the house so she could feed and water the cats for me,she helped me get dressed,and she helped me to the ambulance when it got here.

Got to the ER,and later on was told I was literally dying when I came in. I was bleeding internally due to a tumor on my intestines and my stomach was filling with my blood. Which is why I was both weak and unable to eat or drink anything.

The ER nurse told me I was 3 quarts low on blood,and my body had stopped producing it.

They immediately put me on blood transfusions and did a few other things I can't remember right now because the pain meds are kicking in.

The really tricky part about all this is at no time was I ever in any pain,and when I wasn't fading out mentally,I was as alert as ever. I did NOT have even the slightest hint I was in REAL trouble because there was no pain.

What convinced me to go ahead and call for help was being confused one moment,and mentally alert the next.

During one of my mentally alert moments it DID occur to me that I MIGHT be dying,but since there was no pain or discomfort involved,and given my age and other physical problems,I was REALLY tempted to just let nature take over and do it's "thing",IF that was what was happening. After all,dying with no pain and by just going to sleep can seem more like a positive thing than a bad thing when you are used to dealing with pain every day of your life.

But......,I am just not a quitter by nature,so I made the phone call and am now glad that I did.

The surgeon told me I had a bleeding ulcer/tumor on my intestine,and it had to heal itself,which it did due to the anti-biotics he had injected or shoveled into my mouth. Or mostly healed itself. The tumor/ulcer is still there,it's just not bleeding any longer,and my body is once again producing blood.

He took a sample from the tumor and sent it off for a biopsy. I guess I will get the report in a week or so,but judging by the huge smile on the surgeon's face when he was telling me this,it seems like he thinks he won a battle he had not expected to win.

I guess the moral of this story is to NOT just assume you are in no danger because there is no pain,and there is no bleeding that you can see. All my bleeding was internal,and my blood was somehow mixing with the feces and urine in my body,and my body was being poisoned by it.

You can't always see or feel the danger,and you can NOT rely on pain as an indicator that you are in trouble. Which honestly surprised the hell out of me.

When in ANY doubt at all,shout for help. Trust me on this one.

@sneakypete

Wow. Just Wow. Thank God you're still with us.

Smokin Joe · « **Reply #162 on:** December 06, 2021, 07:59:09 pm »

@sneakypete Wow, you dodged another bullet. Glad you are still with us!

Right_in_Virginia · « **Reply #163 on:** December 06, 2021, 08:28:35 pm »

You're officially my hero @sneakypete ---- 2nd only to your incredible (and exhausted) guardian angel.

Very glad you're back.

libertybele · « **Reply #164 on:** December 06, 2021, 08:39:11 pm »

Incredible story and one that we all need to read and heed your words.

I am very glad that you are back @sneakypete !!!

Kamaji · « **Reply #165 on:** December 06, 2021, 09:07:43 pm »

Going in and out of alertness/consciousness for no apparent reason is a big warning sign. An acquaintance of mine went to the hospital several years ago because he was having transient episodes of wonkiness and loss of focus, and it turned out he had stage iv cancer that had metastasized and gotten into his brain. He would probably be dead if he hadn’t needed his wife’s warnings for get himself checked out.

sneakypete · « **Reply #166 on:** December 06, 2021, 09:14:48 pm »

I want to thank you all for your kind thoughts,but I didn't post the post for sympathy. I posted it as a warning shot across the bow for any who might be as pig-headed as I am.

What I SHOULD have done was gone to see the doc the first week I wasn't able to eat.

Stoopid,stoopid,stoopid!

And it damn near cost me my life.

berdie · « **Reply #167 on:** December 07, 2021, 04:32:03 pm »

Quote from: sneakypete on December 06, 2021, 09:14:48 pm

I want to thank you all for your kind thoughts,but I didn't post the post for sympathy. I posted it as a warning shot across the bow for any who might be as pig-headed as I am.

What I SHOULD have done was gone to see the doc the first week I wasn't able to eat.

Stoopid,stoopid,stoopid!

And it damn near cost me my life.

FWIW..@sneakypete...I don't think you are stoopid or pigheaded.

I totally understand how symptoms are discounted when one has been ill. Been there, done that.

Hang in! You are tough.

mountaineer · « **Reply #168 on:** December 09, 2021, 05:30:12 pm »

I'm so grateful you're still among us, @sneakypete

Like he said, if something's "off," have it checked out - just like our future First Lady here:

https://twitter.com/FLCaseyDeSantis/status/1468953073552814088

sneakypete · « **Reply #169 on:** December 10, 2021, 07:33:53 pm »

Quote from: mountaineer on December 09, 2021, 05:30:12 pm

I'm so grateful you're still among us, @sneakypete

Like he said, if something's "off," have it checked out - just like our future First Lady here:

https://twitter.com/FLCaseyDeSantis/status/1468953073552814088

@mountaineer

Don't worry about that. I just got out of the hospital again tonight. The second night I was out my stomach started to burn again,and that is what it was doing when the tumor in my stomach was leaking blood.

This sort of thing is VERY dangerous because it COULD be just minor indigestion,and there is no real pain involved when dying from it. You just feel sleepy.

sneakypete · « **Reply #170 on:** April 03, 2022, 07:30:51 pm »

Quote from: jafo2010 on February 27, 2021, 04:14:18 am

jafo20210 wrote: "I have been drinking distilled water since 1979. "

AND: "100% of the people that have taken shark cartilage for cancer have benefited that I know have followed my advice. 100%! "

I am with you on both of the above! Getting ready to post a health update that might surprise some people as much as it surprised me. Going to do a "stand alone" post so it doesn't get lost in the mass of posts.

sneakypete · « **Reply #171 on:** April 03, 2022, 08:10:26 pm »

Quote from: Kamaji on December 06, 2021, 07:31:48 pm

@sneakypete

Wow. Just Wow. Thank God you're still with us.

@Kamaji

IF,by chance,some higher power offers you a choice between being lucky or being smart,choose lucky.

Take my word on this one.

sneakypete · « **Reply #172 on:** April 03, 2022, 08:11:11 pm »

Quote from: Smokin Joe on December 06, 2021, 07:59:09 pm

@sneakypete Wow, you dodged another bullet. Glad you are still with us!

@Smokin Joe

Thanks. I somehow missed the replies on this thread until now.

sneakypete · « **Reply #173 on:** April 03, 2022, 08:56:43 pm »

@jafo2010

jafo20210 wrote: "I have been drinking distilled water since 1979. "

AND: "100% of the people that have taken shark cartilage for cancer have benefited that I know have followed my advice. 100%! "

++++++++++++++++++++++++++++++++++++++++++++++++++++++

He ain't justa woofing,either! Not personally sure about the distilled water,but I have been drinking it and making coffee with it for several years now.

As for the pills,I am no doctor or scientist,but I CAN tell you that if they don't work,they sure have ME fooled! Between them and the other pills,I am actually feeling pretty damn good!

Now,if I can just find a pill for chemo brain,I'll be back to what passes for normal for me.

This is sorta the Part B addition to the VERY long cancer update post I wrote,and somehow lost. Might try to recreate it later after resting.

Ok,my cancer surgeon told me that I had Stage 4 Lymphoma,and while she didn't say it was hopeless,she wasn't tap dancing around the office,either.

After taking the massive doses of chemo and radiation that turned me into a "sharper than most turnips" intellectual,things didn't seem to be working for me when I went in for the montly update.

She really looked sad as she told me the PET Scans hadn't been looking good,and that I was maxed out on chemo and radiation.

So she then suggested I try some new "cancer pills" that had just recently been given rush approval and put on the market. She told me that the downside was the pills made some people so sick they said they would rather die from cancer than keep taking them.

Which struck me as an odd thing for a doctor to say,but I guess she figured I was already sick enough that adding to it was counterproductive.

Anyhow,I told her "Hell,yea,I'll try them! It ain't like I have anything to lose,and if they make me that sick,I'll just quit taking them!"

Here is where the sorta "good news" comes into play. Chemo had fried me memory to the point I had forgotten all about the new pill discussion we had by the time they came in,and just started taking them. I was shocked when I went in for the checkup a month later and she asked me if they were making me sick. The truth is I started feeling better almost immediately.

Went in for the monthy PET scan and then for the monthly check-up with her a week or so after 2 months of taking them,and damned if the cancer hadn't disappeared!

Surprised her so much she immediately scheduled a back up PET scan for me the next week.

That one came back negative,too.

I can NOT say I have beaten the cancer. You have to be cancer-free for 5 years to make that claim.

Truth to tell,I can't even claim the cancer pills she gave me are what did the trick,but I DO have my suspicions!

Here is the trade name and instructions for taking them. This is a prescription drug,so you will have to get your doc to write you a prescription for it. I supposed it comes in larger or smaller doses,but this is what was prescribed for me.

Brukinsa Zanubrutinib caps

80 Mg

2 pills twice a day. With or without food

I can't remember what they cost,and it will no doubt vary by area and pharmacy,but I DO know they are insanely cheap when you consider they could very well save your life.

+++++++++++++++++++++++++++++++++++++++++++++++++++

Ok,now getting back to JAFO2010 and the pills he recommends. Here is where I buy mine from the web.

https://www.swansonvitamins.com/checkout/register.guest.html

CARTILADE (Shark Cartilage) for cancer

The cost for one big bottle is $55.27,and you take one capsule twice a day.

I ordered two bottles at first,and had not finished the first one before I got the "no cancer on your PET Scan" report.

There may be web sites that sell it cheaper,so you can look around now that you have the trade name.

libertybele · « **Reply #174 on:** April 03, 2022, 09:00:10 pm »

Quote from: sneakypete on April 03, 2022, 08:56:43 pm

@jafo2010

jafo20210 wrote: "I have been drinking distilled water since 1979. "

AND: "100% of the people that have taken shark cartilage for cancer have benefited that I know have followed my advice. 100%! "

++++++++++++++++++++++++++++++++++++++++++++++++++++++

He ain't justa woofing,either.

This is sorta the Part B addition to the VERY long cancer update post I wrote,and somehow lost. Might try to recreate it later after resting.

Ok,my cancer surgeon told me that I had Stage 4 Lymphoma,and while she didn't say it was hopeless,she wasn't tap dancing around the office,either.

After taking the massive doses of chemo and radiation that turned me into a "sharper than most turnips" intellectual,things didn't seem to be working for me when I went in for the montly update.

She really looked sad as she told me the PET Scans hadn't been looking good,and that I was maxed out on chemo and radiation.

So she then suggested I try some new "cancer pills" that had just recently been given rush approval and put on the market. She told me that the downside was the pills made some people so sick they said they would rather die from cancer than keep taking them.

Which struck me as an odd thing for a doctor to say,but I guess she figured I was already sick enough that adding to it was counterproductive.

Anyhow,I told her "Hell,yea,I'll try them! It ain't like I have anything to lose,and if they make me that sick,I'll just quit taking them!"

Here is where the sorta "good news" comes into play. Chemo had fried me memory to the point I had forgotten all about the new pill discussion we had by the time they came in,and just started taking them. I was shocked when I went in for the checkup a month later and she asked me if they were making me sick. The truth is I started feeling better almost immediately.

Went in for the monthy PET scan and then for the monthly check-up with her a week or so after 2 months of taking them,and damned if the cancer hadn't disappeared!

Surprised her so much she immediately scheduled a back up PET scan for me the next week.

That one came back negative,too.

I can NOT say I have beaten the cancer. You have to be cancer-free for 5 years to make that claim.

Truth to tell,I can't even claim the cancer pills she gave me are what did the trick,but I DO have my suspicions!

Here is the trade name and instructions for taking them. This is a prescription drug,so you will have to get your doc to write you a prescription for it. I supposed it comes in larger or smaller doses,but this is what was prescribed for me.

Brukinsa Zanubrutinib caps

80 Mg

2 pills twice a day. With or without food

I can't remember what they cost,and it will no doubt vary by area and pharmacy,but I DO know they are insanely cheap when you consider they could very well save your life.

+++++++++++++++++++++++++++++++++++++++++++++++++++

Ok,now getting back to JAFO2010 and the pills he recommends. Here is where I buy mine from the web.

https://www.swansonvitamins.com/checkout/register.guest.html

CARTILADE (Shark Cartilage) for cancer

The cost for one big bottle is $55.27,and you take one capsule twice a day.

I ordered two bottles at first,and had not finished the first one before I got the "no cancer on your PET Scan" report.

There may be web sites that sell it cheaper,so you can look around now that you have the trade name.

I have heard of shark cartilage but I am not truly all familiar with it. Does it rebuild cells and/or eradicate cancer and tumors??

sneakypete · « **Reply #175 on:** April 03, 2022, 09:08:30 pm »

Quote from: libertybele on April 03, 2022, 09:00:10 pm

I have heard of shark cartilage but I am not truly all familiar with it. Does it rebuild cells and/or eradicate cancer and tumors??

@libertybele

Beats the hell out of ME!

All I can tell you is that a month or two (chemo brain and time don't play well together) after taking them and the doc prescribed pills,there is no cancer to be found on my PET scans.

I can also tell you that I have had a few people out here in "flesh and blood land" tell me the same thing JAFO2010 and I are telling you here on TBR. I took the pills and the cancer just seemed to disappear and I didn't even vomit a single time. Or even have a queasy stomach.

AND......,if you have Stage 4 cancer,what do you have to lose by spending 100 bucks or so on both pills and trying them?

BTW,I do NOT get even one thin dime for these recommendations. Nor do I know anyone involved in any way with the manufacturing or sales of either.

libertybele · « **Reply #176 on:** April 03, 2022, 09:16:06 pm »

Quote from: sneakypete on April 03, 2022, 09:08:30 pm

@libertybele

Beats the hell out of ME!

All I can tell you is that a month or two (chemo brain and time don't play well together) after taking them and the doc prescribed pills,there is no cancer to be found on my PET scans.

I can also tell you that I have had a few people out here in "flesh and blood land" tell me the same thing JAFO2010 and I are telling you here on TBR. I took the pills and the cancer just seemed to disappear and I didn't even vomit a single time. Or even have a queasy stomach.

AND......,if you have Stage 4 cancer,what do you have to lose by spending 100 bucks or so on both pills and trying them?

BTW,I do NOT get even one thin dime for these recommendations. Nor do I know anyone involved in any way with the manufacturing or sales of either.

I'm only asking because I have rare cysts on the nerve roots on my spinal cord and they cannot be removed by surgery. I guess I'll try shark cartilage.

sneakypete · « **Reply #177 on:** April 03, 2022, 09:20:55 pm »

Quote from: libertybele on April 03, 2022, 09:16:06 pm

I'm only asking because I have rare cysts on the nerve roots on my spinal cord and they cannot be removed by surgery. I guess I'll try shark cartilage.

@libertybele

I don't have the first clue if they will work for you or not because that isn't cancer,but the pills are cheap enough to give them a shot for 2 months or so,and then see if there is any improvement.

And I do wish you all the luck in the world on this.

libertybele · « **Reply #178 on:** April 03, 2022, 09:27:08 pm »

Quote from: sneakypete on April 03, 2022, 09:20:55 pm

@libertybele

I don't have the first clue if they will work for you or not because that isn't cancer,but the pills are cheap enough to give them a shot for 2 months or so,and then see if there is any improvement.

And I do wish you all the luck in the world on this.

Thank you @sneakypete

sneakypete · « **Reply #179 on:** April 04, 2022, 12:51:06 pm »

If any of you have cancer and no luck with treating it,forget about buying these pills on the web.

Cheapest I could find a bottle of 180 was $13,6xx.00. Yeah,NOT a typo. There was only two places that had it for 13.5 grand,and it was 14.5 or more everywhere else. I THINK one of the 13.5 grand places was Wal-Mart.

IF you can't get your cancer doc to furnish them to you and have 13+ grand to spend,be aware that there is no way in hell your local Wal-Mart will have them in stock. Be prepared to wait for them to order and get them in,and most likely,you will have to pay in advance to get them to order it.

Best bet is to try your cancer doc. Mine gave me the first bottle for free because most likely the clinic she works for gets them for free from the manufacturer so they can be used and the word spread that they work. A tax write-off for the manufacturer,and it helps them get on the good side of clinics that will spread the word about them and create a demand.

Not sure if I am going to have any luck or not, but I plan on asking my cancer doc if she can get me more next time I see her. Since I can't afford 13-14 grand for a 90 day supply of pills,it is my only option other than to just quit taking them and see if the cancer returns.

sneakypete · « **Reply #180 on:** September 16, 2022, 10:36:30 pm »

Quote from: Victoria33 on April 09, 2019, 11:14:53 am

bookmark

@Victoria33

How do you bookmark a thread?

BTW,I tried to send you a PM,but you have me blocked for some reason.

Texas Yellow Rose · « **Reply #181 on:** September 16, 2022, 11:07:22 pm »

Quote from: sneakypete on September 16, 2022, 10:36:30 pm

@Victoria33

How do you bookmark a thread?

BTW,I tried to send you a PM,but you have me blocked for some reason.

sneakypete · « **Reply #182 on:** September 17, 2022, 12:48:28 am »

Quote from: Texas Yellow Rose on September 16, 2022, 11:07:22 pm

@Texas Yellow Rose

Ok,so where do I find that icon,and how do I save it to my TBR page?

Texas Yellow Rose · « **Reply #183 on:** September 17, 2022, 08:01:00 am »

Quote from: sneakypete on September 17, 2022, 12:48:28 am

@Texas Yellow Rose

Ok,so where do I find that icon,and how do I save it to my TBR page?

When making a comment enter "[more]" right over the box you will find the bookmark with the icon. Insert it just like making a comment.

sneakypete · « **Reply #184 on:** September 17, 2022, 06:09:42 pm »

Quote from: Texas Yellow Rose on September 17, 2022, 08:01:00 am

When making a comment enter "[more]" right over the box you will find the bookmark with the icon. Insert it just like making a comment.

@Texas Yellow Rose

Thank you!

Not trying to look as ignurt as I actually am,can I assume I do this by dragging it down?

libertybele · « **Reply #185 on:** September 17, 2022, 06:13:48 pm »

Quote from: sneakypete on April 04, 2022, 12:51:06 pm

If any of you have cancer and no luck with treating it,forget about buying these pills on the web.

Cheapest I could find a bottle of 180 was $13,6xx.00. Yeah,NOT a typo. There was only two places that had it for 13.5 grand,and it was 14.5 or more everywhere else. I THINK one of the 13.5 grand places was Wal-Mart.

IF you can't get your cancer doc to furnish them to you and have 13+ grand to spend,be aware that there is no way in hell your local Wal-Mart will have them in stock. Be prepared to wait for them to order and get them in,and most likely,you will have to pay in advance to get them to order it.

Best bet is to try your cancer doc. Mine gave me the first bottle for free because most likely the clinic she works for gets them for free from the manufacturer so they can be used and the word spread that they work. A tax write-off for the manufacturer,and it helps them get on the good side of clinics that will spread the word about them and create a demand.

Not sure if I am going to have any luck or not, but I plan on asking my cancer doc if she can get me more next time I see her. Since I can't afford 13-14 grand for a 90 day supply of pills,it is my only option other than to just quit taking them and see if the cancer returns.

@sneakypete I looked up Brukinsa Zanubrutinib and it is specifically made to target lymphoma.

sneakypete · « **Reply #186 on:** September 17, 2022, 06:48:32 pm »

Quote from: libertybele on September 17, 2022, 06:13:48 pm

@sneakypete I looked up Brukinsa Zanubrutinib and it is specifically made to target lymphoma.

@libertybele

That makes sense,since I was diagnosed as having Stage 4 Lymphoma.

Had a cancer doc tell me last week that it is "kind of a form of chemotherapy".

What I know for a fact is that it helped me test negative for cancer after being diagnosed as being "untreatable" after the traditional methods didn't work.

sneakypete · « **Reply #187 on:** September 17, 2022, 06:52:12 pm »

Quote from: libertybele on September 17, 2022, 06:13:48 pm

@sneakypete I looked up Brukinsa Zanubrutinib and it is specifically made to target lymphoma.

@libertybele

BTW,I had a slightly more lucid moment today and remembered the cheapest places to buy it if you don't have insurance are a Wal-Mart pharmacy,or a Food Lion pharmacy.

Texas Yellow Rose · « **Reply #188 on:** September 17, 2022, 07:41:15 pm »

Quote from: sneakypete on September 17, 2022, 06:09:42 pm

@Texas Yellow Rose

Thank you!

Not trying to look as ignurt as I actually am,can I assume I do this by dragging it down?

No, just click on it and it will automatically go to you comment ... then post. If you want to find it later, go to your profile and click "show posts".

sneakypete · « **Reply #189 on:** September 17, 2022, 08:32:21 pm »

Quote from: Texas Yellow Rose on September 17, 2022, 07:41:15 pm

No, just click on it and it will automatically go to you comment ... then post. If you want to find it later, go to your profile and click "show posts".

@Texas Yellow Rose

THANK YOU!

I have been trying to copy and paste,and then trying to drag them down in to place,and had no idea how I was going wrong.

Bigun · « **Reply #190 on:** February 12, 2023, 05:01:59 pm »

A word of warning; One of my neighbors (Larry) will have major surgery on the right side of his face on the 20th followed, I'm sure, by several reconstructive surgeries all of which could have been avoided had he not ignored the little skin cancer that developed on the top of his right ear sometime back.

All of that to say this; If something shows up on your body that shouldn't be there, or just doesn't feel right, GET IT CHECKED OUT!

mountaineer · « **Reply #191 on:** February 12, 2023, 05:26:31 pm »

That's right, Bigun. I knew a judge who had just a tiny pimple-like bump on his leg. By the time he had it checked out, it was too late for treatment to be effective.

In the midst of my sister's current cancer battle, I'm not ignoring any ache or pain. I don't care if anyone thinks I'm a hypochondriac.

Bigun · « **Reply #192 on:** February 12, 2023, 05:31:08 pm »

Quote from: mountaineer on February 12, 2023, 05:26:31 pm

That's right, Bigun. I knew a judge who had just a tiny pimple-like bump on his leg. By the time he had it checked out, it was too late for treatment to be effective.

In the midst of my sister's current cancer battle, I'm not ignoring any ache or pain. I don't care if anyone thinks I'm a hypochondriac.

sneakypete · « **Reply #193 on:** February 12, 2023, 07:36:00 pm »

Quote from: Bigun on February 12, 2023, 05:01:59 pm

A word of warning; One of my neighbors (Larry) will have major surgery on the right side of his face on the 20th followed, I'm sure, by several reconstructive surgeries all of which could have been avoided had he not ignored the little skin cancer that developed on the top of his right ear sometime back.

All of that to say this; If something shows up on your body that shouldn't be there, or just doesn't feel right, GET IT CHECKED OUT!

@Bigun

You are kidding,right?

If I stopped to do that,I might as well go ahead and sell everything I own because the rest of my life will be spent in a hospital.

I am sure there MUST be something that looks and performs like it is supposed to ,but I can't begin to guess what it would be.

It damn sure ain't my short-term memory. Chemo set fire to that.

mountaineer · « **Reply #194 on:** June 20, 2023, 06:57:40 pm »

If you've seen the prayer thread, you'll know that my sister has been dealing with stage 3 ovarian cancer since January. She had 8 chemotherapy sessions, extensive surgery, and now has completed three more chemo sessions. She's doing pretty well, but the chemo is knocking her on her butt: pain she compares to fibromyalgia, nausea, loss of appetite, etc.

I finally broke down and suggested medical mj, which is legal in her state. I should point out that I have a deep aversion to marijuana, thanks to the behavior of another sibling, but I do understand that it can reduce nausea and increase the appetite in cases like hers. I doubt she's ever tried it, and I know I haven't. But she's willing to look into it.

Any personal experiences (not just the casual toker experiences, I mean with regard to dealing with chemo side effects)?

bigheadfred · « **Reply #195 on:** June 20, 2023, 07:18:35 pm »

Quote from: mountaineer on June 20, 2023, 06:57:40 pm

If you've seen the prayer thread, you'll know that my sister has been dealing with stage 3 ovarian cancer since January. She had 8 chemotherapy sessions, extensive surgery, and now has completed three more chemo sessions. She's doing pretty well, but the chemo is knocking her on her butt: pain she compares to fibromyalgia, nausea, loss of appetite, etc.

I finally broke down and suggested medical mj, which is legal in her state. I should point out that I have a deep aversion to marijuana, thanks to the behavior of another sibling, but I do understand that it can reduce nausea and increase the appetite in cases like hers. I doubt she's ever tried it, and I know I haven't. But she's willing to look into it.

Any personal experiences (not just the casual toker experiences, I mean with regard to dealing with chemo side effects)?

Has your sister looked into CBDs? I don't have any personal experience but I've read they an be effective. She may be able to get the benefits without the high. @mountaineer

sneakypete · « **Reply #196 on:** June 20, 2023, 07:53:54 pm »

Quote from: mountaineer on June 20, 2023, 06:57:40 pm

If you've seen the prayer thread, you'll know that my sister has been dealing with stage 3 ovarian cancer since January. She had 8 chemotherapy sessions, extensive surgery, and now has completed three more chemo sessions. She's doing pretty well, but the chemo is knocking her on her butt: pain she compares to fibromyalgia, nausea, loss of appetite, etc.

I finally broke down and suggested medical mj, which is legal in her state. I should point out that I have a deep aversion to marijuana, thanks to the behavior of another sibling, but I do understand that it can reduce nausea and increase the appetite in cases like hers. I doubt she's ever tried it, and I know I haven't. But she's willing to look into it.

Any personal experiences (not just the casual toker experiences, I mean with regard to dealing with chemo side effects)?

@mountaineer

Well,even IF I still toked weed I wouldn't be able to tell you because chemo wiped out my short-term memory. To the point I sometimes start to talk with a long-time friend,and can't remember their name.

If it weren't for spell-check,I wouldn't even be able to post here. Even when I do post,I always have to go back and read each sentence one at a time to remember what I am posting about.

Chemo and radiation ain't for sissies!

I WILL tell you that toking a little weed has NEVER in all of reported time ever been known to harm anyone,and that IF an adult can get over the paranoia of smoking weed (or eathing hash brownies) it can only help.

No,it won't cure anything,but will help to calm you down,which IS good for your blood pressure and probably for your piece of mind.

If you live in a state where it is legal,you owe it to yourself to try it,but I recommend trying it in the company of someone you know and trust who has smoked it for a while. If you start to panic,they can calm you down.

BTW,the only reason I quit smoking weed is because I moved to a new area and didn't know anyone else that smoked,and the few people I offered to share a joint with acted terrified. Since for ME,smoking weed was a social thing,I had no interest in smoking it by myself. Now I honestly don't even know where I could buy any. Or care. Have too much trouble just breathing to be smoking anything.

BTW,I THINK I might have been maybe 12 or 13 years old the first time I toked up,and it was at a party.

sneakypete · « **Reply #197 on:** June 20, 2023, 08:00:36 pm »

Quote from: bigheadfred on June 20, 2023, 07:18:35 pm

Has your sister looked into CBDs? I don't have any personal experience but I've read they an be effective. She may be able to get the benefits without the high. @mountaineer

@bigheadfred

@mountaineer

Fred,if she has been blasted with chemo and radiation like I was,she won't be able to remember who to ask or what needs to be asked. Seriously.

She needs to have her sister or someone else with an actual memory take notes on what should be tried and maybe even monitor her while she tries it.

I don't smoke anything anymore,but I have to admit if I knew where I could buy a legal hash-brownie,I'd have a few laying around.

Ok,I would have ONE laying around. It never took much for me to catch a buzz,even on cheap 10 bucks a bag pot back in the 70's. Just one hash brownie would probably last me a week.

mountaineer · « **Reply #198 on:** June 20, 2023, 09:20:51 pm »

The state has a website to apply for a medical marijuana card. If she goes through the steps, it looks pretty simple.

mountaineer · « **Reply #199 on:** June 21, 2023, 08:54:35 am »

Oops, it just occurred to me that she also has a concealed carry permit. I hope the ridiculous peoples' republic of of Pennsylvania wouldn't give her a marijuana card, only to take her carry permit away from her.