Author Topic: Share your cancer journey - and any other personal medical advice  (Read 154775 times)

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Offline Mod1

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Inspired by comments on Sneakypete's thread about recent/ongoing personal health issues and the suggestion that the forum have a place for people to share their cancer battles, medical advice, helpful information, etc., this thread has been created.

Here is a link to Pete's thread.

If your experience can help another TBR member, it's all worth it. You don't have to limit the conversation to cancer, although that certainly is one that touches all of us.
« Last Edit: January 18, 2021, 10:52:47 pm by Mod2 »

Offline Victoria33

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Re: Share your cancer journey - and any other personal medical experience
« Reply #1 on: April 09, 2019, 03:14:53 pm »
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Offline Applewood

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Re: Share your cancer journey - and any other personal medical experience
« Reply #2 on: April 09, 2019, 04:16:23 pm »
So far I have nothing to contribute except for my prayers for @sneakypete @To-Whose-Benefit? and anyone else facing cancer or any other serious, life-threatening illness. 

Thank you @Mod1


Offline mountaineer

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Re: Share your cancer journey - and any other personal medical experience
« Reply #3 on: April 09, 2019, 05:08:06 pm »
My mother's chronic lymphatic leukemia contributed to her death,  but otherwise cancer hasn't hit me directly.  My own issues include chronic pain, probably osteoarthritis related.  The Regenexx procedure done on my hip in December seems to be helping somewhat.  For more info,  visit www.rapsmd.com. That's the Pittsburgh location,  but I believe it's available all over the place.

Offline Jazzhead

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Re: Share your cancer journey - and any other personal medical experience
« Reply #4 on: April 09, 2019, 05:17:33 pm »
Watch where you're going.   Don't be careless on stairs.   Avoiding falls is probably the key to having a good quality of life in older age.   
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Offline Sanguine

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Re: Share your cancer journey - and any other personal medical experience
« Reply #5 on: April 09, 2019, 05:40:43 pm »
BKMK

Offline truth_seeker

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Re: Share your cancer journey - and any other personal medical experience
« Reply #6 on: April 09, 2019, 06:14:51 pm »
Was diagnosed with Prostate cancer (intermediate level), last fall. Underwent daily  external beam radiation treatment January 16-March 19 (44 treatments).


The worst stuff is performed by the urologist. The radiation-oncology stuff is painleess.

Appoinment followup with radiation-oncologist this Thursday. I expect either him or the urologist will get my PSA blood test again, to learn if treatment worked.

Supposedly radiation is 90+ percent effective. Stated differently, they predict you will eventually die from something other than prostate cancer.

Assuming successful cancer treatment outcome, my remaining situation will be lifelong rare NPH (Normal Pressure Hydrocephalus-shunt etc.) Separate story if interested.
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Offline mystery-ak

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Re: Share your cancer journey - and any other personal medical experience
« Reply #7 on: April 09, 2019, 06:18:14 pm »
Was diagnosed with Prostate cancer (intermediate level), last fall. Underwent daily  external beam radiation treatment January 16-March 19 (44 treatments).


The worst stuff is performed by the urologist. The radiation-oncology stuff is painleess.

Appoinment followup with radiation-oncologist this Thursday. I expect either him or the urologist will get my PSA blood test again, to learn if treatment worked.

Supposedly radiation is 90+ percent effective. Stated differently, they predict you will eventually die from something other than prostate cancer.

Assuming successful cancer treatment outcome, my remaining situation will be lifelong rare NPH (Normal Pressure Hydrocephalus-shunt etc.) Separate story if interested.

Prayers for a good report Thursday.
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Offline Idiot

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Re: Share your cancer journey - and any other personal medical experience
« Reply #8 on: April 09, 2019, 06:20:53 pm »
Was diagnosed with Prostate cancer (intermediate level), last fall. Underwent daily  external beam radiation treatment January 16-March 19 (44 treatments).


The worst stuff is performed by the urologist. The radiation-oncology stuff is painleess.

Appoinment followup with radiation-oncologist this Thursday. I expect either him or the urologist will get my PSA blood test again, to learn if treatment worked.

Supposedly radiation is 90+ percent effective. Stated differently, they predict you will eventually die from something other than prostate cancer.

Assuming successful cancer treatment outcome, my remaining situation will be lifelong rare NPH (Normal Pressure Hydrocephalus-shunt etc.) Separate story if interested.
May God grant you great test results!

Offline truth_seeker

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Re: Share your cancer journey - and any other personal medical experience
« Reply #9 on: April 09, 2019, 06:48:31 pm »
Prayers for a good report Thursday.
Thanks a lot !!
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Offline Applewood

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Re: Share your cancer journey - and any other personal medical experience
« Reply #10 on: April 09, 2019, 07:02:20 pm »
Prayers up fo you @truth_seeker   

Offline truth_seeker

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Re: Share your cancer journey - and any other personal medical experience
« Reply #11 on: April 09, 2019, 07:10:31 pm »
Prayers up fo you @truth_seeker

Thanks. I am as usual positive and optimistic.
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Offline Gefn

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Re: Share your cancer journey - and any other personal medical experience
« Reply #12 on: April 09, 2019, 07:45:34 pm »
Prayers for a good report Thursday.

@truth_seeker you are in my prayers too.
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Offline truth_seeker

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Offline TomSea

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Re: Share your cancer journey - and any other personal medical experience
« Reply #14 on: April 09, 2019, 08:36:33 pm »
Yes, in my thoughts and prayers....

Offline mountaineer

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Re: Share your cancer journey - and any other personal medical experience
« Reply #15 on: April 09, 2019, 11:22:49 pm »
Watch where you're going.   Don't be careless on stairs.   Avoiding falls is probably the key to having a good quality of life in older age.
My mother suffered an incredible and indescribable amount of pain from osteoarthritis throughout her body. She was prescribed Fentanyl (patch) that didn't begin to put a dent in the pain. I have a feeling the opioid drug may have made her even more unsteady on her feet, however, which led to her falling down a flight of stairs. She died two months later, never having gotten out of the rehab hospital. The CLL may have contributed to her death by making her weaker, overall, but I believe it was a fall that caused her demise.

So I agree with you!

Offline To-Whose-Benefit?

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Re: Share your cancer journey - and any other personal medical experience
« Reply #16 on: April 10, 2019, 07:58:53 am »
Watch where you're going.   Don't be careless on stairs.   Avoiding falls is probably the key to having a good quality of life in older age.

@Jazzhead

This is a righteous 2cents worth. Avoiding falls can save patients all Kinds of problems. 

You don't just wait cancer out.

You Fight it out.

Stand, like a Fighter! (Pics of Olympic Boxers)

Your feet spread shoulder wide, One foot out Ahead of the other.

This makes it Much harder to lose your balance and get Knocked Over.

(Especially good advice for the ladies, who've never developed a love for fist fighting! Try it for doing dishes or brushing your teeth. )
« Last Edit: April 10, 2019, 08:01:53 am by To-Whose-Benefit? »
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In Vol 2 the weapons come out in a winner take all war on two fronts.

Vol 3 opens with the rigged murder trial of the villain in a Viking Court under Viking law to set the stage for the hero's own murder trial.

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Offline To-Whose-Benefit?

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Re: Share your cancer journey - and any other personal medical experience
« Reply #17 on: April 10, 2019, 08:05:20 am »
@truth_seeker

Prayers up Bud.
My 'Viking Hunter' High Adventure Alternate History Series is FREE, ALL 3 volumes, at most ebook retailers including Ibooks, Barnes and Noble, Kobo, and more.

In Vol 2 the weapons come out in a winner take all war on two fronts.

Vol 3 opens with the rigged murder trial of the villain in a Viking Court under Viking law to set the stage for the hero's own murder trial.

http://wulfanson.blogspot.com

Offline truth_seeker

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Offline mystery-ak

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Re: Share your cancer journey - and any other personal medical experience
« Reply #19 on: April 11, 2019, 11:15:33 pm »
Thanks. Same for you.

@truth_seeker without being too nosy how did it go today?
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Offline truth_seeker

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Re: Share your cancer journey - and any other personal medical experience
« Reply #20 on: April 12, 2019, 01:41:59 am »
@truth_seeker without being too nosy how did it go today?

Following 44 radiation treatments, today was the first check up. Radiology/Oncologist Dr. today said get a PSA blood test and go back to him in 3 months.

The side effects during treatment were minimal. I'm optimistic.
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Offline mystery-ak

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Re: Share your cancer journey - and any other personal medical experience
« Reply #21 on: April 12, 2019, 01:46:03 am »
Following 44 radiation treatments, today was the first check up. Radiology/Oncologist Dr. today said get a PSA blood test and go back to him in 3 months.

The side effects during treatment were minimal. I'm optimistic.

Sounds very promising.....keeping you in my prayers too....
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“Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.”
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Offline truth_seeker

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Re: Share your cancer journey - and any other personal medical experience
« Reply #22 on: April 12, 2019, 02:43:05 am »
Sounds very promising.....keeping you in my prayers too....

Thanks a lot.
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Offline To-Whose-Benefit?

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Re: Share your cancer journey - and any other personal medical experience
« Reply #23 on: April 12, 2019, 09:35:02 am »
Thanks. I am as usual positive and optimistic.
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Nothing Worse or more disparaging.

And there's No Lack of the duced things.

If you're in a corner, Do Not Cut Off your Dr. In order to try one.

Try another Dr 1st. Transfer All of you records orders, current history.

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You might not even Have cancer and die in 10 years of old age checking them out!

There's that many of them out there

Also check out the wiki page on cancer treameants for cancer that were never proven to work.
« Last Edit: May 16, 2019, 08:16:26 am by To-Whose-Benefit? »
My 'Viking Hunter' High Adventure Alternate History Series is FREE, ALL 3 volumes, at most ebook retailers including Ibooks, Barnes and Noble, Kobo, and more.

In Vol 2 the weapons come out in a winner take all war on two fronts.

Vol 3 opens with the rigged murder trial of the villain in a Viking Court under Viking law to set the stage for the hero's own murder trial.

http://wulfanson.blogspot.com

Offline Sighlass

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Re: Share your cancer journey - and any other personal medical experience
« Reply #24 on: April 12, 2019, 11:21:07 am »
@truth_seeker

Sorry to hear about your battles with this ... Prayers for you (and yours)...
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