Ottawa’s ‘butterfly boy,’ Jonathan Pitre, dies at age 17

[TomSea]

Poor kid, "butterfly" is used to indicate how fragile their skin is with this condition.

Ottawa’s ‘butterfly boy,’ Jonathan Pitre, dies at age 17
By Katie Dangerfield Global News
Posted April 6, 2018

Ottawa teenager Jonathan Pitre, who was known as the “butterfly boy,” because of a rare skin condition, has died.

Pitre, 17, passed away Wednesday evening in a Minnesota hospital, according to TSN and the Ottawa Citizen.

Pitre was born with epidermolysis bullosa (EB), a rare but debilitating condition that made his skin extremely fragile and prone to blistering. People with the condition are sometimes called “butterfly children” because their skin is as fragile as the insect’s wings.

Read more at:  https://globalnews.ca/news/4127460/butterfly-boy-jonathan-pitre-dies/

[mountaineer]

Poor kid. I remember seeing his story in a medical documentary. So much suffering.