Share your cancer journey - and any other personal medical advice

[jafo2010]

LibertyBelle...
I have heard of shark cartilage but I am not truly all familiar with it.  Does it rebuild cells and/or eradicate cancer and tumors??

Sad to say, I just saw your comment.  Haven't been back on this board for some time.  I apologize.

Shark cartilage is very effective, both for cancer and benign tumors.

However, based on what I read from sneakypete, he is NOT using it correctly.  When you get a bottle of shark cartilage, it says take 1 or 2 capsules per day, but that is NOT FOR FOLKS WITH CANCER OR A TUMOR!!!!!!!!!  That dosage is for healthy folks.

The correct formula when one has cancer or a benign tumor is:

         1 Gram of shark cartilage per 2 pounds of body weight

so,

         if you weigh 120 pounds, you should take 60 grams of shark cartilage daily

There are two excellent books on shark cartilage from years ago, titled:

Sharks Don't Get Cancer

and

Sharks Still Don't Get Cancer

They are out of print, but you can find them on Ebay and Amazon, as well as other used book sources.

There is a lot to know about shark cartilage.  I would be happy to tell you everything I know.  If you are interested in having a phone conversation, send me a PM and I will send you my telephone number.

The best product of shark cartilage I am aware of is called Cartilade, and it is produced by a firm out in California.  I had a friend with two forms of terminal cancer, and he successfully eliminated the cancer using Cartilade.  He had multiple myeloma and the end stage of prostate cancer.

[sneakypete]

Sad to say, I just saw your comment.  Haven't been back on this board for some time.  I apologize.

Shark cartilage is very effective, both for cancer and benign tumors.

However, based on what I read from sneakypete, he is NOT using it correctly. 

@jafo2010

You have me mistaken with  someone else. I have never used Shark Cartilage and know nothing about it's use,other  than  some people swear by it.

My cancer was "killed" by chemo,radiation,and an experimental drug that is now FDA approved. Trade name is Brukinsa and it comes in capsule form that is taken twice  a day.

After being maxed-out on chemo and radiation,I was told I was stage 4 terminal,and there was nothing they could do but give me some experimental pills not yet approved by the FDA,if I wanted to take a chance on them.

3 weeks after starting to take them,I tested negative for cancer. Must be close to 2 years now,and I am still taking them and still testing negative for Lymphoma.

BTW,Brukinsa is now approved by the FDA for treatment  of Lymphoma. Maybe other forms of cancer also,but I know nothing about that.

[jafo2010]

sneakypete...
Ok,now getting back to JAFO2010 and the pills he recommends. Here is where I buy mine from the web.

https://www.swansonvitamins.com/checkout/register.guest.html

CARTILADE (Shark Cartilage) for cancer


The cost for one big bottle is $55.27,and you take one capsule twice a day.

I ordered two bottles at first,and had not finished the first one before I got the "no cancer on your PET Scan" report.

There may be web sites that sell it cheaper,so you can look around now that you have the trade name.

Sneakypete,

I read the above, which indicates you did take Cartilade.  My point is with active cancer or benign tumor, you take the formula I mentioned in a prior post.

[Smokin Joe]

@bigheadfred


Ok,I would have ONE laying around. It never took much  for me to catch a buzz,even on cheap 10 bucks a bag pot back in the 70's. Just one hash brownie would probably last me a week.

...not if it gave you the munchies...

[sneakypete]

Sneakypete,

I read the above, which indicates you did take Cartilade.  My point is with active cancer or benign tumor, you take the formula I mentioned in a prior post.

@jafo2010

I stand corrected.  I obviously did take it,and like many things that happened while under chemo,my  memory of it got lost in the fog.

I started taking the pills I mentioned AFTER chemo and radiation failed,and there was nothing left to take that had been approved for Lymphoma. It was an experimental pill at the time not yet approved by the FDA. It IS now approved by the FDA,and I highly recommend it. I went from "Stage 4 incurable Lymphoma" to "cancer free" in about 3 weeks. I am still cancer-free 2 + years later.

I stopped taking the shark cartilage when I started taking chemo and radiation treatment under the care of a cancer clinic.

[jafo2010]

No problem.  Glad you are free of cancer.

But just so you understand, taking 1-2 capsules a day of shark cartilage is NOT the proper amount for addressing cancer.  It is highly effective at the correct dose.

[mountaineer]

However, based on what I read from sneakypete, he is NOT using it correctly.  When you get a bottle of shark cartilage, it says take 1 or 2 capsules per day, but that is NOT FOR FOLKS WITH CANCER OR A TUMOR!!!!!!!!!  That dosage is for healthy folks.

The correct formula when one has cancer or a benign tumor is: 1 Gram of shark cartilage per 2 pounds of body weight, so, if you weigh 120 pounds, you should take 60 grams of shark cartilage daily.

@jafo2010 I've been re-reading your comments on shark cartilage and cancer, and looking up Cartilade online, and I can't see how one might consume 60g of shark cartilage. If, as one seller's website indicates, 6 capsules contain 740 mg pure 100% Cartilade shark cartilage powder, then one capsule is only 12.3 mg. At that rate, a 120-pound person would have to take 487 capsules a day. Am I misreading something? (Math is not my strong point!).

[sneakypete]

No problem.  Glad you are free of cancer.

But just so you understand, taking 1-2 capsules a day of shark cartilage is NOT the proper amount for addressing cancer.  It is highly effective at the correct dose.

@jafo2010
ZN
I apologize for my  previous post being confusing. I quit taking the shark cartilage BEFORE I started taking the  (THEN experimental and not approved by the FDA) "Brusinka zanubrutuinbib" 80 mg capsules. These capsules have now been aprroved by the FDA as a treatment for SOME forms of cancer,which I GUESS means those with insurance can get their insurance  companies to pay for it for them.

As noted in an  earlier post,I started testing negative for cancer within  weeks of taking these  capsules,and had been  diagnosed as having "incurable stage 4 Lymphoma before taking them. I take one capsule twice a day.

Yes,I AM still taking them because the VA seems to think I need to continue taking them to keep the cancer from returning,or they would have cut me off.

Since I am an official "Agent Orange Veteran",it is impossible for me to buy  health insurance.

[libertybele]

Sad to say, I just saw your comment.  Haven't been back on this board for some time.  I apologize.

Shark cartilage is very effective, both for cancer and benign tumors.

However, based on what I read from sneakypete, he is NOT using it correctly.  When you get a bottle of shark cartilage, it says take 1 or 2 capsules per day, but that is NOT FOR FOLKS WITH CANCER OR A TUMOR!!!!!!!!!  That dosage is for healthy folks.

The correct formula when one has cancer or a benign tumor is:

         1 Gram of shark cartilage per 2 pounds of body weight

so,

         if you weigh 120 pounds, you should take 60 grams of shark cartilage daily

There are two excellent books on shark cartilage from years ago, titled:

Sharks Don't Get Cancer

and

Sharks Still Don't Get Cancer

They are out of print, but you can find them on Ebay and Amazon, as well as other used book sources.

There is a lot to know about shark cartilage.  I would be happy to tell you everything I know.  If you are interested in having a phone conversation, send me a PM and I will send you my telephone number.

The best product of shark cartilage I am aware of is called Cartilade, and it is produced by a firm out in California.  I had a friend with two forms of terminal cancer, and he successfully eliminated the cancer using Cartilade.  He had multiple myeloma and the end stage of prostate cancer.

Thank you @jafo2010 --- I'm just now reading this and I will need to check into it further.

[Bigun]

@jafo2010 I've been re-reading your comments on shark cartilage and cancer, and looking up Cartilade online, and I can't see how one might consume 60g of shark cartilage. If, as one seller's website indicates, 6 capsules contain 740 mg pure 100% Cartilade shark cartilage powder, then one capsule is only 12.3 mg. At that rate, a 120-pound person would have to take 487 capsules a day. Am I misreading something? (Math is not my strong point!).

60 grams = 60,000 milligrams.

According to my math, which means that a 120# person will need to swallow 4,800 capsules per day if the capsules contain 12.3 mg each. 

I think 60 mg per day (five capsules) is a much more reasonable number @mountaineer @jafo2010

[mountaineer]

Yeah, I'm having some decimal anxiety here, so I wasn't sure my math was anywhere close.

[GrouchoTex]

Thought I would update you on Mrs GrouchoTex's progress.
Chemo ended in May.
Had a full scan in June, good results.
Had a 3 month check up in September, all was good.
Has the next 3 month check up in December.

[libertybele]

Thought I would update you on Mrs GrouchoTex's progress.
Chemo ended in May.
Had a full scan in June, good results.
Had a 3 month check up in September, all was good.
Has the next 3 month check up in December.

That's certainly good news @GrouchoTex  Prayers up that she will continue to have positive results. 

[GrouchoTex]

That's certainly good news @GrouchoTex  Prayers up that she will continue to have positive results. 

M D Anderson is a wonderful place to go for treatment.

[mountaineer]

As noted on the prayer thread, my sister's cancer is a major concern. She mentioned going to the Anderson center in Houston (currently being treated at UPMC in Pittsburgh).

[libertybele]

As noted on the prayer thread, my sister's cancer is a major concern. She mentioned going to the Anderson center in Houston (currently being treated at UPMC in Pittsburgh).

Still praying for your sister and you too @mountaineer

[Gefn]

As noted on the prayer thread, my sister's cancer is a major concern. She mentioned going to the Anderson center in Houston (currently being treated at UPMC in Pittsburgh).

I am thinking of your sister @mountaineer

[Bigun]

As noted on the prayer thread, my sister's cancer is a major concern. She mentioned going to the Anderson center in Houston (currently being treated at UPMC in Pittsburgh).

M. D. Anderson is the best there is. If they can't help no one can.

[sneakypete]

Still testing negative for cancer after being told I had incurable Stage 4 Lymphoma,and was offered a chance to take experimental pills not yet approved at that time. This was over 2  years ago,and I am still cancer-free.

They have now been approved for Lymphoma,and I THINK a few other forms of cancer.

[Hoodat]

Thought I would update you on Mrs GrouchoTex's progress.
Chemo ended in May.
Had a full scan in June, good results.
Had a 3 month check up in September, all was good.
Has the next 3 month check up in December.

YAYZ!

[Hoodat]

Still testing negative for cancer after being told I had incurable Stage 4 Lymphoma,and was offered a chance to take experimental pills not yet approved at that time. This was over 2  years ago,and I am still cancer-free.

They have now been approved for Lymphoma,and I THINK a few other forms of cancer.

Keep at it, @sneakypete .  Kick cancer's ass.

[mountaineer]

Really happy for you and the Mrs., @GrouchoTex

[sneakypete]

Thought I would update you on Mrs GrouchoTex's progress.
Chemo ended in May.
Had a full scan in June, good results.
Had a 3 month check up in September, all was good.
Has the next 3 month check up in December.

@GrouchoTex

She was cured using only chemo?

[Hoodat]

As noted on the prayer thread, my sister's cancer is a major concern. She mentioned going to the Anderson center in Houston (currently being treated at UPMC in Pittsburgh).

Houston does suck, but getting cured of cancer may balance that out.  The Anderson Center is top notch.

[sneakypete]

Keep at it, @sneakypete .  Kick cancer's ass.

@Hoodat

I am not doing anything but taking the pills.

I keep mentioning them here in case anyone else is in a "You are dying from Lymphoma and there is nothing more we can do for you." cases reading posts here,or people who know someone who is in that position.   

[GrouchoTex]

@GrouchoTex

She was cured using only chemo?

Surgery, (hysterectomy) followed by radiation and Chemo.

[sneakypete]

Surgery, (hysterectomy) followed by radiation and Chemo.

@GrouchoTex

Take good news any way you can get it,and this IS good news.

[sneakypete]

Sneakypete,

I read the above, which indicates you did take Cartilade.  My point is with active cancer or benign tumor, you take the formula I mentioned in a prior post.

@jafo2010

My apologies. My mind was even more fried than it is now when I made  the original post about Shark Cartilage.

IF I remember correctly,I DID take it for a very short time prior to getting the THEN experimental  Brukinda Zanubrutinib pills,that have now been approved by the FDA for treatment for some forms of cancer.

My short-term memory was fried by radiation treatments,but I THINK the Shark Cartilage did help me,but it was the Brukinda  Zanubrutinib that "killed the beast".

The "big news" here is that the Brukinda  Zanubrutinib works so well it got early approval by the FDA,and veterans who need it can get it for free from the VA.

I am GUESSING this also means that at least some insurance companies will also provide it for "free" to people who have forms of cancer it has been to be an effective treatment for.

What I do know for sure is that it costs nothing to ask,and asking MIGHT save your life.

[DefiantMassRINO]

1.) Maternal aunt died from lukemia in her 70s.
2.) Paternal cousin died of ovarian cancer at 28.
3.) Wife had skin cancer removed.
4.) Father-in-law had skin cancer removed.
5.) Mother-in-law had surgery and is scheduled for ration for uterus cancer.
6.) Wife's cousin died from skin cancer in his 50s.
7.) Friend of the family in his early 80s dealing with 2nd bout of throat and mouth cancer.

Cancer is no longer the immediate death sentence it was 40 years ago, but it can be a rough journey, especially for re-curring instances of aggressive cancers.

I'm fortunate to live near a city and in a state that has some of the world's best cancer hospitals, doctors, and treatments.

If a person is admitted to a hospital, I recommend that a family member always be with them because corporate medicine has reduced the quantity and quality of bed-side care.  There are too few nurses who are overworked.  The insurance companies and hospitals push to have pateients sent home before it's safe to do so they can maximize profits.

Always question what the nurse or doctor about what's being administered and why it's being administered.  Give's doctors and nurses opportunity to double check that they are about to administer the correct dose of the correct medications at the correct times.

If you are with a chronically ill family member in the emergency, don't be shy about suggesting starting IV treatments that have worked in the past.  I believe my wife's last hospital stay for Covid-19/sepsis was significantly shortened because I sugested that my wife be started on IV electrolytes and anti-naseua medication immediately upon arrival at the E.R.

[libertybele]

1.) Maternal aunt died from lukemia in her 70s.
2.) Paternal cousin died of ovarian cancer at 28.
3.) Wife had skin cancer removed.
4.) Father-in-law had skin cancer removed.
5.) Mother-in-law had surgery and is scheduled for ration for uterus cancer.
6.) Wife's cousin died from skin cancer in his 50s.
7.) Friend of the family in his early 80s dealing with 2nd bout of throat and mouth cancer.

Cancer is no longer the immediate death sentence it was 40 years ago, but it can be a rough journey, especially for re-curring instances of aggressive cancers.

I'm fortunate to live near a city and in a state that has some of the world's best cancer hospitals, doctors, and treatments.

If a person is admitted to a hospital, I recommend that a family member always be with them because corporate medicine has reduced the quantity and quality of bed-side care.  There are too few nurses who are overworked.  The insurance companies and hospitals push to have pateients sent home before it's safe to do so they can maximize profits.

Absolutely imperative that people legally dedicate a health surrogate and in case they can't serve than another be legally named. Yes the quality of health care, staff overworked, insurance companies dictating how long a patient can stay for xyz procedure is true.  It is frightening these days to go into the hospital.  COVID has had such a negative impact on our health care system and now we have ILLEGALS using the ER for routine doctors visits that hospitals find themselves strapped financially and also in need of healthcare workers.

[sneakypete]

I think this is the same medication the VA is giving a good friend of mine.  They said it wouldn't kill the cancer but would hopefully keep it where it is. I forgot what he said the price of it was, but it was way too expensive for him to afford on his own.

@Jack Russell

I checked the "drug store price" BEFORE it was approved by the FDA as a cancer treatment drug,and a 30 day supply (30 capsules) was a hair over $3,000.

I SUSPECT the price might have dropped some since it was approved,but could be wrong.

What I DO know to be a fact is that less than 30 days after I started taking it,I was diagnosed to be free of cancer,and a week or two prior to starting to take it,I had been diagnosed as having "Stage 4 incurable lymphoma.

MY thoughts on this is IF you have Stage 4 lymphoma and don't have health insurance or help from some organization like the VA,borrow or steal 3 grand from somewhere,and try it for  the 1 month. If it doesn't work for you,you aren't  out nothing but 3 grand that you soon won't be missing.

IF you are lucky,you MIGHT go into remission,and who knows how long   you might be in remission before it returns,or even if it WILL return?

IF it returns,start taking up collections to buy more. 3 Grand a month is a lot of money,but not  if it is coming from 30 or more people.

[GrouchoTex]

@GrouchoTex

Take good news any way you can get it,and this IS good news.

@sneakypete
Mrs GrouchoTex has her 9 month check up in early March.
The 3 month last September and her 6 month last December check ups were all good news.
Technically, here treament was from Surgery in November of 2022 to the last chemo in May 2023.
They counted check up in June as 1st one, followed by 3 month in sept, etc.
Y'all know the drill...

[sneakypete]

@sneakypete
Mrs GrouchoTex has her 9 month check up in early March.
The 3 month last September and her 6 month last December check ups were all good news.
Technically, here treament was from Surgery in November of 2022 to the last chemo in May 2023.
They counted check up in June as 1st one, followed by 3 month in sept, etc.
Y'all know the drill...

@Groucho Marxist

I am celebrating the good news with you.

[GrouchoTex]

@Groucho Marxist

I am celebrating the good news with you.

Great @sneakypete!

[mountaineer]

Mrs GrouchoTex has her 9 month check up in early March.

Praying for an "all clear" for her.

[sneakypete]

My friend can't tolerate the medication, so they are going to go over his options.  This is not good.....

@Jack Russell

Tell  your friend to get the capsules I recommended. Never even got queasy,and I am still taking them.

Also,tell your friend that if he is a "service-connected disabled veteran",the VA will pay for them and even ship them to his house.

If he is not already qualified by the VA,he will be if he applies and was ever exposed to Agent Orange.

I suppose the same can be said for most health insurance companies now that it is FDA approved,but am just guessing here. I DO know it costs nothing to ask.

[sneakypete]

It's actually my cousin's husband.  The VA is paying for it.  I'm not sure what the issues were with it as I haven't talked directly to him, but evidently it really made him feel horrible.

@Jack Russell

IF we are talking about the same capsules,I was warned that they MIGHT make me sick,but by the time I received them in the mail I had already forgotten about that,and haven't have a minute of trouble with them.

NEVER underestimate the power of suggestion.

I honestly can't figure out why ANY doctor would tell a patient that some meds might make them so sick they  would rather die than take them.

It's like those goobers have never heard of the power of suggestion.

Or that their patients would be unable to figure out on their own if they get sick or not.

And it's NOT like the patients wouldn't be able to figure it out for themselves if they started puking after taking them.

[the OlLine Rebel]

@Jack Russell

IF we are talking about the same capsules,I was warned that they MIGHT make me sick,but by the time I received them in the mail I had already forgotten about that,and haven't have a minute of trouble with them.

NEVER underestimate the power of suggestion.

I honestly can't figure out why ANY doctor would tell a patient that some meds might make them so sick they  would rather die than take them.

It's like those goobers have never heard of the power of suggestion.

Or that their patients would be unable to figure out on their own if they get sick or not.

And it's NOT like the patients wouldn't be able to figure it out for themselves if they started puking after taking them.

The other thing about many chronic meds is that sometimes you have to power through initial bad effects, and then the body adjusts.

Is that possible here?  Tough it out for a month and then it evens out?

[sneakypete]

The other thing about many chronic meds is that sometimes you have to power through initial bad effects, and then the body adjusts.

Is that possible here?  Tough it out for a month and then it evens out?

@the OlLine Rebel

I honestly don't  know. I have been taking them for around 2 years now,and have never been sick even one day due to these pills.

[the OlLine Rebel]

@the OlLine Rebel

I honestly don't  know. I have been taking them for around 2 years now,and have never been sick even one day due to these pills.

Everyone is different.  I’ve been on pills where they advise you to power through if it causes any side effects.  I recall this definitely for neurological drugs.  But of course some may never have trouble and some always have trouble.  It’s just something to verify before quitting and swearing off the drug totally.

[sneakypete]

Everyone is different.  I’ve been on pills where they advise you to power through if it causes any side effects.  I recall this definitely for neurological drugs.  But of course some may never have trouble and some always have trouble.  It’s just something to verify before quitting and swearing off the drug totally.

@the Oline Rebel

I agree,but I STRONGLY disagree with  warning a patient that the drugs MAY make them sick. I am pretty  sure most could figure this out for themselves,so why bother putting the suggestion in their heads?

[sneakypete]

I talked with my cousin's husband.  He was on calquence for leukemia.  It isn't what you are taking.  They said if you quit the cancer will likely come back twice as fast.

@Jack Russell

Nobody has told me anything one way or the other  about stopping the pills I am taking for cancer.

The VA is still sending me re-fills,and I am going to continue  to take them for as long as the VA sends them.

I will ask the VA about this AFTER they stop sending them.

NOT going to rock any  boats.

[mountaineer]

My sister went in for chemotherapy yesterday. UPMC - once again, just like 2020-22 - is requiring masks, despite the mountain of evidence that they do absolutely nothing to prevent transmission of the Covid virus. When they explained that those were the rules, her husband replied, "Yeah, Hitler had a lot of rules, too." Surprisingly, he wasn't thrown out.

[sneakypete]

Thank you so much for trying to help Pete.  You’ll never know how much I appreciate it.

@Jack Russell

You are more than welcome. I am grateful for the opportunity to POSSIBLY help someone else.

[sneakypete]

My sister went in for chemotherapy yesterday. UPMC - once again, just like 2020-22 - is requiring masks, despite the mountain of evidence that they do absolutely nothing to prevent transmission of the Covid virus. When they explained that those were the rules, her husband replied, "Yeah, Hitler had a lot of rules, too." Surprisingly, he wasn't thrown out.

@mountaineer

I am surprised that BOTH he and his wife weren't thrown  out.

THE hardest lesson I have had to learn was to keep my mouth shut even if I was right when the circumstances dictate that regardless of being right,I WILL lose.

No one individual can fight an entrenched bureaucracy and hope to win unless it is their leader.