Author Topic: Share your cancer journey - and any other personal medical advice  (Read 128877 times)

0 Members and 1 Guest are viewing this topic.

Offline sneakypete

  • Hero Member
  • *****
  • Posts: 52,963
  • Twitter is for Twits
Re: Share your cancer journey - and any other personal medical advice
« Reply #150 on: February 25, 2021, 11:53:04 pm »
Well, okay, sharing is caring and all that.

I started getting fevers and turning yellow.   And itchy.  The jaundice caused by backed up bilirubin always itches like crazy.

Turned out to be some lump on my bile duct.   Had to go to a specialist before getting the ultrasound.  I decided to not take any Tylenol to drop the fever, so he sent me to the ER with a fever of 104.   That speeded things up quite a bit.

Biopsy was iffy, they weren't sure what it was.   They put a stent in the bile duct to drain the liver, because that was causing the infections and fevers.

I was getting better for a week or so, then getting worse.   Turns out the stent was too short.   Time to pop a new one in.

Then I got better and the surgery was scheduled.   

Oh, wait.  Gotta delay the cancer surgery, the surgeon's wife had a baby girl!  Hooray!

Then they cut me open.   Biliary cancer has something like a 60% two-year mortality rate.  Cool.

Turns out, after the scar from sternum to belly button, that I didn't have biliary cancer, I had ampulary cancer.  The ampulus is the teeny-tiny donut of a muscle that controls flow through the bile duct.   Totally encapsulated by the bile duct, no wandering cancer cells escaping to infect the rest of me. 

No cancer cells in the lymph nodes, the oncologists were bored with me and wanted nothing to do with me.   No chemo for me.

Then the fun started.    The procedure to treat biliary and ampulary cancer is the same, the Whipple procedure, where they surgeon plays "lets rearrange the plumbing" with my intestines.   

So I couldn't eat real food.   They at first forgot and sent me home, then called me back and gave me a permanent IV line in my arm.   And then prescribed this TPN food or whatever its' called, shot straight into my arm.

Full of carbohydrates and stuff.   Prescription mix, of course.

I'm a diabetic.  They forgot to prescribe the insulin to go in the mix.

I was feeling crappy and wasn't checking my blood sugar levels.   My 1528 didn't even break the hospital record.

So i spent another three weeks in the ICU/Rehab units.  Rehab was cool.  The guy on the bed across the room was a 95 year old marine who had been discharged in 1944 because a Jap had stitched some holes in his chest with a machine gun.  And the other guy was a 95 year old Air Corps man who had been made partially deaf by the noise of the machine gun in his B-17 ball turret.   

I lost 95 pounds thanks to that, and because the surgery was effectively a stomach bypass, I've regained just a bit of that and my weight is where the charts say it should have been.

What fun that was.   That was more than five years ago so my surgeon says I am officially "cured".

@Sled Dog

Glad to hear all the suffering lead to a positive result.

I am sincerely hoping that if you get sick again you choose another hospital?
Anyone who isn't paranoid in 2021 just isn't thinking clearly!

Offline Sled Dog

  • The Ultimate Weapon: Freedom - I Won't
  • Hero Member
  • *****
  • Posts: 3,138
Re: Share your cancer journey - and any other personal medical advice
« Reply #151 on: February 26, 2021, 12:01:38 am »
@Sled Dog

Glad to hear all the suffering lead to a positive result.

I am sincerely hoping that if you get sick again you choose another hospital?

Actually, that's one of the best hospitals in the area.    Both my kids were born there, even.

Sometimes shit happens and this wasn't an intentional "let's mess with him" incident.

The reality is that in the aftermath of the surgery I feel better now than I have in a long time.  I was overweight and now I'm not. 

The insurance covered all but the 10K co-pay...so they paid some 200k in bills.

My questions are going to be for when I retire...as an honorably discharged Navy veteran, would the VA cover my routine maintenance?  Especially the pills I take because of the re-piping they did to me?   We'll see.

I read some of this this thread and you sound like you've been through hell, and that's just not right.   
The GOP is not the party leadership.  The GOP is the party MEMBERSHIP.   The members need to kick the leaders out if they leaders are going the wrong way.  No coddling allowed.

Offline sneakypete

  • Hero Member
  • *****
  • Posts: 52,963
  • Twitter is for Twits
Re: Share your cancer journey - and any other personal medical advice
« Reply #152 on: February 26, 2021, 12:19:19 am »
Actually, that's one of the best hospitals in the area.    Both my kids were born there, even.

Sometimes shit happens and this wasn't an intentional "let's mess with him" incident.

The reality is that in the aftermath of the surgery I feel better now than I have in a long time.  I was overweight and now I'm not. 

The insurance covered all but the 10K co-pay...so they paid some 200k in bills.

My questions are going to be for when I retire...as an honorably discharged Navy veteran, would the VA cover my routine maintenance?  Especially the pills I take because of the re-piping they did to me?   We'll see.

I read some of this this thread and you sound like you've been through hell, and that's just not right.

@Sled Dog

Don't count on it. I am a 100 percent service-connected disabled VN vet,and I have trouble getting the VA to pay for my hospital and ER bills. I even live over 50 miles away from the closest VA hospital and a trip there would involved crossing a long bridge tunnel that doesn't allow ambulances,which means I would have to hire a boat or a helicopter to get to it,and the freaking VA is still refusing to pay my local Hospital ER and other bills by telling me I should have gone to the VA hospital for treatment.

And one of those ER trips was for flesh-eating bacteria and ended up with my receiving emergency surgery and being in intensive care for 2 weeks. The surgeon later told me if I had gotten there a half-hour later I would have died,and there would have been nothing he could have done to save me.

My choice was to go to the local hospital,a 35 minute drive,or to the VA hospital,a 1 hour plus drive,and they wouldn't even have been able to do the surgery. In cases like mine,they would have just transferred me to a local hospital up there,wasting more time and insuring I would have died.

If you have read my posts,you have read about all the trouble I have had with an infected leg the last 6 months or so,and today is the FIRST time I was able to go to a local hospital for treatment with the VA setting up the appointment and agreeing to pay the bills. I have paid hundreds of dollars out of pocket to a local doc that recently opened shop here,and owe thousands of dollars at the same hospital and to doctors there for previous leg treatments,and the VA still hasn't paid a dime because I didn't get approval before I received the treatment.

Try to buy geezer insurance by joining some group like AARP before you retire. You will still have to pay out of pocket,but they will cover most of it.
« Last Edit: February 26, 2021, 12:27:00 am by sneakypete »
Anyone who isn't paranoid in 2021 just isn't thinking clearly!

Offline Victoria33

  • Hero Member
  • *****
  • Posts: 7,457
  • Gender: Female
Re: Share your cancer journey - and any other personal medical advice
« Reply #153 on: February 26, 2021, 02:04:19 am »
@sleddog
@sneaky pete

I have Medicare and through AARP, UnitedHealthCare, Plan "J", the best plan they have.  I pay nothing to any doctor.  I have Blue Cross for medicines and I take a bunch of them.  I pay a lot but if I did not have Blue Cross, I could not buy the medicines - some of them are over $1,000 with no insurance.

When I got insurance to go with Medicare, I looked for a plan that would not go up the older I got.  That is why I have the UnitedHealthCare, Plan "J" from AARP.  They will not raise the cost of the insurance as I get older.  What I pay now is it.
« Last Edit: February 26, 2021, 02:07:01 am by Victoria33 »

Offline sneakypete

  • Hero Member
  • *****
  • Posts: 52,963
  • Twitter is for Twits
Re: Share your cancer journey - and any other personal medical advice
« Reply #154 on: February 26, 2021, 02:21:28 am »
Sounds like you made some good choices.
Anyone who isn't paranoid in 2021 just isn't thinking clearly!

Offline mountaineer

  • Hero Member
  • *****
  • Posts: 78,689
Re: Share your cancer journey - and any other personal medical advice
« Reply #155 on: February 26, 2021, 02:33:45 am »
Thanks for sharing. I'm so sorry for suffering that might have been prevented. So frustrating.
Support Israel's emergency medical service. afmda.org

Offline jafo2010

  • Hero Member
  • *****
  • Posts: 5,546
  • Dems-greatest existential threat to USA republic!
Re: Share your cancer journey - and any other personal medical advice
« Reply #156 on: February 27, 2021, 09:14:18 am »
I am saddened any of you have to suffer because of incompetent healthcare operations.  There is no excuse.  The good news, if the Dems have their way, everyone will have Medicare(all my personal friends on Medicare hate it).  I'm being sarcastic.  Things will continue to worsen healthcare wise because our politicians are not worth a good BM!

sneakypete...if you have a phone, I would love to speak to you and share more of what I know.  If interested in talking, send me a personal note with your phone number.  I know if you do what I suggest, I can help you.  Definitively so.  I am talking about reducing or eliminating pain, without taking substances that screw with your mental/physical functioning.

And I believe it was SledDog that had stents installed.  I suspect the inner diameter of those stents is very small.  I highly recommend you start using only distilled water for drinking, for water, coffee, tea and frozen juices.  Stents almost guarantee future blockages, and distilled water will help that not to happen. 

Sadly, American medicine is grossly deficient because of AMA procedures that hamstring physicians.  And anything they do is further hampered by insurance companies that work exceptionally hard NOT to pay claims.  I have spent over 20 years in healthcare, being a director for two Blues plans, and consulting to a dozen others, as well as consulting to different state government healthcare operations. 

I promise all of you, if you are willing to take the time, I can tell you things that will help your situation.  Cost you nothing to listen.  I have helped many through the years.  Those with cancer need not suffer with pain, need not take pain killers that leave you loopy. And for those that are suffering from nausea with chemo, there is a simple solution for that too.  I am talking about solutions that do not entail taking pharma!  Doctors will not advise you as such, why?  Because largely they do not make any money and the AMA disapproves of anything that does not make money.  Really that simple.

I have been drinking distilled water since 1979.  I will never have a blocked artery, never a kidney or gall stone, no arthritis with deposits, no cataracts in the eyes, and with a recent study that indicated that for Alzheimer patients, a particular protein is being found built up in the brain, I am fairly certain I will never suffer from Alzheimers.  What distilled water does for the body is keep thing that do not belong out of the body.  No buildup of things that do not belong.  Anyone that believes that tap water is safe to consume, think again.  It is not a Jim Jones cocktail, but I believe it will cause cancer and other maladies and shorten the average person's life by ten years.

100% of the people that have taken shark cartilage for cancer have benefited that I know have followed my advice.  100%!  I also recommend one particular brand, based on research done by a friend.  You can get online and search to see who sells it for the best price.  There is much to know about it to take it properly.

Please feel free to call me.  Write me a personal message and call, or I will call you.  I hate to see anyone suffer.

Offline sneakypete

  • Hero Member
  • *****
  • Posts: 52,963
  • Twitter is for Twits
Re: Share your cancer journey - and any other personal medical advice
« Reply #157 on: February 27, 2021, 11:53:33 am »

I have been drinking distilled water since 1979. 

@jafo2010

I started using it for cooking and coffee about 5 years ago.
Anyone who isn't paranoid in 2021 just isn't thinking clearly!

Offline Gefn

  • "And though she be but little she is fierce"-Shakespeare
  • Cat Mod
  • *****
  • Posts: 18,354
  • Gender: Female
  • Quos Deus Vult Perdere Prius Dementat
Re: Share your cancer journey - and any other personal medical advice
« Reply #158 on: February 27, 2021, 01:10:16 pm »
I don’t know about bills. I know that when @To-Whose-Benefit? passed, his brother sold his most prized possession, his Les Paul guitar to pay off remaining bills and other expenses.

That was so sad. And I would have dipped into my 401K to help, so that guitar could have stayed in the family, who knows, maybe his niece or nephew would have a child that would like music and want it. And remember their amazing and cool great uncle too.
« Last Edit: February 27, 2021, 01:11:17 pm by Gefn »
G-d bless America. G-d bless us all                                 

Adopt a puppy or kitty from your local shelter
Or an older dog or cat. They're true love❤️

Offline sneakypete

  • Hero Member
  • *****
  • Posts: 52,963
  • Twitter is for Twits
Re: Share your cancer journey - and any other personal medical advice
« Reply #159 on: November 16, 2021, 02:30:07 am »
See my update on the health board.
Anyone who isn't paranoid in 2021 just isn't thinking clearly!

Offline sneakypete

  • Hero Member
  • *****
  • Posts: 52,963
  • Twitter is for Twits
Re: Freed from the hospital once again today
« Reply #160 on: December 07, 2021, 12:22:03 am »
Well,I have done it again. Managed to escape from the clutches of the hospital.

Pay attention. Some of this nonsense may save your life.

Ok,was feeling kinda under the weather for a week or so. Not really bad,and not in any pain,I just had no appetite at all,and due to not eating for a week (obvious hint something was wrong that I obviously overlooked),was very weak. I knew I had a problem when suddenly even coffee had no appeal. If you knew me personally,you would know THAT was a hint things were wrong that I should have NEVER ignored.

So,I am in the house,watching teebee,and fading in and out of consciousness. I was thinking that was due to just not having been able to get much/any sleep. I sometimes go through that,so I pretty much ignored that one,too.

So,I am VERY weak (should NEVER be ignored) and making sure I move carefully and have something to grab hold of when I move. (Duhhhhhh!)

Suddenly I am very hot instead of being a little chilled,so I get off the couch and move to cut on the overhead fan to cool down a little. Suddenly I am wondering "WHY is the floor 3 inches from my nose?".

An unknown time later I am wondering "WHY is my nose in a puddle of blood,and WHY am I laying face down on the floor?"

Being a clever man,I then figured out something was wrong,so I VERY carefully used a bookcase to hold on to in order to get to my knees,and then managed to pull myself upright.
Using the bookcase and a stand,I managed to make it back to the couch,where I sat down and pondered the situation.

"Was I in pain?"  Nope.

"Why am I fading in and out of consciousness?"  Good question!

"What do I need to do about this? Should I call an ambulance at midnight,or should I just lay down and go to sleep and call the ambulance in the morning if I am still having problems"

BEST QUESTION OF ALL!

Looked at my watch,saw it was midnight,and just said "Screw it,I'm going to the hospital",and called my ex,whose oldest daughter is a MD,and told her to have her daughter call the hospital and tell them I am coming and to call an ambulance to come pick me up. BTW,the local hospital is about 60 miles away.

My ex then called her sister,who lives closer to me,and told the sister to come help me get ready. Which she did. I gave her a key to the house so she could feed and water the cats for me,she helped me get dressed,and she helped me to the ambulance when it got here.

Got to the ER,and later on was told I was literally dying when I came in.  I was bleeding internally due to a tumor on my intestines and my stomach was filling with my blood. Which is why I was both weak and unable to eat or drink anything.

The ER nurse told me I was 3 quarts low on blood,and my body had stopped producing it.

They immediately put me on blood transfusions and did a few other things I can't remember right now because the pain meds  are kicking in.

The really tricky part about all this is at no time was I ever in any pain,and when I wasn't fading out mentally,I was as alert as ever. I did NOT have even the slightest hint I was in REAL trouble because there was no pain.

What convinced me to go ahead and call for help was being confused one moment,and mentally alert the next.

During one of my mentally alert moments it DID occur to me that I MIGHT be dying,but since there was no pain or discomfort involved,and given my age and other physical problems,I was REALLY tempted to just let nature take over and do it's "thing",IF that was what was happening. After all,dying with no pain and by just going to sleep can seem more like a positive thing than a bad thing when you are used to dealing with pain every day of your life.

But......,I am just not a quitter by nature,so I made the phone call and am now glad that I did.

The surgeon told me I had a bleeding ulcer/tumor on my intestine,and it had to heal itself,which it did due to the anti-biotics he had injected or shoveled into my mouth. Or mostly healed itself. The tumor/ulcer is still there,it's just not bleeding any longer,and my body is once again producing blood.

He took a sample from the tumor and sent it off for a biopsy. I guess I will get the report in a week or so,but judging by the huge smile on the surgeon's face when he was telling me this,it seems like he thinks he won a battle he had not expected to win.

I guess the moral of this story is to NOT just assume you are in no danger because there is no pain,and there is no bleeding that you can see.  All my bleeding was internal,and my blood was somehow mixing with the feces and urine in my body,and my body was being poisoned by it.

You can't always see or feel the danger,and you can NOT rely on pain as an indicator that you are in trouble. Which honestly surprised the hell out of me.

When in ANY doubt at all,shout for help. Trust me on this one.
« Last Edit: December 07, 2021, 12:28:18 am by sneakypete »
Anyone who isn't paranoid in 2021 just isn't thinking clearly!

Offline Kamaji

  • Hero Member
  • *****
  • Posts: 57,903
Re: Share your cancer journey - and any other personal medical advice
« Reply #161 on: December 07, 2021, 12:31:48 am »
Well,I have done it again. Managed to escape from the clutches of the hospital.

Pay attention. Some of this nonsense may save your life.

Ok,was feeling kinda under the weather for a week or so. Not really bad,and not in any pain,I just had no appetite at all,and due to not eating for a week (obvious hint something was wrong that I obviously overlooked),was very weak. I knew I had a problem when suddenly even coffee had no appeal. If you knew me personally,you would know THAT was a hint things were wrong that I should have NEVER ignored.

So,I am in the house,watching teebee,and fading in and out of consciousness. I was thinking that was due to just not having been able to get much/any sleep. I sometimes go through that,so I pretty much ignored that one,too.

So,I am VERY weak (should NEVER be ignored) and making sure I move carefully and have something to grab hold of when I move. (Duhhhhhh!)

Suddenly I am very hot instead of being a little chilled,so I get off the couch and move to cut on the overhead fan to cool down a little. Suddenly I am wondering "WHY is the floor 3 inches from my nose?".

An unknown time later I am wondering "WHY is my nose in a puddle of blood,and WHY am I laying face down on the floor?"

Being a clever man,I then figured out something was wrong,so I VERY carefully used a bookcase to hold on to in order to get to my knees,and then managed to pull myself upright.
Using the bookcase and a stand,I managed to make it back to the couch,where I sat down and pondered the situation.

"Was I in pain?"  Nope.

"Why am I fading in and out of consciousness?"  Good question!

"What do I need to do about this? Should I call an ambulance at midnight,or should I just lay down and go to sleep and call the ambulance in the morning if I am still having problems"

BEST QUESTION OF ALL!

Looked at my watch,saw it was midnight,and just said "Screw it,I'm going to the hospital",and called my ex,whose oldest daughter is a MD,and told her to have her daughter call the hospital and tell them I am coming and to call an ambulance to come pick me up. BTW,the local hospital is about 60 miles away.

My ex then called her sister,who lives closer to me,and told the sister to come help me get ready. Which she did. I gave her a key to the house so she could feed and water the cats for me,she helped me get dressed,and she helped me to the ambulance when it got here.

Got to the ER,and later on was told I was literally dying when I came in.  I was bleeding internally due to a tumor on my intestines and my stomach was filling with my blood. Which is why I was both weak and unable to eat or drink anything.

The ER nurse told me I was 3 quarts low on blood,and my body had stopped producing it.

They immediately put me on blood transfusions and did a few other things I can't remember right now because the pain meds  are kicking in.

The really tricky part about all this is at no time was I ever in any pain,and when I wasn't fading out mentally,I was as alert as ever. I did NOT have even the slightest hint I was in REAL trouble because there was no pain.

What convinced me to go ahead and call for help was being confused one moment,and mentally alert the next.

During one of my mentally alert moments it DID occur to me that I MIGHT be dying,but since there was no pain or discomfort involved,and given my age and other physical problems,I was REALLY tempted to just let nature take over and do it's "thing",IF that was what was happening. After all,dying with no pain and by just going to sleep can seem more like a positive thing than a bad thing when you are used to dealing with pain every day of your life.

But......,I am just not a quitter by nature,so I made the phone call and am now glad that I did.

The surgeon told me I had a bleeding ulcer/tumor on my intestine,and it had to heal itself,which it did due to the anti-biotics he had injected or shoveled into my mouth. Or mostly healed itself. The tumor/ulcer is still there,it's just not bleeding any longer,and my body is once again producing blood.

He took a sample from the tumor and sent it off for a biopsy. I guess I will get the report in a week or so,but judging by the huge smile on the surgeon's face when he was telling me this,it seems like he thinks he won a battle he had not expected to win.

I guess the moral of this story is to NOT just assume you are in no danger because there is no pain,and there is no bleeding that you can see.  All my bleeding was internal,and my blood was somehow mixing with the feces and urine in my body,and my body was being poisoned by it.

You can't always see or feel the danger,and you can NOT rely on pain as an indicator that you are in trouble. Which honestly surprised the hell out of me.

When in ANY doubt at all,shout for help. Trust me on this one.


@sneakypete

Wow.  Just Wow.  Thank God you're still with us. 

Online Smokin Joe

  • Hero Member
  • *****
  • Posts: 56,646
  • I was a "conspiracy theorist". Now I'm just right.
Re: Share your cancer journey - and any other personal medical advice
« Reply #162 on: December 07, 2021, 12:59:09 am »
@sneakypete Wow, you dodged another bullet. Glad you are still with us!
How God must weep at humans' folly! Stand fast! God knows what he is doing!
Seventeen Techniques for Truth Suppression

Of all tyrannies, a tyranny sincerely exercised for the good of its victims may be the most oppressive. It would be better to live under robber barons than under omnipotent moral busybodies. The robber baron's cruelty may sometimes sleep, his cupidity may at some point be satiated; but those who torment us for our own good will torment us without end for they do so with the approval of their own conscience.

C S Lewis

Online Right_in_Virginia

  • Hero Member
  • *****
  • Posts: 79,717
Re: Share your cancer journey - and any other personal medical advice
« Reply #163 on: December 07, 2021, 01:28:35 am »
You're officially my hero @sneakypete ---- 2nd only to your incredible (and exhausted) guardian angel.

Very glad you're back.   :bighug:

Offline libertybele

  • Hero Member
  • *****
  • Posts: 57,228
  • Gender: Female
Re: Share your cancer journey - and any other personal medical advice
« Reply #164 on: December 07, 2021, 01:39:11 am »
Incredible story and one that we all need to read and heed your words.

I am very glad that you are back @sneakypete !!!  happy77 happy77
Romans 12:16-21

Live in harmony with one another; do not be haughty, but associate with the lowly, do not claim to be wiser than you are.  Do not repay anyone evil for evil, but take thought for what is noble in the sight of all.  If it is possible, so far as it depends on you, live peaceably with all…do not be overcome by evil, but overcome evil with good.

Offline Kamaji

  • Hero Member
  • *****
  • Posts: 57,903
Re: Share your cancer journey - and any other personal medical advice
« Reply #165 on: December 07, 2021, 02:07:43 am »
Going in and out of alertness/consciousness for no apparent reason is a big warning sign.  An acquaintance of mine went to the hospital several years ago because he was having transient episodes of wonkiness and loss of focus, and it turned out he had stage iv cancer that had metastasized and gotten into his brain.  He would probably be dead if he hadn’t needed his wife’s warnings for get himself checked out.

Offline sneakypete

  • Hero Member
  • *****
  • Posts: 52,963
  • Twitter is for Twits
Re: Share your cancer journey - and any other personal medical advice
« Reply #166 on: December 07, 2021, 02:14:48 am »
I want to thank you all for your kind thoughts,but I didn't post the post for sympathy. I posted it as a warning shot across the bow for any who might be as pig-headed as I am.

What I SHOULD have done was gone to see the doc the first week I wasn't able to eat.

Stoopid,stoopid,stoopid!

And it damn near cost me my life.
Anyone who isn't paranoid in 2021 just isn't thinking clearly!

Offline berdie

  • Hero Member
  • *****
  • Posts: 5,755
Re: Share your cancer journey - and any other personal medical advice
« Reply #167 on: December 07, 2021, 09:32:03 pm »
I want to thank you all for your kind thoughts,but I didn't post the post for sympathy. I posted it as a warning shot across the bow for any who might be as pig-headed as I am.

What I SHOULD have done was gone to see the doc the first week I wasn't able to eat.

Stoopid,stoopid,stoopid!

And it damn near cost me my life.



FWIW..@sneakypete...I don't think you are stoopid or pigheaded.

I totally understand how symptoms are discounted when one has been ill. Been there, done that.

Hang in! You are tough.

Offline mountaineer

  • Hero Member
  • *****
  • Posts: 78,689
Re: Share your cancer journey - and any other personal medical advice
« Reply #168 on: December 09, 2021, 10:30:12 pm »
I'm so grateful you're still among us, @sneakypete

Like he said, if something's "off," have it checked out - just like our future First Lady here:

https://twitter.com/FLCaseyDeSantis/status/1468953073552814088
Support Israel's emergency medical service. afmda.org

Offline sneakypete

  • Hero Member
  • *****
  • Posts: 52,963
  • Twitter is for Twits
Re: Share your cancer journey - and any other personal medical advice
« Reply #169 on: December 11, 2021, 12:33:53 am »
I'm so grateful you're still among us, @sneakypete

Like he said, if something's "off," have it checked out - just like our future First Lady here:

https://twitter.com/FLCaseyDeSantis/status/1468953073552814088

@mountaineer

Don't worry about that. I just got out of the hospital again tonight. The second night I was out my stomach started to burn again,and that is what it was doing when the tumor in my stomach was leaking blood.

This sort of thing is VERY dangerous because it COULD be just minor indigestion,and there is no real pain involved when dying from it. You just feel sleepy.
Anyone who isn't paranoid in 2021 just isn't thinking clearly!

Offline sneakypete

  • Hero Member
  • *****
  • Posts: 52,963
  • Twitter is for Twits
Re: Share your cancer journey - and any other personal medical advice
« Reply #170 on: April 03, 2022, 11:30:51 pm »
jafo20210 wrote: "I have been drinking distilled water since 1979. "

AND: "100% of the people that have taken shark cartilage for cancer have benefited that I know have followed my advice.  100%! "

I am with you on both of the above! Getting ready to post a health update that might surprise some people as much as it surprised me. Going to do a "stand alone" post so it doesn't get lost in the mass of posts.


Anyone who isn't paranoid in 2021 just isn't thinking clearly!

Offline sneakypete

  • Hero Member
  • *****
  • Posts: 52,963
  • Twitter is for Twits
Re: Share your cancer journey - and any other personal medical advice
« Reply #171 on: April 04, 2022, 12:10:26 am »

@sneakypete

Wow.  Just Wow.  Thank God you're still with us.

@Kamaji

IF,by chance,some higher power offers you a choice between being lucky or being smart,choose lucky.

Take my word on this one.
Anyone who isn't paranoid in 2021 just isn't thinking clearly!

Offline sneakypete

  • Hero Member
  • *****
  • Posts: 52,963
  • Twitter is for Twits
Re: Share your cancer journey - and any other personal medical advice
« Reply #172 on: April 04, 2022, 12:11:11 am »
@sneakypete Wow, you dodged another bullet. Glad you are still with us!

@Smokin Joe

Thanks. I somehow missed the replies on this thread until now.
Anyone who isn't paranoid in 2021 just isn't thinking clearly!

Offline sneakypete

  • Hero Member
  • *****
  • Posts: 52,963
  • Twitter is for Twits
Re: Share your cancer journey - and any other personal medical advice
« Reply #173 on: April 04, 2022, 12:56:43 am »
@jafo2010

jafo20210 wrote: "I have been drinking distilled water since 1979. "

AND: "100% of the people that have taken shark cartilage for cancer have benefited that I know have followed my advice.  100%! "

++++++++++++++++++++++++++++++++++++++++++++++++++++++

He ain't justa woofing,either! Not personally sure about the distilled water,but I have been drinking it and making coffee with it for several years now.

As for the pills,I am no doctor or scientist,but I CAN tell you that if they don't work,they sure have ME fooled! Between them and the other pills,I am actually feeling pretty damn good!

Now,if I can just find a pill for chemo brain,I'll be back to what passes for normal for me.

This is sorta the Part B addition to the VERY long cancer update post I wrote,and somehow lost. Might try to recreate it later after resting.

Ok,my cancer surgeon told me that I had Stage 4 Lymphoma,and while she didn't say it was hopeless,she wasn't tap dancing around the office,either.

After taking the massive doses of chemo and radiation that turned me into a "sharper than most turnips" intellectual,things didn't seem to be working for me when I went in for the montly update.

She really looked sad as she told me the PET Scans hadn't been looking good,and that I was maxed out on chemo and radiation.

So she then suggested I try some new "cancer pills" that had just recently been given rush approval and put on the market. She told me that the downside was the pills made some people so sick they said they would rather die from cancer than keep taking them.

Which struck me as an odd thing for a doctor to say,but I guess she figured I was already sick enough that adding to it was counterproductive.

Anyhow,I told her "Hell,yea,I'll try them! It ain't like I have anything to lose,and if they make me that sick,I'll  just quit taking them!"

Here is where the sorta "good news" comes into play. Chemo had fried me memory to the point I had forgotten all about the new pill discussion we had by the time they came in,and just started taking them. I was shocked when I went in for the checkup a month later and she asked me if they were making me sick. The truth is I started feeling better almost immediately.

Went in for the monthy PET scan and then for the monthly check-up with her a week or so after 2 months of taking them,and damned if the cancer hadn't disappeared!

Surprised her so much she immediately scheduled a back up PET scan for me the next week.

That one came back negative,too.

I can NOT say I have beaten the cancer. You have to be cancer-free for  5 years to make that claim.

Truth to tell,I can't even claim the cancer pills she gave me are what did the trick,but I DO have my suspicions!

Here is the trade name and instructions for taking them. This is a prescription drug,so you will have to get your doc to write you a prescription for it. I supposed it comes in larger or smaller doses,but this is what was prescribed for me.

Brukinsa Zanubrutinib caps

80 Mg 

2 pills twice a day. With or without food

I can't remember what they cost,and it will no doubt vary  by area and pharmacy,but I DO know they are insanely cheap when you consider they could very well save your life.

+++++++++++++++++++++++++++++++++++++++++++++++++++

Ok,now getting back to JAFO2010 and the pills he recommends. Here is where I buy mine from the web.

https://www.swansonvitamins.com/checkout/register.guest.html

CARTILADE (Shark Cartilage) for cancer


The cost for one big bottle is $55.27,and you take one capsule twice a day.

I ordered two bottles at first,and had not finished the first one before I got the "no cancer on your PET Scan" report.

There may be web sites that sell it cheaper,so you can look around now that you have the trade name.
   

« Last Edit: April 04, 2022, 01:01:33 am by sneakypete »
Anyone who isn't paranoid in 2021 just isn't thinking clearly!

Offline libertybele

  • Hero Member
  • *****
  • Posts: 57,228
  • Gender: Female
Re: Share your cancer journey - and any other personal medical advice
« Reply #174 on: April 04, 2022, 01:00:10 am »
@jafo2010

jafo20210 wrote: "I have been drinking distilled water since 1979. "

AND: "100% of the people that have taken shark cartilage for cancer have benefited that I know have followed my advice.  100%! "

++++++++++++++++++++++++++++++++++++++++++++++++++++++

He ain't justa woofing,either.

This is sorta the Part B addition to the VERY long cancer update post I wrote,and somehow lost. Might try to recreate it later after resting.

Ok,my cancer surgeon told me that I had Stage 4 Lymphoma,and while she didn't say it was hopeless,she wasn't tap dancing around the office,either.

After taking the massive doses of chemo and radiation that turned me into a "sharper than most turnips" intellectual,things didn't seem to be working for me when I went in for the montly update.

She really looked sad as she told me the PET Scans hadn't been looking good,and that I was maxed out on chemo and radiation.

So she then suggested I try some new "cancer pills" that had just recently been given rush approval and put on the market. She told me that the downside was the pills made some people so sick they said they would rather die from cancer than keep taking them.

Which struck me as an odd thing for a doctor to say,but I guess she figured I was already sick enough that adding to it was counterproductive.

Anyhow,I told her "Hell,yea,I'll try them! It ain't like I have anything to lose,and if they make me that sick,I'll  just quit taking them!"

Here is where the sorta "good news" comes into play. Chemo had fried me memory to the point I had forgotten all about the new pill discussion we had by the time they came in,and just started taking them. I was shocked when I went in for the checkup a month later and she asked me if they were making me sick. The truth is I started feeling better almost immediately.

Went in for the monthy PET scan and then for the monthly check-up with her a week or so after 2 months of taking them,and damned if the cancer hadn't disappeared!

Surprised her so much she immediately scheduled a back up PET scan for me the next week.

That one came back negative,too.

I can NOT say I have beaten the cancer. You have to be cancer-free for  5 years to make that claim.

Truth to tell,I can't even claim the cancer pills she gave me are what did the trick,but I DO have my suspicions!

Here is the trade name and instructions for taking them. This is a prescription drug,so you will have to get your doc to write you a prescription for it. I supposed it comes in larger or smaller doses,but this is what was prescribed for me.

Brukinsa Zanubrutinib caps

80 Mg 

2 pills twice a day. With or without food

I can't remember what they cost,and it will no doubt vary  by area and pharmacy,but I DO know they are insanely cheap when you consider they could very well save your life.

+++++++++++++++++++++++++++++++++++++++++++++++++++

Ok,now getting back to JAFO2010 and the pills he recommends. Here is where I buy mine from the web.

https://www.swansonvitamins.com/checkout/register.guest.html

CARTILADE (Shark Cartilage) for cancer


The cost for one big bottle is $55.27,and you take one capsule twice a day.

I ordered two bottles at first,and had not finished the first one before I got the "no cancer on your PET Scan" report.

There may be web sites that sell it cheaper,so you can look around now that you have the trade name.

I have heard of shark cartilage but I am not truly all familiar with it.  Does it rebuild cells and/or eradicate cancer and tumors??
Romans 12:16-21

Live in harmony with one another; do not be haughty, but associate with the lowly, do not claim to be wiser than you are.  Do not repay anyone evil for evil, but take thought for what is noble in the sight of all.  If it is possible, so far as it depends on you, live peaceably with all…do not be overcome by evil, but overcome evil with good.