The Briefing Room

General Category => Health/Education => Topic started by: Mod1 on April 09, 2019, 10:50:05 AM

Title: Share your cancer journey - and any other personal medical experience
Post by: Mod1 on April 09, 2019, 10:50:05 AM
Inspired by comments on Sneakypete's thread about recent/ongoing personal health issues and the suggestion that the forum have a place for people to share their cancer battles, medical advice, helpful information, etc., this thread has been created.

Here is a link to Pete's thread (http://www.gopbriefingroom.com/index.php/topic,344993.0.html).

If your experience can help another TBR member, it's all worth it. You don't have to limit the conversation to cancer, although that certainly is one that touches all of us.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Victoria33 on April 09, 2019, 11:14:53 AM
bookmark
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Applewood on April 09, 2019, 12:16:23 PM
So far I have nothing to contribute except for my prayers for @sneakypete @To-Whose-Benefit? and anyone else facing cancer or any other serious, life-threatening illness. 

Thank you @Mod1

Title: Re: Share your cancer journey - and any other personal medical experience
Post by: mountaineer on April 09, 2019, 01:08:06 PM
My mother's chronic lymphatic leukemia contributed to her death,  but otherwise cancer hasn't hit me directly.  My own issues include chronic pain, probably osteoarthritis related.  The Regenexx procedure done on my hip in December seems to be helping somewhat.  For more info,  visit www.rapsmd.com (http://www.rapsmd.com). That's the Pittsburgh location,  but I believe it's available all over the place.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Jazzhead on April 09, 2019, 01:17:33 PM
Watch where you're going.   Don't be careless on stairs.   Avoiding falls is probably the key to having a good quality of life in older age.   
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Sanguine on April 09, 2019, 01:40:43 PM
BKMK
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: truth_seeker on April 09, 2019, 02:14:51 PM
Was diagnosed with Prostate cancer (intermediate level), last fall. Underwent daily  external beam radiation treatment January 16-March 19 (44 treatments).


The worst stuff is performed by the urologist. The radiation-oncology stuff is painleess.

Appoinment followup with radiation-oncologist this Thursday. I expect either him or the urologist will get my PSA blood test again, to learn if treatment worked.

Supposedly radiation is 90+ percent effective. Stated differently, they predict you will eventually die from something other than prostate cancer.

Assuming successful cancer treatment outcome, my remaining situation will be lifelong rare NPH (Normal Pressure Hydrocephalus-shunt etc.) Separate story if interested.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: mystery-ak on April 09, 2019, 02:18:14 PM
Was diagnosed with Prostate cancer (intermediate level), last fall. Underwent daily  external beam radiation treatment January 16-March 19 (44 treatments).


The worst stuff is performed by the urologist. The radiation-oncology stuff is painleess.

Appoinment followup with radiation-oncologist this Thursday. I expect either him or the urologist will get my PSA blood test again, to learn if treatment worked.

Supposedly radiation is 90+ percent effective. Stated differently, they predict you will eventually die from something other than prostate cancer.

Assuming successful cancer treatment outcome, my remaining situation will be lifelong rare NPH (Normal Pressure Hydrocephalus-shunt etc.) Separate story if interested.

Prayers for a good report Thursday.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: mrpotatohead on April 09, 2019, 02:20:53 PM
Was diagnosed with Prostate cancer (intermediate level), last fall. Underwent daily  external beam radiation treatment January 16-March 19 (44 treatments).


The worst stuff is performed by the urologist. The radiation-oncology stuff is painleess.

Appoinment followup with radiation-oncologist this Thursday. I expect either him or the urologist will get my PSA blood test again, to learn if treatment worked.

Supposedly radiation is 90+ percent effective. Stated differently, they predict you will eventually die from something other than prostate cancer.

Assuming successful cancer treatment outcome, my remaining situation will be lifelong rare NPH (Normal Pressure Hydrocephalus-shunt etc.) Separate story if interested.
May God grant you great test results!
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: truth_seeker on April 09, 2019, 02:48:31 PM
Prayers for a good report Thursday.
Thanks a lot !!
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Applewood on April 09, 2019, 03:02:20 PM
Prayers up fo you @truth_seeker   
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: truth_seeker on April 09, 2019, 03:10:31 PM
Prayers up fo you @truth_seeker

Thanks. I am as usual positive and optimistic.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Gefn on April 09, 2019, 03:45:34 PM
Prayers for a good report Thursday.

@truth_seeker you are in my prayers too.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: truth_seeker on April 09, 2019, 03:53:35 PM
@truth_seeker you are in my prayers too.

Thank you!
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: TomSea on April 09, 2019, 04:36:33 PM
Yes, in my thoughts and prayers....
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: mountaineer on April 09, 2019, 07:22:49 PM
Watch where you're going.   Don't be careless on stairs.   Avoiding falls is probably the key to having a good quality of life in older age.
My mother suffered an incredible and indescribable amount of pain from osteoarthritis throughout her body. She was prescribed Fentanyl (patch) that didn't begin to put a dent in the pain. I have a feeling the opioid drug may have made her even more unsteady on her feet, however, which led to her falling down a flight of stairs. She died two months later, never having gotten out of the rehab hospital. The CLL may have contributed to her death by making her weaker, overall, but I believe it was a fall that caused her demise.

So I agree with you!
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: To-Whose-Benefit? on April 10, 2019, 03:58:53 AM
Watch where you're going.   Don't be careless on stairs.   Avoiding falls is probably the key to having a good quality of life in older age.

@Jazzhead

This is a righteous 2cents worth. Avoiding falls can save patients all Kinds of problems. 

You don't just wait cancer out.

You Fight it out.

Stand, like a Fighter! (Pics of Olympic Boxers)

Your feet spread shoulder wide, One foot out Ahead of the other.

This makes it Much harder to lose your balance and get Knocked Over.

(Especially good advice for the ladies, who've never developed a love for fist fighting! Try it for doing dishes or brushing your teeth. )
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: To-Whose-Benefit? on April 10, 2019, 04:05:20 AM
@truth_seeker

Prayers up Bud.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: truth_seeker on April 10, 2019, 10:11:49 AM
@truth_seeker

Prayers up Bud.
Thanks. Same for you.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: mystery-ak on April 11, 2019, 07:15:33 PM
Thanks. Same for you.

@truth_seeker without being too nosy how did it go today?
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: truth_seeker on April 11, 2019, 09:41:59 PM
@truth_seeker without being too nosy how did it go today?

Following 44 radiation treatments, today was the first check up. Radiology/Oncologist Dr. today said get a PSA blood test and go back to him in 3 months.

The side effects during treatment were minimal. I'm optimistic.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: mystery-ak on April 11, 2019, 09:46:03 PM
Following 44 radiation treatments, today was the first check up. Radiology/Oncologist Dr. today said get a PSA blood test and go back to him in 3 months.

The side effects during treatment were minimal. I'm optimistic.

Sounds very promising.....keeping you in my prayers too....
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: truth_seeker on April 11, 2019, 10:43:05 PM
Sounds very promising.....keeping you in my prayers too....

Thanks a lot.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: To-Whose-Benefit? on April 12, 2019, 05:35:02 AM
Thanks. I am as usual positive and optimistic.
Quack Cures

Nothing Worse or more disparaging.

And there's No Lack of the duced things.

If you're in a corner, Do Not Cut Off your Dr. In order to try one.

Try another Dr 1st. Transfer All of you records orders, current history.

But Before even that, Look Up the idea of 3 dozen strawberry enemas a day with Dr moves a round a lot, with 'Quack Watch' fly by night. IF, his uh, novel 'treatmeant' hasn't been Shellacked yet, then, try looking further


You might not even Have cancer and die in 10 years of old age checking them out!

There's that many of them out there

Also check out the wiki page on cancer treameants for cancer that were never proven to work.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Sighlass on April 12, 2019, 07:21:07 AM
@truth_seeker

Sorry to hear about your battles with this ... Prayers for you (and yours)...
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: truth_seeker on April 12, 2019, 10:05:17 AM
@truth_seeker

Sorry to hear about your battles with this ... Prayers for you (and yours)...

Thank you.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Bigun on April 12, 2019, 10:31:08 AM
Went for the 6 months follow up for my brain surgery recently and learned that the MRI showed the tumor was all gone and no need to see the surgeon again until next year. No cancer involved.

My only ongoing issue is lack of feeling in my right hand due to being tied down on it for 12 hours during the surgery.

Praying for @truth_seeker @To-Whose-Benefit? @Applewood and @sneakypete
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Sanguine on April 12, 2019, 10:40:28 AM
Went for the 6 months follow up for my brain surgery recently and learned that the MRI showed the tumor was all gone and no need to see the surgeon again until next year. No cancer involved.

My only ongoing issue is lack of feeling in my right hand due to being tied down on it for 12 hours during the surgery.

Praying for @truth_seeker @To-Whose-Benefit? @Applewood and @sneakypete

That's great, Bigun.  Gotta be a great relief!
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: sneakypete on April 12, 2019, 10:40:54 AM
Went for the 6 months follow up for my brain surgery recently and learned that the MRI showed the tumor was all gone and no need to see the surgeon again until next year. No cancer involved.

My only ongoing issue is lack of feeling in my right hand due to being tied down on it for 12 hours during the surgery.

Praying for @truth_seeker @To-Whose-Benefit? @Applewood and @sneakypete

@Bigun

Seems to me you have BIG-TIME reasons to celebrate!

Congratulations!
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Gefn on April 12, 2019, 10:49:46 AM
Yay @Bigun 
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Bigun on April 12, 2019, 10:57:03 AM
@Bigun

Seems to me you have BIG-TIME reasons to celebrate!

Congratulations!

@sneakypete

You betcha! 

Thanks!
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Bigun on April 12, 2019, 10:58:27 AM
Yay @Bigun

@Freya

 :grouphug:
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: To-Whose-Benefit? on April 12, 2019, 04:59:40 PM
Thanks @Bigun , @Sanguine @Freya and a whole big passle of others out there.

I was out/in for a biopsy this AM. SINCE, this stuff inside Me managed to Kill the last two chemo drugs we set on them rather than the other way around,. . . . .

The think is Maybe it mutated to a diff cancer from the prostate it started as and We got us the perfect mix in a jug already, right on the Shelf for That one!
Means a lot.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: To-Whose-Benefit? on April 13, 2019, 11:50:23 PM
Since I was never asleep during Friday's biopsy, I noted both Docs doing it getting excited.

Theytold me my lymph sys is badly infected with cancer. My legs have been inflated like This at least 4 or 5 times over the last 30 years, and then come down again.

So, either Sombodie's guessing wrong, or I may be something New to the mix!

They asked me afterward if I had ever had cancer before, and my swelling is going down.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: sneakypete on April 14, 2019, 12:17:47 AM
Since I was never asleep during Friday's biopsy, I noted both Docs doing it getting excited.

Theytold me my lymph sys is badly infected with cancer. My legs have been inflated like This at least 4 or 5 times over the last 30 years, and then come down again.

So, either Sombodie's guessing wrong, or I may be something New to the mix!

They asked me afterward if I had ever had cancer before, and my swelling is going down.

@To-Whose-Benefit?

I ain't no doctor and don't even play one on teebee,but you just described the symptoms of lymphoma . How do I know this? I know it because it is the type of cancer that I have. In my case,it was in my groin (swelling my legs),my stomach (bloating my stomach and making it hard to breathe because of the pressure on my lungs and diaphram),and in my chest (causing me to have 2 quarts of water drained from my right lung every 5 or 6 days while trying to get this all sorted out).
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: To-Whose-Benefit? on April 14, 2019, 02:15:37 AM
Thanks @sneakypete

Mebbe effin we git enough lay persons diagnosing here we can at least get That part of it settled and go settle That rodent with the right Ace Hardware Cure and move on toward the happy conclusion!
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: To-Whose-Benefit? on April 14, 2019, 04:12:02 AM
That's great, Bigun.  Gotta be a great relief!

Eyup.

Ain't no other way to purt it.

Getting all them Other purts of us workin again, as issued, is about the greatest gift imaginable.

To each and every one of you needing a new cog. 

"Save All Your Paperwork!"

and best of luck.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: To-Whose-Benefit? on May 08, 2019, 04:10:08 PM
Save ALl your pprwrk.
K
And ppn
Nwrk. Hspbilling pprwrwrk..

Great News. Find out What it is and mail it w a a bbsbe bat.let me know What you got
Let me know. I want mine Daed.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: To-Whose-Benefit? on May 08, 2019, 05:50:43 PM
May God grant you great test results!

Brother I Hope you never get poisoned with chemo.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Gefn on May 08, 2019, 06:06:42 PM
Everyone here is in my thoughts. Bless you all.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Smokin Joe on May 08, 2019, 08:39:46 PM
Prayers up for all fighting the big 'C'.

My tussle with it consisted of figuring out I had a nickel-sized basal cell carcinoma, going to the doctor and getting that confirmed, then while the oil company was picking up a different rig and moving it in, getting the tumor cut out. The surgeon and path lab did frozen sections until the margins were clear of cancer, and sewed me up. I got the stitches out the day before we hit start depth, and went back to work. I got a 4" scar to add to my humble collection, and no chemo or radiation. That was six years ago, and no sign of a recurrence, so I was lucky.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: To-Whose-Benefit? on May 11, 2019, 03:00:10 AM
@Smokin Joe

Well now if That don't just light up my Smiles. You Beat the dirty Alley Bashing SOB, WHILE, other folks was walking in Sideways to bushwack Another nice little tote bag of gold coin for you to pick up!

 :beer:
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Smokin Joe on May 11, 2019, 03:08:23 AM
@Smokin Joe

Well now if That don't just light up my Smiles. You Beat the dirty Alley Bashing SOB, WHILE, other folks was walking in Sideways to bushwack Another nice little tote bag of gold coin for you to pick up!

 :beer:
Brother, The Almighty beat it, with a little help from the surgeon. Me? I just didn't have time to mess with it, so I told the surgeon, not to worry about a scar (hairline to jawline, it hides in the edge of my beard, now). Just make sure you get it all.
He did well. :beer:
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: To-Whose-Benefit? on May 11, 2019, 03:10:19 AM
@Smokin Joe

Know anything 'bout the discolored tissue abutting lymph nodes that @Sighlass is talking about Joe? Sounds like what I've hade for at least 25 years. Docs dunno so they all wanna put me in in freaking Hospice and write us us both off as incurable cancer patients. ???
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Smokin Joe on May 11, 2019, 03:51:58 AM
@Smokin Joe

Know anything 'bout the discolored tissue abutting lymph nodes that @Sighlass is talking about Joe? Sounds like what I've hade for at least 25 years. Docs dunno so they all wanna put me in in freaking Hospice and write us us both off as incurable cancer patients. ???
It's a little out of my area of expertise, but if you point me to the post (I couldn't find it on this thread), I'll find out what I can.

When the docs dunno, it may be time to see some new/different docs.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: sneakypete on May 11, 2019, 08:54:56 AM
GREAT news! A good friend of mine was diagnosed with throat cancer the same day I was told I have lymphoma,and his treatment has been brutal. Chemo one day a week for two weeks,and radiation 5 days a week for 3 months. Including the days he had chemo. He was told yesterday the tumor in his throat was gone. All this time he has had a tube in his throat that kept him from breathing though his nose or mouth,eating,and even talking. Had to be fed through another tube in his stomach. I am not exaggerating when I say his arms are now half the size they used to be. Besides losing muscle mass,he was close to starvation.

He now has a different type of tube in his mouth that allows him to eat small soft things for the time being,and this is big,also allows him to speak and breathe through his nose. The stomach tube is gone.

I have no doubt it will take him at least two weeks before he starts feeling stronger and is able to go back to work a few hours a day at his commercial garage,but IF he is very careful and watches what he is doing,he may be back to working all day doing small things within a month.

All this time the bills have kept coming in,and no profits being made. On top of the other monthly bills. We can only imagine what effect this had on him,but I'm sure it wasn't minor. Just knowing that he no longer has the tumor and can start thinking about going back to work instead of worrying about more surgery and more desperate treatment is going to be a HUGE part of his recovery.

Worry is always harmful to recovery from any physical ailment,but there is no way to avoid it until the doctors tell you you have a clean bill of health and will soon be able to go back to work.

He was treated at the same clinic as me,but had a different doctor and different form of cancer.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Gefn on May 11, 2019, 09:08:20 AM
Wonderful news @sneakypete  888heartkitty
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Sanguine on May 11, 2019, 09:48:50 AM
That's great, @sneakypete!

I'm going to share a little bit of my experience.  Maybe it is helpful?

I was diagnosed with a particularly aggressive and out of the blue cancer at a youngish age.  Too young for what I had anyway.  Went through many surgeries, heavy-duty chemo, radiation and follow-up-for-five-years-anti-cancer meds.  That was twenty years ago.  One smallish recurrence about 10 years ago.  Lots of scars but no sign of anything else.  God is good.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: sneakypete on May 11, 2019, 11:24:36 AM
That's great, @sneakypete!

I'm going to share a little bit of my experience.  Maybe it is helpful?

I was diagnosed with a particularly aggressive and out of the blue cancer at a youngish age.  Too young for what I had anyway.  Went through many surgeries, heavy-duty chemo, radiation and follow-up-for-five-years-anti-cancer meds.  That was twenty years ago.  One smallish recurrence about 10 years ago.  Lots of scars but no sign of anything else.  God is good.

@Sanguine

I want to go into screaming fits every time I read or hear about someone young getting cancer. In fact,that is one of the prime reasons I can never accept that there is any such creature as a "kind and loving God".

I am glad you were able to survive,and sorry to hear you had to go through it.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Bigun on May 11, 2019, 11:37:01 AM
That's great, @sneakypete!

I'm going to share a little bit of my experience.  Maybe it is helpful?

I was diagnosed with a particularly aggressive and out of the blue cancer at a youngish age.  Too young for what I had anyway.  Went through many surgeries, heavy-duty chemo, radiation and follow-up-for-five-years-anti-cancer meds.  That was twenty years ago.  One smallish recurrence about 10 years ago.  Lots of scars but no sign of anything else.  God is good.

Wow! I never knew that.  Glad you beat it!
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Sanguine on May 11, 2019, 11:41:26 AM
@Sanguine

I want to go into screaming fits every time I read or hear about someone young getting cancer. In fact,that is one of the prime reasons I can never accept that there is any such creature as a "kind and loving God".

I am glad you were able to survive,and sorry to hear you had to go through it.

@sneakypete oddly, I'm not sorry to have had to go through it.  You want to find happiness and meaning in life?  Reinforce your relationship with The Great Unknown?  Understand very clearly what is important and what isn't?  Find out what you're made of?  This is one way to do it.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Sanguine on May 11, 2019, 11:41:57 AM
Wow! I never knew that.  Glad you beat it!

Thanks, and me too!
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Gefn on May 11, 2019, 12:30:07 PM
@Sanguine I’m so glad you beat this
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Sanguine on May 11, 2019, 12:36:36 PM
@Sanguine I’m so glad you beat this

Thanks, Freya.  I'm lucky in many ways.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: sneakypete on May 11, 2019, 03:34:09 PM
@sneakypete oddly, I'm not sorry to have had to go through it.  You want to find happiness and meaning in life?  Reinforce your relationship with The Great Unknown?  Understand very clearly what is important and what isn't?  Find out what you're made of?  This is one way to do it.

@Sanguine

No question about that,but there are less painful ways to go about it.

I'm just glad you are here to write about it.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Sanguine on May 11, 2019, 10:09:00 PM
@Sanguine

No question about that,but there are less painful ways to go about it.

I'm just glad you are here to write about it.

@sneakypete, some of us have to be hit over the head with a 2x4 before we pay attention.  I'm not sure I'm one of those people, but my attention was definitely gotten.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: To-Whose-Benefit? on May 12, 2019, 06:36:32 PM
Get hit with it, and it will seem like more than a 2 x 4.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: To-Whose-Benefit? on May 13, 2019, 01:48:44 AM
My Lymph Nodes are a twisted mess. When I had a Biopsy done this Feb for Prostate Cancer it was done topically (shaved slices of skin off the outside of the body) in the armpit and came back Positive.

Now a Similar condition with my Lymph Nodes has dogged me for 30 years, always with NO real diagnosis But the condition reverses itself and does Not become actually Cancerous.

THIS time, an Oncologist diagnosed me as having Stage 4 Castration Resistant Metastatic Prostate Cancer.

I remained awake through my last Biopsy. My 2 Doctors doing the biopsy Asked me if I I had Ever Had Cancer Before!

I said NO!

From what I can gather I have some black/blackish material between my Lymph Nodes and the surrounding tissue.

So far, my body has Stopped 2 global chemotherapeautic agents dead in their tracks: Zytiga and Oxytaxel. My Next chemo will be Bevnan (Cabrizataxel).

My Question is, has anyone Else run into these changes in Their body? Has anyone else had a Positive Identification of the material (blackish/brown) between Their Lymphatic Cells/Organs? Has it or has it Not been Med Lab Identified as Cancerous? 

If Not, has anyone Had this odd material and it's Condition actually Med Lab Identified?

It's more than an Academic question for me because my, uh, Team of Medical All Stars could Use a Direction to Look into, as I have run out of time.

So, Thanks very much to anyone with answers or guesses, they beat all hell out of just watching my own personal clock run even Farther out of bounds.


Title: Re: Share your cancer journey - and any other personal medical experience
Post by: sneakypete on May 13, 2019, 09:38:32 AM
Quote
My Lymph Nodes are a twisted mess. 

Now a Similar condition with my Lymph Nodes has dogged me for 30 years, always with NO real diagnosis But the condition reverses itself and does Not become actually Cancerous.

@To-Whose-Benefit?

This seems to be pretty common with lymphoma. I have it in the groin,stomach,and chest. Have had it since at least the early 1990's,when I suddenly went from 165 lbs or so,to around 230 lbs,and then a few years later bumped up to around 288 lbs.  The VA docs were the only ones I could afford to go to,and they kept telling me to quit drinking,eat a healthy diet,and get more exercise. It was,of course,my fault due to poor habits. Nothing to see here,folks.

This,despite me already being diagnosed and rated BY THE VA as an Agent Orange veteran,and lymphoma being the prime killer.

Finally,a few months ago my lungs filled up with water to the point I was having to have 2 quarts of fluid drained from them every 5 or 6 days to avoid drowning on dry land,and while in the CIVILIAN hospital being diagnosed with an irregular heartbeat (24 beats per minute) that lead first to a stent being put in,and a couple of weeks later having a pacemaker put in. It was while I was in the hospital after the stent surgery and on a monitor that the heart surgeon noticed my procedures every few days to have my lung drained,and figured out I have lymphoma. Being a heart surgeon he wasn't qualified to make this diagnosis,but what he did was come to me and tell me he had a female doctor that was going to come and see me the next day,and to make sure to NOT leave the hospital until after she talked with me. Evidentially he shared some records with her because when she showed up at 7 AM the next morning she was ready to hit the ground running. She told me what I had and what she thought I needed to do about it,and had already made me an appointment to her clinic a few days later.

How this relates to you is the fact that it seems common for lymph gland cancer to live in your body and cause you problems for years while still remaining benign.

BUT......,when it turns malignant it means business because it is already well-rooted and has a head start with most people. I am only half-way though my initial treatment program,but so far I seem to have been one of the VERY lucky ones that caught it in time for the meds to really work well. IF everything continues to go well,it will be early August before my treatment is done. If it doesn't continue to go well,who knows how long it will continue? The surgeon ruled out a transplant right off the bat due to my age.

I am not a doctor and don't play one on teebee,but I think you need to contact a cancer clinic that has multiple doctors and offices. In other words,one big enough and professional enough to have a whole damn herd of cancer surgeons that can put their heads together at clinic meetings and discuss successful and unsuccessful treatments with each other.

This stuff is just too "big" at the stage you are to trust to a small practice .

Quote
THIS time, an Oncologist diagnosed me as having Stage 4 Castration Resistant Metastatic Prostate Cancer.

Which,PLEASE NOTE,is NOT the form of cancer that I have,but it seems you also have lymph gland problems,so make DAMN SURE you get that checked out,also, Just because you may now have prostate cancer,doesn't mean you can't also have lymphoma.

Or some other diagnosed form of cancer that is making the primary cancer you are being treated for harder to treat.

 
Quote
I remained awake through my last Biopsy. My 2 Doctors doing the biopsy Asked me if I I had Ever Had Cancer Before!

I said NO!

Rookie mistake. You NEVER answer a question like when asked by doctors with the word "NO!". You ain't filling out an insurance policy application. You are a patient with medical problems,and the doctors have reasons to ask this of you or they wouldn't have asked it. In cases like this the answer should ALWAYS be some form of "Not as far as I know,but I guess it is possible."

These people are clinic docs. When someone gives them a definitive "No",due to their professional experiences,tend to THINK that this means you have been tested in the recent past and diagnosed as being cancer-free. Make sure you clear up any little misunderstanding like that at the start by NEVER giving a straight,unadorned "No" answer to such an important question. Remember,for all these guys know,you were given a clean bill of health by the Mayo Clinic a month ago. They know NOTHING about your medical treatment in the past that you don't tell them.

Quote
From what I can gather I have some black/blackish material between my Lymph Nodes and the surrounding tissue.

I don't even have a clue about this,but would suggest that maybe you do a google search using your symptoms as key words,and then look for discussion groups that have cancers that may be related. You may not find the perfect answer at a discussion group,but it is likely you can find an answer that will give you an idea about what questions you need to ask your surgeons.


Quote
So far, my body has Stopped 2 global chemotherapeautic agents dead in their tracks: Zytiga and Oxytaxel. My Next chemo will be Bevnan (Cabrizataxel).

I don't understand that. MY understanding,and I CAN be wrong,is that these days they tailor-make patient-specific chemo blends for each patient,so how can your system be rejecting it?

This is WHY they tailor-make patient-specific and cancer-specific chemo brews.

 
Quote
If Not, has anyone Had this odd material and it's Condition actually Med Lab Identified?

I didn't see it,but I was later told by the surgeon that I was leaking black pus from my scrotum when I got to the ER with flesh-eating bacteria. Scared them so badly they burned all my clothes. They never named it,though. Said it smelled "like a open grave" and scared them.

Quote
It's more than an Academic question for me because my, uh, Team of Medical All Stars could Use a Direction to Look into, as I have run out of time.

IMHO,you need a new All Star team. See if you can get a consult appointment with the Mayo Clinic or some other major clinic. Get copies of all your lab reports and doctors reports and make copies of them to mail out or fax. Call the major hospitals in your state that have cancer centers and see if you can get them interested. Once again,have data to fax or mail to them immediately.

Get proactive on a state-wide level while trying to work major US cancer centers in the background. You can find them by doing a web search for "major cancer research hospitals".

Do this TODAY!

 
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: To-Whose-Benefit? on May 13, 2019, 10:02:57 AM
Morning Pete.

Last Week (thanks to the 2nd chemo) I wound up down on one knee unable to stand without help. (1st time in over 50 years.)

10 days later I get Another HHA worker. Out of the blue. Wants to do a Speech Apptitude test.

Within 3 words I threw her out.

The 9 scariest words in the English Language?

"We're from the Govt and we're here to help."
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: jafo2010 on May 13, 2019, 12:49:36 PM
I noticed this thread, read through it, and thought I would contribute some lessons learned in my life.

1993 I was a Financial Planner, investments and insurance, etc, and I scheduled an appointment with a couple that were referred to me.  Met them at their house where when I first sat down with them the husband said, 'don't know who you are, don't care, just get the f out of my house.  I scheduled the appointment with the wife. 

His name was Al, and one month prior to meeting him, he was reaching for a glass out of the cubboard and snapped a bone in his arm.  He was diagnosed with two forms of terminal cancer, multiple myeloma, and the end stage of prostate cancer.  Doctors gave him 2-3 months to live.  They immediately started him on Chemo.

Al was a tough minded business man, so he started doing his own research.  He discovered that using mega doses of shark cartilage had an impact on 60% of those with soft tissue cancer.  So, he started the program.  In a very short period of time, his prostate cancer went away, and his multiple myeloma went into full remission.

Al lived 5.5 years longer, living a normal life, running his business, playing golf, etc, and when he died, it was due to a terrible fall he took which shattered his pelvis in multiple places.  During those years, he and his wife became like a second set of parents and close friends.  I dined with them regularly, and learned a great deal from him.  He had a major influence on me and my mindset regarding cancer.  And BTW, his oncologist would refer his patients to Al to explain the benefits of the cartilage.  His doctor could not EVER mention cartilage because it is not a recognized therapy by the AMA.  His doctor admitted it was the cartilage and not the chemo or radiation that worked on Al.

It was about three years after I met him that my own father was diagnosed with lung cancer.  When I first learned his condition, I told him, at Al's insistence about the shark cartilage, but my parents were the type of people that if the doctor did not tell them to do it, they ignored the advice.  So my father went through chemo and radiation, and six months later was given a clean bill of health from the good doctors.

Six months later, he developed a metastasized tumor in his esophogus.  He could no longer swallow food, not even his saliva without choking.  Doctors inserted a feeding tube in his abdomen, and they told him he had 2-3 months to live, that he was maxed out on chemo and radiation, and offered NOTHING therapeutically for my father.  They said, get your affairs in order, there is nothing we can do.

I then sat down with my parents, and I asked my father, do you want to live?  Of course he looked at me like I was an idiot, but he responded, absolutely.  So I said, are you ready to listen to me now?  He said, what do you want me to do?  I said, take the shark cartilage.  So, he agreed to do it.

My father lived two years taking the shark cartilage.  And then he stopped one day, because while he could not swallow, from his incessant coughing, he would regurgitate the content of his stomach, and he did not like the then fishy taste of the cartilage, so he stopped taking it.  My father was as finicky a person as I ever knew.  He would not eat guaccamoli because of the color, etc

In one month a tumor popped out on his leg, and doctors surgically removed it.  In one more month he was dead.  The cartilage halted the grow of the tumor in his esophogus and allowed him to continue to live his life.  And he did maintain a relatively normal life.  He was a rabid Steeler fan, and he and his best friend went to every home game.  The two of them and the wives were also rabid bridge players, playing bridge every week for roughly 35+ years of their lives together.  And of course, he got to enjoy his family, for we all at the time lived within 3 miles of one another.

Bottomline, I could go through a dozen case studies of people that I encouraged to take shark cartilage.  In every case, it was after there was no hope left from doctors and conventional medicine, and in every case, their lives were prolonged by years!

If you go online, you will see a number of articles that say it is all bullsh*t.  It is not.  Both my mother and mother-in-law benefited from the shark cartilage.  Both were survivors of prior bouts of cancer, both turning up with breast cancer, again!  In my mother's case, the doctor told her the chemo and radiaiton was not helping to shrink her tumor.  She also had breast cancer on her cleavage.

Now my mother was worse than my father about doing only what the doctor said, so it was not until he said his therapies were not working and my sister nagged her for hours each day that she relented.  She took the cartilage, and the cancer on her cleavage went away in one month.  When she went to the doctor, he all but fell out of his shoes in shock, according to her.  He said her tumor was shrinking, and she never mentioned she was using shark cartilage to him.  She was progressing to be free of cancer when she too took a tumble down a staircase, cracked her head open and died the next day.

So, not to bore all of you to death, there is a lot to know about cartilage and other things that greatly benefit those with cancer that doctors will never tell you.  Rather than bore you to death, I am happy to discuss what I know with anyone interested in talking further.  And by the way, my mother-in-law was a physician, a pathologist, and her life was prolonged two years as well.

Feel free to contact me.  My email is medpgh@gmail.com
And note, I am not selling anything, but I am always happy to help others, particularly against one of the ugliest diseases I know.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: To-Whose-Benefit? on May 15, 2019, 10:27:24 AM
What to expect.

Last week I went down on one knee in the kitchen, it wasn't a Fall but down on one knee and a cane without the strength to haul myself back up.

Against better advice I let someone call an Ambulance and take me to a hospital.

Once there I was put in an Anti Fall Unit, assigned a boundary buzzer bead, and given Crap crap ever time I Tried to go to to to the can (with a bad prostate to boot, every 20 minunets. "Don"t Do That!"

And as a suspected Sedative Seeker, ignored for pain meds. (Hell of a way to fight cancer.)

Anyway, hardly the 1st time I been treated like shit by a hospital. Ignored and left unwashed for 48 hrs in a wet Hsp bed.

With an open streak of Stinking racial animus


And Currently dealing with a possible broken shoulder from an over zealous ambulance crew.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: To-Whose-Benefit? on May 15, 2019, 04:39:40 PM
Anyone got 2 cents here?
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: berdie on May 15, 2019, 06:44:20 PM
Anyone got 2 cents here?



For my 2 cents...I think you are a tough hombre that will over come this.  In spite of it all.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Gefn on May 15, 2019, 06:59:37 PM


For my 2 cents...I think you are a tough hombre that will over come this.  In spite of it all.

He is! I’m up visiting him and just gave him a much needed pedicure. ❤️🐱
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: To-Whose-Benefit? on May 15, 2019, 06:59:44 PM

Hey @berdie

Thanks. Worst case is I die in the stinking Communist CT Hamlet I was dropped in, and be Buried there till the jackass town at Some point finds yet Another moronic penny grubbing excuse to invoke emminent domain, Again.


For my 2 cents...I think you are a tough hombre that will over come this.  In spite of it all.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: mountaineer on May 15, 2019, 07:26:15 PM
Very interesting and potentially helpful into about the shark cartilage, @jafo2010   Thanks.
btw, I'm also a yinzer!  :beer: (those are tiny IC lights, which I'd never drink but seem to exemplify da Burgh).
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: To-Whose-Benefit? on May 15, 2019, 09:26:15 PM
 Hallmarks of Socialized Medicine; Racism/Class Warfare. All Free/All Equal/in this case, intake processing cubicles at street level on a wind protected Ally. So They sit outside as the sun falls and launch Marxist Insults in through the back windows, which of course upset the license holding Workers who, while sympathetic, have a real Check, and are despised for it.

So who do They take it out on?

You Betchum.

I got Stage 4 paperwork and DEA controlled meds to be ignored, . . .
 .

A Real Workers Paradise.



Title: Re: Share your cancer journey - and any other personal medical experience
Post by: To-Whose-Benefit? on May 15, 2019, 09:43:23 PM
He is! I’m up visiting him and just gave him a much needed pedicure. ❤️🐱

Hahaha.

If the. nails had gone any longer they would have qualified in a Vampire Flick for some grisly trimming scene.

I'm only surprised they didn't bleed as it was.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: LegalAmerican on May 15, 2019, 09:59:28 PM
Thanks. Same for you.

No radiated pellets implanted?  More direct.pin pointed.   Best wishes . 

I had chemo & radiation.  I would NEVER do radiation again
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: To-Whose-Benefit? on May 15, 2019, 10:43:37 PM
No radiated pellets implanted?  More direct.pin pointed.   Best wishes . 

I had chemo & radiation.  I would NEVER do radiation again


Sounds like my last go round with chemo.

Before This Crap, I had no trouble squatting a lousy 225lbs. Radiologist said hang it up you risking a bone/joint fracture.

Two weeks ago I couldn't hoist a lousy 210lbs/my own carcass weight on just ONE KNEE.

I Watched the chemo burn my muscles Off like napalm. Loose chunks of them!

Unfortunately it's Got to be chemo now (stage 4) to get At the Mets.

Radiation will at best give you a Precision Game of Whack a Mole. ( And hope you don't Miss any of them).
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: truth_seeker on May 15, 2019, 11:23:45 PM
No radiated pellets implanted?  More direct.pin pointed.   Best wishes . 

I had chemo & radiation.  I would NEVER do radiation again

I did 44 daily radiation treatments. Pretty standard I understand. About July 1st I do a PSA blood test. Then visit the oncologist, to learn if the radiation got all or most of it.


Title: Re: Share your cancer journey - and any other personal medical experience
Post by: sneakypete on May 15, 2019, 11:34:55 PM
I did 44 daily radiation treatments. Pretty standard I understand. About July 1st I do a PSA blod test. Then visit the oncologist, to learn if the radiation got all or most of it.

@truth_seeker

Here is hoping it works out for you as well as it did for my friend. He had radiation treatment 5 days a week for 9 weeks,plus a few weeks of once a week chemo,and when he went for his appraisal last Friday I was dreading the phone call from his wife because I just KNEW he was dying and there wasn't a thing they could do to stop it. His arms were less than half the size they had been before he got sick,and they were never big to start with.

Damned if they didn't tell him the tumor was gone!

You can never really tell by looking.

Yeah,he is still as weak as a kitten and most likely has several months to slowly and carefully try to build his strength back up before he is half of what he was,but the point is HE WILL BE HERE TO SLOWLY BUILD HIS STRENGTH BACK UP.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: To-Whose-Benefit? on May 16, 2019, 12:02:48 AM
Can't say exactly How @truth_seeker feels though I Expect, .  . . . We 're Both Real Appreciative of all the prayers and such are received on Both of our behalfs.

Ain't NO amount of money worth a beautiful sunrise with a beautiful lady. More the merrier, and only One place I Know to get them.

So @truth_seeker I'm setting up my God Box, and hoping there'll be Plenty of Kind Reminders in there for all of our Buddies here.

But why God, and not just science?

Count up all those years.

Too many other variables.

Not being a Scripture Hound I can tell you all, I Want to believe. But I can't tell you what Else I believe.

And I'd like to see all you Others who Want To Believe, get to Take that Journey.

Because Taking the Journey itself is the real prize. Not Holding the Deed, but taking the Trip!
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Sighlass on May 16, 2019, 02:43:47 AM
@Smokin Joe

Know anything 'bout the discolored tissue abutting lymph nodes that @Sighlass is talking about Joe? Sounds like what I've hade for at least 25 years. Docs dunno so they all wanna put me in in freaking Hospice and write us us both off as incurable cancer patients. ???

I am also at a loss here TWB... I don't know the post  you are talking about. I don't remember talking about such.... Perhaps you can set me straight if I mislead you in any way.

That said, you are in my prayers sir. I wish I could do more and offer better advice. As is, I just sit here and remember that no matter how much I ache at times, there is those here that would trade places with me in a NY minute. That my sufferings are pale and I should be more thankful for what I have.

As I said, you are remembered in prayer here.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: To-Whose-Benefit? on May 16, 2019, 02:28:26 PM
[quote author=mrpotatohead

More Loose Ends
Hi
Being Fired as a Patient

Yes Virginia, it happened to ME.

So chill. After 10 weeks of promisess, Mand trips across Stat





Morem0lolink=topic=357703.msg1953503#msg1953503 date=1554834053]
What to expect.

Last week I went down on one knee in the kitchen, it wasn't a Fall but down on one knee and a cane without the strength to haul myself back up.

Against better advice I let someone call an Ambulance and take me to a hospital.

Once there I was put in an Anti Fall Unit, assigned a boundary buzzer bead, and given Crap crap ever time I Tried to go to to to the can (with a bad prostate to boot, every 20 minunets. "Don"t Do That!"

And as a suspected Sedative Seeker, ignored for pain meds. (Hell of a way to fight cancer.)

Anyway, hardly the 1st time I been treated like shit by a hospital. Ignored and left unwashed for 48 hrs in a wet Hsp bed.

With an open streak of Stinking racial animus


And Currently dealing with a possible broken shoulder from an over zealous ambulance crew.
May God grant you great test results!
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: To-Whose-Benefit? on May 16, 2019, 02:30:59 PM
May God grant you great test results!

Title: Re: Share your cancer journey - and any other personal medical experience
Post by: sneakypete on September 20, 2019, 02:05:15 PM
How about some updates???????
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Applewood on September 20, 2019, 03:10:26 PM
How about some updates???????

How about you first?  You were gone for a little while and I had to ask others about you.  Good to see you back, by the way. 
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: sneakypete on September 22, 2019, 07:31:27 PM
How about you first?  You were gone for a little while and I had to ask others about you.  Good to see you back, by the way.

@Applewood

In remission. Memory still sucks from chemo brain,but I am hoping to get more of it back before I am assigned a keeper.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Gefn on September 22, 2019, 11:58:02 PM
@Applewood

In remission. Memory still sucks from chemo brain,but I am hoping to get more of it back before I am assigned a keeper.

Pete, I’m glad you are in remission. I remember a few days before he died, TWB was asking about you. You are in my thoughts, my friend.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: sneakypete on September 23, 2019, 01:19:22 AM
Pete, I’m glad you are in remission. I remember a few days before he died, TWB was asking about you. You are in my thoughts, my friend.

@Gefn


TWB died? When did this happen?
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Applewood on September 23, 2019, 07:38:43 AM
@Applewood

In remission. Memory still sucks from chemo brain,but I am hoping to get more of it back before I am assigned a keeper.

@sneakypete

So glad to see you are in remission.  Good luck with the chemo brain.  I've read it's usually temporary.  Sure hope so.  My brain cells were scrambled 11 years ago thanks to a cardiac arrest (no oxygen to the brain).  However, most of my relatives and friends say they don't notice a difference.  LOL

Title: Re: Share your cancer journey - and any other personal medical experience
Post by: sneakypete on September 23, 2019, 09:18:11 AM
@sneakypete

So glad to see you are in remission.  Good luck with the chemo brain.  I've read it's usually temporary.  Sure hope so.  My brain cells were scrambled 11 years ago thanks to a cardiac arrest (no oxygen to the brain).  However, most of my relatives and friends say they don't notice a difference.  LOL

@Applewood

Thanks for the good thoughts. I know I am getting better because I now have good memory days,and bad memory days. A month or so ago all I had were bad memory days.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: mountaineer on September 23, 2019, 10:32:36 AM
Very good to hear, Pete!
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: berdie on September 23, 2019, 04:02:05 PM
That's such good news @sneakypete !  You are tough!
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: jafo2010 on March 13, 2020, 02:27:09 PM
It's about six months later, how are you feeling now Pete?

I don't know if I mentioned this story before on TBR before, but maybe this will help further for you or others.  In January, 1977, I was consulting to Classic Chemical in Camden, NJ, and flying Philly to Pittsburgh each week.  One Friday, I sat next to a woman, she said she was 49 years of age, and she started telling me her story.

Eighteen months prior, she was diagnosed with cancer in her vital organs in her abdomen, and told by doctors she has three months to live.  Now 15 years prior to this, she had cancer, went through chemo and radiation and given a clean bill of health.  So, again she has cancer, she made the conscience decision not to do chemo and radiation again, and decided to do the Layetril Diet(not sure of spelling).  For those of you old enough, you may remember this.  She explained it was mega doses of vitamins and minerals, restricted diet, no spicy food, no alcohol, coffee, tea or soda, and she was only allowed to drink distilled water or frozen concentrated juices with distilled water.  She also did other things too as part of the therapy.

In any case, her cancer went away completely.  She went on to say that she bought a water distiller to make her own water, and her whole family drank distilled water and found tap water offensive. 

End of 1978, I get married and move from Pittsburgh, PA, to Tampa, FL.  The water in Tampa is the worst in the country in my opinion.  Remembering what the woman above told me, I started buying distilled water off the shelf in the grocery store.  Did that for a year, bought my first house, and told my wife I am tired of lugging jugs of water from the grocery store.  Checked the yellow pages, and there was a couple listed selling distillers.  Bought one and have been drinking distilled water ever since.

I am a firm believer in drinking distilled water.  Why?  Chlorine and Flouride are extremely toxic and both are carcinogenic.
Also, municipalities add as many as 46 different chemicals to the water for treatment, which you would consume.  I consider tap water unsafe for long term living.  Look around at the people getting cancer.  It is no mystery to me why.

There is a lot to know about water, which is usually a boring subject for most.  My friend Al, who I mentioned further up the thread who used shark cartilage, I convinced him to also use only distilled water.  I believe with the many case studies I have witnessed, that distilled water helps purify the body, removing anything that does not belong. 

I believe firmly, I will never have a blocked artery, never have kidney or gall stones, never have arthritic deposits in my joints, etc.  There was a recent study published indicating that with virtually every Alzheimer patient, there was a buildup of a particular protein in the brain.  If this is true, I suspect I will never have that either.  Distilled water helps keep anything that does not belong to exit the body.  Bottomline, I believe one can extend their life ten years by drinking it.

For those that have cancer, I strongly recommend using distilled water.  If you look online, the detractors will say it leaches minerals out of the body.  Well, I have been drinking distilled water for 42 years, and I am in perfect health.  It is important to eat a balanced diet, and I also recommend taking a vitamin/mineral supplement daily.  If you have a poor diet, and eat junk, you will have a problem.  But then that is true regardless of drinking distilled water.

My closest roommate from college days was in good shape, athletic and active.  He was a sports reporter for a newspaper in Virginia, and he had chest pains at age 47 and was taken to a hospital and he died while they had him cracked open on the operating table.  He ate junk food every day for lunch, i.e. McDonalds, etc.

It is not only food that makes a difference going into your body.  Since your body is comprised of roughly 84% water, I believe the water you drink is just as important if not more so.

Title: Re: Share your cancer journey - and any other personal medical experience
Post by: DB on March 13, 2020, 02:33:21 PM
Did @To-Whose-Benefit? not make it? Hope that isn't the case.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Smokin Joe on March 14, 2020, 12:16:16 AM
It's about six months later, how are you feeling now Pete?

I don't know if I mentioned this story before on TBR before, but maybe this will help further for you or others.  In January, 1977, I was consulting to Classic Chemical in Camden, NJ, and flying Philly to Pittsburgh each week.  One Friday, I sat next to a woman, she said she was 49 years of age, and she started telling me her story.

Eighteen months prior, she was diagnosed with cancer in her vital organs in her abdomen, and told by doctors she has three months to live.  Now 15 years prior to this, she had cancer, went through chemo and radiation and given a clean bill of health.  So, again she has cancer, she made the conscience decision not to do chemo and radiation again, and decided to do the Layetril Diet(not sure of spelling).  For those of you old enough, you may remember this.  She explained it was mega doses of vitamins and minerals, restricted diet, no spicy food, no alcohol, coffee, tea or soda, and she was only allowed to drink distilled water or frozen concentrated juices with distilled water.  She also did other things too as part of the therapy.

In any case, her cancer went away completely.  She went on to say that she bought a water distiller to make her own water, and her whole family drank distilled water and found tap water offensive. 

End of 1978, I get married and move from Pittsburgh, PA, to Tampa, FL.  The water in Tampa is the worst in the country in my opinion.  Remembering what the woman above told me, I started buying distilled water off the shelf in the grocery store.  Did that for a year, bought my first house, and told my wife I am tired of lugging jugs of water from the grocery store.  Checked the yellow pages, and there was a couple listed selling distillers.  Bought one and have been drinking distilled water ever since.

I am a firm believer in drinking distilled water.  Why?  Chlorine and Flouride are extremely toxic and both are carcinogenic.
Also, municipalities add as many as 46 different chemicals to the water for treatment, which you would consume.  I consider tap water unsafe for long term living.  Look around at the people getting cancer.  It is no mystery to me why.

There is a lot to know about water, which is usually a boring subject for most.  My friend Al, who I mentioned further up the thread who used shark cartilage, I convinced him to also use only distilled water.  I believe with the many case studies I have witnessed, that distilled water helps purify the body, removing anything that does not belong. 

I believe firmly, I will never have a blocked artery, never have kidney or gall stones, never have arthritic deposits in my joints, etc.  There was a recent study published indicating that with virtually every Alzheimer patient, there was a buildup of a particular protein in the brain.  If this is true, I suspect I will never have that either.  Distilled water helps keep anything that does not belong to exit the body.  Bottomline, I believe one can extend their life ten years by drinking it.

For those that have cancer, I strongly recommend using distilled water.  If you look online, the detractors will say it leaches minerals out of the body.  Well, I have been drinking distilled water for 42 years, and I am in perfect health.  It is important to eat a balanced diet, and I also recommend taking a vitamin/mineral supplement daily.  If you have a poor diet, and eat junk, you will have a problem.  But then that is true regardless of drinking distilled water.

My closest roommate from college days was in good shape, athletic and active.  He was a sports reporter for a newspaper in Virginia, and he had chest pains at age 47 and was taken to a hospital and he died while they had him cracked open on the operating table.  He ate junk food every day for lunch, i.e. McDonalds, etc.

It is not only food that makes a difference going into your body.  Since your body is comprised of roughly 84% water, I believe the water you drink is just as important if not more so.
I have been drinking distilled water for about 20 years. Sometimes bottled water, rarely soda, no alcohol. I have found that distilled water makes the best coffee. WHile we didn't do it for health reasons at first (at least not ours) we had found that tap water from the local water plant (which comes from the Missouri River before processing) had a muddy taste in the spring despite the clean test results sent out every year. Believing that pesticides and herbicides might be present, we filtered that for a year before finally switching to distilled. Mrs. Joe and I are on no medication, have no heart or other issues, and are reasonably healthy for our mid 60s.

My tussle with cancer was limited to a nickel sized basal cell carcinoma, and that right on the cheek where I held cell phones for years, with a  few thousand hours of phone time.  (I use the speaker phone, now).
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: DB on March 14, 2020, 12:38:52 AM
I would think some contaminants that have a lower boiling point than water would pass right through the distillation process.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Smokin Joe on March 14, 2020, 01:22:41 PM
I would think some contaminants that have a lower boiling point than water would pass right through the distillation process.
Sure, but you vent those, just like distilling diesel fuel from crude oil.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: DB on March 14, 2020, 03:04:58 PM
Sure, but you vent those, just like distilling diesel fuel from crude oil.

Why wouldn't it condense with the water? (I'm not a chemistry dude...).
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Smokin Joe on March 14, 2020, 04:29:11 PM
Why wouldn't it condense with the water? (I'm not a chemistry dude...).
It would if you didn't vent it.

If it boils off at a lower temperature, you run up to just short of boiling water, vent the vapors, and that way those lighter ends go to atmosphere (unless you have a place or reason to capture them).  Distilling alcohol, you capture (selectively) the alcohol vapors and leave the water behind. Run through that a couple of times you can get up to 90-95% (Everclear) alcohol captured.
Moonshiners do it with pretty basic equipment.

If you switched to a different condenser and continued the the distillation process, with a mite more heat, you could boil the kettle dry and condense distilled water, too, but that isn't the product that pays the bills in a 'shine operation.

Similarly, I have seen video where Indonesians were distilling diesel from crude oil, about a barrel at a time, by smelling the vapor, capturing it and condensing it, leaving the heavier fractions in the pot, so to speak, and letting the lighter ones vent to atmosphere before capture.  It isn't the most environmentally system, but they made a marketable (locally) product on a small scale. It is pretty common in Nigeria, as well, despite being environmentally unfriendly and downright dangerous. Error 404 (Not Found)!!1 (http://www.youtube.com/watch?v=4e3_bkKwgQY#)

Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Bigun on March 14, 2020, 04:30:56 PM
Why wouldn't it condense with the water? (I'm not a chemistry dude...).

Because you let anything coming off before the top of the distillation tower reaches 212 degrees escape to the atmosphere.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: DB on March 14, 2020, 06:51:26 PM
It would if you didn't vent it.

If it boils off at a lower temperature, you run up to just short of boiling water, vent the vapors, and that way those lighter ends go to atmosphere (unless you have a place or reason to capture them).  Distilling alcohol, you capture (selectively) the alcohol vapors and leave the water behind. Run through that a couple of times you can get up to 90-95% (Everclear) alcohol captured.
Moonshiners do it with pretty basic equipment.

If you switched to a different condenser and continued the the distillation process, with a mite more heat, you could boil the kettle dry and condense distilled water, too, but that isn't the product that pays the bills in a 'shine operation.

Similarly, I have seen video where Indonesians were distilling diesel from crude oil, about a barrel at a time, by smelling the vapor, capturing it and condensing it, leaving the heavier fractions in the pot, so to speak, and letting the lighter ones vent to atmosphere before capture.  It isn't the most environmentally system, but they made a marketable (locally) product on a small scale. It is pretty common in Nigeria, as well, despite being environmentally unfriendly and downright dangerous. Error 404 (Not Found)!!1 (http://www.youtube.com/watch?v=4e3_bkKwgQY#)

Got it. So you raise the temperature to just below the water boiling point and keep it there long enough to boil off the lower boiling point contaminants. All before starting the actual water distillation.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Smokin Joe on March 14, 2020, 07:54:41 PM
Got it. So you raise the temperature to just below the water boiling point and keep it there long enough to boil off the lower boiling point contaminants. All before starting the actual water distillation.
Precisely!

You can do similar things with any distillation, what changes are target temperatures for the cooking, or for the condenser. Check out Fractional Distillation (https://energyeducation.ca/encyclopedia/Fractional_distillation), this of crude oil.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: jafo2010 on March 15, 2020, 04:26:00 PM
SmokinJoe...you mentioned you like distilled water  because it makes the best coffee.  Bottomline, distilled water has no taste.  When people first drink it alone, they often comment, oh yuck, this taste terrible.  Fact is, it has no taste.  It has nothing in it to give it taste.  So, with your coffee, you are getting the pure coffee taste.  Everything taste better with distilled water.

When I was young in Pennsylvania,  I can remember going to a spring in the mountains, and you could drink the water coming out of the side of a mountain, and it was cold and it was delicious tasting.  Very refreshing.  The taste was the minerals in the water.  That was in the 1950s. 

In 1980 or 81, Newsweek magazine dedicated an entire issue to water.  The cover had a parched earth map of the USA.  In that magazine, it indicated Ohio was the most polluted, with Pennsylvania right behind it.  It also indicated the entire east coast was terribly polluted, and that the aquafier level of water unsafe to consume.  Farm runoff was the primary reason, pesticides and herbicides largely polluting the aquafier level. 

As I understand it, the human body cannot assimilate and process inorganic minerals.  So, if one consumes inorganic minerals, they build up in the body just like they would a hot water heater.  Over time, they cause problems in the body, contribute to blocked arteries, kidney or gall stones, deposits in the joints, etc.

The woman I bought my first distiller from, she had a severe case of arthritis with deposits in the joints, her hands had huge nubs and were extremely painful.  She started drinking distilled water, and her hands returned to normal.  No more pain, no more meds needed either.  She lived to be 103.

Every time I see someone with bottled water(non distilled), the thought goes through my head that they are shortening their life.  The irony is that if you read the label on a lot of these bottled waters, they put the water through some purifying process, then they turn around and add back minerals for taste.  Ugggh.  I consider this stuff to be almost as bad as tap water.  Then there is the occasional story where the bottled water is discovered to have things in it like benzene, as in Perrier Water.

Loma Linda hospital in California years ago did a study on the 25 leading bottled water companies sold in California and found only one met the quality claimed on the label.  Back then, nearly 30 years ago, 70%+ of the households in California had point of service purification to some level within the home.  Unlike meat, there is no inspection of water producing plants to verify they are producing what they claim.  The best way to know what you are drinking is to control the process within your own home.  Distilled water is the purest form of drinking water.  Reverse Osmosis is the second, but you will find it expensive to replace the filters and the membrane through the years.  Plus, the first drop of RO water is the purest from the system, but the quality declines with each passing gallon, as impurities build up on the filter beds.  Unlike RO, distilled water remains constant in the quality.

To answer questions above, there is a valve for inert gases to escape the process on a distiller, and there is also a post filter to capture anything should it make it that far.  And another consideration, every distiller I bought through the years, I sold for more money than I originally paid for it.  They run forever.  I went from distiller 1 to distiller 2 only to get one with advanced features.  My first one was semi automatic.  One needed to manually set it to how much water you wanted to make, it automatically shutoff.  The second, was fully automatic, with a demand pump, and I had a second faucet at the sink and had my refrigerator hooked up to make distilled ice cubes and chilled water.

If you have ice cubes that are real white or mostly white versus clear, that is the minerals in the water doing that.  Distilled ice cubes are clear. 

I am writing my first book on water to tell my story and some of the case studies of people whose life I influenced in drinking distilled water.  And it is never too late to start drinking distilled water. 

I wish I had before and after photos of my uncle that had a severe case of congestive heart failure.  He was green/gray in color, and his cardiologist told him he was one step away from dropping dead at any time.  He started drinking distilled water in 1992, and he lived another 20 years.  The green/gray look went away after one year of drinking distilled water.
 How many people do you know with extreme congestive heart failure living beyond five years?  Everyone else I knew usually died in five years.

Without exception, everyone I convinced to drink distilled water benefited noticeably with their health and wellbeing.

Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Smokin Joe on March 16, 2020, 12:20:54 AM
@jafo2010 What make/model of distiller do you use? (We have been buying it by the jug, and I'd bet we could pay for the unit in less than a couple of years).
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: jafo2010 on March 24, 2020, 02:14:37 AM
Joe, Just saw this.

I have used a product by the same company since 1979.  They are the leader in the distiller market.  All our embassies use their product, and all the staff at their homes as well.

If you want to check out their product go to    www.mypurewater.com (http://www.mypurewater.com)

They also picked up another brand they are marketing which is cheaper, but it is not the same quality.

If you are interested, I can save you a decent amount of money. 

@jafo2010 I removed personal identifiers from an open thread just in case you didn't want them all over the net. Send that info to Smokin Joe via personal message, please.  MOD4
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: sneakypete on March 24, 2020, 12:30:48 PM
It's not as much fun as you might think it is.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: sneakypete on April 29, 2020, 11:08:54 AM
It's about six months later, how are you feeling now Pete?


@jafo2010

Sorry for the late reply. Just saw your post.

Was doing better,but damned if the chemo brain isn't getting worse. Pressure in my head makes it feel like it wants to explode,and is even affecting my vision.

Think my lungs are filling up again because there is a lot of pressure in my chest,and I am having trouble breathing again.

Had a couple of moments,one right after the other yesterday,where I got so dizzy I thought I was going to faint. At the time I was going inside an Ace Hardware store,and luckily I had a basket to hold onto. Stood still for a few minutes,and it passed.

A hour later I am feeling a "flutter" in my chest again and having more dizzy moments,so I drive a mile to the nearest fire station and they hook me up to a machine that shows my pacemaker is occasionally kicking in to keep my heart beating,but other than than things seem ok. They want to take me to the hospital anyhow,but I refuse,and go back home.

I was sleepy when I got back home so I laid down on the couch to take a nap,and slept between 12-14 hours.

Evidentially I was exhausted from lack of sleep. Probably going to take a nap shortly because I am still sleepy.


Can't remember anything for more than a minute or two before I start forgetting it.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: mountaineer on April 29, 2020, 12:11:26 PM
Let them take you to the hospital @sneakypete , especially if it seems your lungs need to be drained again. Please.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Bigun on April 29, 2020, 12:14:07 PM
Let them take you to the hospital @sneakypete , especially if it seems your lungs need to be drained again. Please.

I second that motion @sneakypete
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: skeeter on April 29, 2020, 12:30:46 PM
@jafo2010

Sorry for the late reply. Just saw your post.

Was doing better,but damned if the chemo brain isn't getting worse. Pressure in my head makes it feel like it wants to explode,and is even affecting my vision.

Think my lungs are filling up again because there is a lot of pressure in my chest,and I am having trouble breathing again.

Had a couple of moments,one right after the other yesterday,where I got so dizzy I thought I was going to faint. At the time I was going inside an Ace Hardware store,and luckily I had a basket to hold onto. Stood still for a few minutes,and it passed.

A hour later I am feeling a "flutter" in my chest again and having more dizzy moments,so I drive a mile to the nearest fire station and they hook me up to a machine that shows my pacemaker is occasionally kicking in to keep my heart beating,but other than than things seem ok. They want to take me to the hospital anyhow,but I refuse,and go back home.

I was sleepy when I got back home so I laid down on the couch to take a nap,and slept between 12-14 hours.

Evidentially I was exhausted from lack of sleep. Probably going to take a nap shortly because I am still sleepy.


Can't remember anything for more than a minute or two before I start forgetting it.

Well dangit, get some rest. And keep us posted.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Gefn on April 29, 2020, 12:31:35 PM
Oh dang @sneakypete

Please feel better. I hate thinking of you being sick.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: sneakypete on April 29, 2020, 01:21:27 PM
I second that motion @sneakypete

Let them take you to the hospital @sneakypete , especially if it seems your lungs need to be drained again. Please.

@mountaineer   @Bigun

There are a couple of problems with this. One is the local docs will stick a needle in my back and drain the lungs,but won't put in a drain tube. Each time they stick a needle in my chest,it costs me a lot of money I don't have to pay the fees because it is considered to be an ER procedure and the VA claims I need to go to a VA hospital to have this done. I am an Agent Orange veteran so I can't buy any supplemental insurance,and medicare doesn't pay it all.

The VA refuses to pay for any of my recent surgeries or operations because I didn't get prior approval. I didn't get prior approval because I went there to the ER in an ambulance,and to get approval I would have had to call a number in another state and asked permission first. I didn't have that number,and frankly,had other things on my mind at that time.

It's irrelevant,anyhow. It's an excuse the VA uses,not an actual reason. I have been through this with them before. They stall and stall until most vets are so afraid of losing their credit that they pay out of pocket to keep the phone calls and letters from happening because they just add stress.

I put my new congresscritter on this a couple of months ago,and have heard nothing from his office. The guy before him died,but he wouldn't have hesitated an instant to get pushy with them if he needed. This guy is new and knows nobody,is owned favors by nobody,and his staff doesn't seem to really care. Maybe I am wrong and they are working in the background? Maybe it is even partially my fault for not following up on it and reminding them once a week?

This is possible because due to chemo brain,I had forgotten all about it until the telephone calls and letters from collection agencies started arriving.

Temporary break. Finish the post in a few minutes.

 Ok,sorta back again.

Another part of the reason is I can't afford to pay for another ER visit,in addition to the doctors fees.

I WILL do this if it gets as bad as it was a year ago,but I'm not there yet,and still hoping the VA kicks in before I have to do it.

It is ridicilous for the VA to insist I drive to another state and back to get a simple procedure done that I can get done at a local hospital. Especially since there is no such thing as driving to a VA hospital for an emergency procedure. You MUST have an appointment for any type of surgery.

Any emergency patient that walks in their door gets put in an ambulance and sent to a local hospital,and I can do that at home and save a lot of time,money,and grief.

BUT......,as I said above,when it gets really bad again,I will go to the local ER to have it done and get billed again. Bad as it is,it is MUCH better than driving a couple of hours and then get so mad I want to choke somebody out. Especially since I no longer have the wind to chase the bastards down.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: sneakypete on April 29, 2020, 01:58:52 PM
@mountaineer   @Bigun  @Gefn  @skeeter

UPDATE!

Just got a email from my congresscritter's office,and it seems that the VA has now agreed to pay THOSE SPECIFIC hospital bills. They are supposed to make an appointment with me soon for me to meet with someone from the hospital to sign papers.

Nothing was said about the other 3 hospitals I was sent to,the surgeons,nurses,and other related fees,but this is,at a minimum,a crack in the dam.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Bigun on April 29, 2020, 02:07:25 PM
@mountaineer   @Bigun  @Gefn  @skeeter

UPDATE!

Just got a email from my congresscritter's office,and it seems that the VA has now agreed to pay THOSE SPECIFIC hospital bills. They are supposed to make an appointment with me soon for me to meet with someone from the hospital to sign papers.

Nothing was said about the other 3 hospitals I was sent to,the surgeons,nurses,and other related fees,but this is,at a minimum,a crack in the dam.

Great news @sneakypete! It's a damned shame veterans have to through all this BS just to get what they need and deserve.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: sneakypete on April 29, 2020, 02:16:45 PM
Great news @sneakypete! It's a damned shame veterans have to through all this BS just to get what they need and deserve.

@Bigun

I  honestly hope I am wrong,but the VA is like every other bureaucracy at the top,concerned with their budget more than anything else. As a result,I suspect it is semi-official,handed down from the top but not in writing,to cut every corner they can cut,even going so far as to try to get vets so pissed off they don't come back again for care.

I quit going to the VA Hospital in the early 70's,when a clerk there finally got me so mad I dragged the bastard across his desk and was in the process of choking him out when the security cops grabbed me.

They then decided I had PTSD (I don't,and never did) so they insisted I attend a "PTSD Rap  Session" (no kidding) to discuss my anger issues,and got so mad there at all the posers telling phony war stories about how stressed they were from the war,that I actually stood up and told them all they were a bunch of bleeping posers who were trying to rip the VA off for early retirement checks,and walked out after telling the shrink leading it that he should be ashamed of himself.

Didn't go back to another VA hospital for several years,and it was a different one in a different state.

BTW,I have GOT to write this. One of the worse offenders there was a guy that was the local president of "Point Man International",a professional PTSD group". Know what his job was during the VN war? He was a freaking radio operator on a Navy Destroyer patrolling offshore of VN. He TESTIFIED (yes,just like at a religious meeting) that he was so scared of the VN paddling out to the ship at night,scaling the sides,and sneaking in to murder him in his sleep that he used to sleep with a bayonet beneath his pillow. Don't ask me where a sailor on a destroyer that is a radio operator in their communications shack found a bayonet. I don't have a clue.

His VP? That guy was  a cook with the 101st Abn Divison that "suffered through " a sapper attack on their main fire base. There he was,1 of thousands,potentially facing off with 10-15 sappers. Imagine the horror,knowing that cooks were prime targets for assassinations,right?
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Bigun on April 29, 2020, 02:21:09 PM
@Bigun

I  honestly hope I am wrong,but the VA is like every other bureaucracy at the top,concerned with their budget more than anything else. As a result,I suspect it is semi-official,handed down from the top but not in writing,to cut every corner they can cut,even going so far as to try to get vets so pissed off they don't come back again for care.

I quit going to the VA Hospital in the early 70's,when a clerk there finally got me so mad I dragged the bastard across his desk and was in the process of choking him out when the security cops grabbed me.

They then decided I had PTSD (I don't,and never did) so they insisted I attend a "PTSD Rap  Session" (no kidding) to discuss my anger issues,and got so mad there at all the posers telling phony war stories about how stressed they were from the war,that I actually stood up and told them all they were a bunch of bleeping posers who were trying to rip the VA off for early retirement checks,and walked out after telling the shrink leading it that he should be ashamed of himself.

Didn't go back to another VA hospital for several years,and it was a different one in a different state.

I have been fortunate enough to have never once visited a VA facility and hopefully never will.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: sneakypete on April 29, 2020, 02:24:23 PM
I have been fortunate enough to have never once visited a VA facility and hopefully never will.

@Bigun

I hope you don't,either.

In all fairness,they are MUCH better today than they were in the 60's and 70's and had all the "Anti VN War" employees and staff. Almost all of those bastards has died or retired by now.

BTW,read my update to the post above this one.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: skeeter on April 29, 2020, 02:55:37 PM
@mountaineer   @Bigun  @Gefn  @skeeter

UPDATE!

Just got a email from my congresscritter's office,and it seems that the VA has now agreed to pay THOSE SPECIFIC hospital bills. They are supposed to make an appointment with me soon for me to meet with someone from the hospital to sign papers.

Nothing was said about the other 3 hospitals I was sent to,the surgeons,nurses,and other related fees,but this is,at a minimum,a crack in the dam.
:thumbsup:
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Smokin Joe on April 29, 2020, 03:00:28 PM
@jafo2010

Sorry for the late reply. Just saw your post.

Was doing better,but damned if the chemo brain isn't getting worse. Pressure in my head makes it feel like it wants to explode,and is even affecting my vision.

Think my lungs are filling up again because there is a lot of pressure in my chest,and I am having trouble breathing again.

Had a couple of moments,one right after the other yesterday,where I got so dizzy I thought I was going to faint. At the time I was going inside an Ace Hardware store,and luckily I had a basket to hold onto. Stood still for a few minutes,and it passed.

A hour later I am feeling a "flutter" in my chest again and having more dizzy moments,so I drive a mile to the nearest fire station and they hook me up to a machine that shows my pacemaker is occasionally kicking in to keep my heart beating,but other than than things seem ok. They want to take me to the hospital anyhow,but I refuse,and go back home.

I was sleepy when I got back home so I laid down on the couch to take a nap,and slept between 12-14 hours.

Evidentially I was exhausted from lack of sleep. Probably going to take a nap shortly because I am still sleepy.


Can't remember anything for more than a minute or two before I start forgetting it.
Go get your ass checked out.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: mountaineer on April 29, 2020, 05:43:32 PM
Nothing the VA does surprises me. My late father was injured aboard ship while in blackout conditions during one of those great battles of WWII - I think Okinawa. Both wrists and a few vertebrae crushed. He battled the VA a good part of his life to get a partial disability, then they'd require him to visit the hospital to see a doctor to confirm that he was still disabled. Unfortunately, he never got a doctor who actually spoke English, so it was hard for him to communicate the message that he was in constant debilitating pain.

Near the end of his life, suffering from dementia, he had to go to the VA hospital in order to qualify for some nursing home assistance, and my mother refused to take him to the one closest their house. It had a terrible reputation. She drove him 2 or 3 hours to another VA hospital which, at the time, was pretty good. In recent years it's become notorious for having patients drop dead from insulin overdoses.  *****rollingeyes*****  So infuriating. Our vets deserve better.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: sneakypete on April 29, 2020, 06:20:03 PM
Nothing the VA does surprises me. My late father was injured aboard ship while in blackout conditions during one of those great battles of WWII - I think Okinawa. Both wrists and a few vertebrae crushed. He battled the VA a good part of his life to get a partial disability, then they'd require him to visit the hospital to see a doctor to confirm that he was still disabled. Unfortunately, he never got a doctor who actually spoke English, so it was hard for him to communicate the message that he was in constant debilitating pain.

Near the end of his life, suffering from dementia, he had to go to the VA hospital in order to qualify for some nursing home assistance, and my mother refused to take him to the one closest their house. It had a terrible reputation. She drove him 2 or 3 hours to another VA hospital which, at the time, was pretty good. In recent years it's become notorious for having patients drop dead from insulin overdoses.  *****rollingeyes*****  So infuriating. Our vets deserve better.

@mountaineer

I got taken off jump status and was undeployable,so I had to leave SF and go to a conventional army unit,and lose my 55 bucks per month in jump pay in addition to never getting to go anywhere.

To give them credit,the army offered me a medical retirement,but I turned it down because I knew if I took that I would never be allowed back into SF again,and I was so foolish I just assumed I would recover in a year or two,and be able to enlist again. No such luck. Not long after I got out,"Agent Orange" became a "thing",and I was automatically barred from enlistment because of it. I know this to be a fact because I tried. They were even going to let me keep my rank.

More to the point,IIRC,I was drawing something like $39 a month in disability pay in 1970,and because I had a formal disability rating,I was not eligible to draw unemployment pay despite paying into it all my life. Even in 1970 you couldn't even eat on 39 bucks a month.

When I finally did get a Agent Orange disability rating of 30 percent around 1977 or so,it was only a 30 percent rating that only paid about 250 bucks. The good news was the VA pulled my 10 percent disabled rating on my back because combined with the 30 percent for Agent Orange they would have had to pay me almost enough money to live on.

The good news is I took the test for the post office exam again,and when they tried to not hire me based on having a bad back,I waved my official US Goobermint medical determination that I no longer had a bad back to them,and they had to hire me. Managed to work long enough for the post office to retire from there.

It has to be said that the VA of today is 10,000 times better than the VA of the 70's was. All the anti-VN war employees of the 60's and 70's have retired now,and even if the medical treatment isn't as good as it should and could be,the vets are treated MUCH better. The typical VA employee of today seems to care,and seem to do the best they can do for the vets.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: mountaineer on April 29, 2020, 06:27:34 PM
It has to be said that the VA of today is 10,000 times better than the VA of the 70's was. All the anti-VN war employees of the 60's and 70's have retired now,and even if the medical treatment isn't as good as it should and could be,the vets are treated MUCH better.
Yeah, my father's worst experiences with them were in the 70s and 80s. The last hospital he went to, in 1993, was pretty good.
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: Fishrrman on April 29, 2020, 06:32:10 PM
I realize I'm dumb, but I'd like to ask:

If treatment in the VA health system is bad, why don't veterans just sign up for Medicare at age 65, and forget about the VA?

Is that prohibited by law, or something?
Title: Re: Share your cancer journey - and any other personal medical experience
Post by: sneakypete on April 29, 2020, 06:46:10 PM
I realize I'm dumb, but I'd like to ask:

If treatment in the VA health system is bad, why don't veterans just sign up for Medicare at age 65, and forget about the VA?

Is that prohibited by law, or something?

@Fishrrman

No,but the problem is most vets are injured while still in their 20's or 30's,and you have to be able to eat and live until 65 to start drawing SS.

Which is what I have done for the most part since I turned 62. SS pays most of it,and I just paid the rest out of my pocket.

I just can't do this when the treatment bills run up over 200 grand. I just don't have the money.

And,on principle,since the US Government promised to pay all my medical bills if I got permanently injured if I would put on a uniform and risk my life,I shouldn't even HAVE to pay it.

I normally just pay the doctors bills out of my pocket not paid by SS because it reduces the stress on me,but there is no way I can pay off bills like this,and as a disabled veteran rated at being 100 percent service-connected disabled now,I shouldn't HAVE to pay it.

I kept MY promises,it's time for the government to keep theirs.