The Briefing Room
General Category => Health/Education => Topic started by: sneakypete on December 21, 2018, 10:59:36 pm
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So......,my shortness of breath suddenly went from being a minor irritation to "I can't walk from the living room to the bathroom without having to sit and gasp for breath when I get there,and rest up to get the strength to walk back to the living room."
So I go to the local Hindu pulmo guy I have been seeing for a few years,and he takes an x-ray and tells me I probably have lung cancer and he needs to do a biopsy immediately. He then asks me what meds I am on,and immediately tells me I need to stop taking the Plavix "right now because I can't operate as long as you are taking it."
I tell him "I can't quit taking it because my heart doc told me I have to take it daily for at least a year after my recent heart surgery (stent) or I could die."
So he laughs,and says "Well,I guess I will see you in a year,then."
My response was "No,you won't. I will be seeing a doctor about this,but it won't be you." because I think a year is too long to wait,and there MUST be an alternative drug I can take. NOT really happy about his cavalier approach to lung cancer.
So I get an appointment through a local family doc to see another pulmonary surgeon,and this guy is all business,despite his dyed hair and hipster "man bun". He comes in the room,sits down,asks me what has been going on,and tells me "I am going to schedule you for a CAT scan tomorrow morning (last Thursday) at the hospital . Let's see for sure what it is we are dealing with before we do anything else,and then come back on Monday so we can go over the results and make plans.",smiles,shakes my hand,and walks out of the room after telling me "See the woman at the front counter and she will give you all the paperwork.
I go have the CAT scan on Friday,and on Monday go back to see him again,and he walks into the room and announces,"Your lungs are full of water and you are drowning. See the woman at the counter for the paperwork to admit you to the hospital tomorrow morning so I can drain your lungs",smiles at me,and says "See you tomorrow!"
By this point,I am loving the HELL out of my new doc. This guy doesn't screw around,and he doesn't schedule your appointments for 2 weeks or 2 months into the future."
I go to the hospital the next morning,and by now I am so weak from lack of oxygen I can't walk in from the nearest handicapped parking space. I get part way,go to my knees,and ask someone passing to have them send a wheelchair out for me. They roll me in to the registration desk and then roll me to the room where the surgery is to take place,and then the doc shows up.
He uses a scalpel to cut a hold in my back,and then sticks a needle connected to a rubber hose into my right lung. The hose is connected to a 1 liter bottle I had already seen and laughed about while asking him "You don't really think you need a jar that big do you?",and he tells me "Sometimes we fill one up." I kinda thought he was screwing with me on that one because where is the room for air if you have that much water in your lungs?
Damned if he didn't drain 1 and 3/4 liters of water out of just my right lung. No kidding. Looked like beer or urine. Look at a 2 liter bottle of Pepsi for reference to how much fluid I had in my right lung. It still seems impossible to me,but I saw the jars.
He finishes up and tells me he is going to send it off for analysis and will see me next Wednesday to discuss what he finds out and to make future plans. For all I know I might actually have lung cancer,but I would love to know how the Hindu doc could see a spot on my lungs when they were covered with water,and not see the freaking water.
I do know that I am going to try to talk him into draining the left lung,too.
VERY little pain involved. Maybe a bee sting. The most discomfort came after a lot of the water had drained out,and suddenly there is a vacuum in my lung and I am not breathing deeply enough to fill it. When I do breathe that deeply,it makes me want to cough.
BUT.......,after sitting around for 15-20 minutes,damned if I didn't get up out of the wheel chair and walk to another room to give blood,and then walk to my truck in the parking lot!
I also slept like a clubbed baby seal when I got home. Hadn't been sleeping worth a damn because of the pressure on my heart when I laid down.
I am once again panting for breath and and exhausted,and it worries me some. I am hoping it comes from me being so far down it will take me a few days to recover enough to get my endurance back. Or at least some of it.
Besides the hack Hindu doc screwing me around and wasting my time and money,the freaking VA has been giving me inhalers for the last couple of years despite me telling them the inhalers don't work worth a damn.
It really boils down to being lucky enough to find the right doctor,doesn't it?
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I really didn't know where you were going with this .... and was a little hesitant to keep reading @sneakypete . But I'm glad I did and even happier you're okay.
Yes, a doctor sometimes leads you deeper into the pit. I myself am a firm believer in second and third opinions. One way or the other they are always helpful.
And as of this moment I know I will be much more receptive to and respectful of any man bun doc in my future. Promise. happy77
:bighug:
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I really didn't know where you were going with this .... and was a little hesitant to keep reading @sneakypete . But I'm glad I did and even happier you're okay.
Yes, a doctor sometimes leads you deeper into the pit. I myself am a firm believer in second and third opinions. One way or the other they are always helpful.
And as of this moment I know I will be much more receptive to and respectful of any man bun doc in my future. Promise. happy77
:bighug:
@Right_in_Virginia
Thanks! I post stuff like this to maybe help others who are sick and as ignorant of medical care as I am. You never know who might read it and suddenly realize "HEY! I have been having the same problem,and need to contact a pulmonary surgeon and find out what the problem is!"
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Glad that you are finally getting the right treatment!
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@Right_in_Virginia
Thanks! I post stuff like this to maybe help others who are sick and as ignorant of medical care as I am. You never know who might read it and suddenly realize "HEY! I have been having the same problem,and need to contact a pulmonary surgeon and find out what the problem is!"
:thumbsup:
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Glad that you are finally getting the right treatment!
@EdJames
Thanks!
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@EdJames
@sneakypete
Sneaky, bless the doctor who knew what to do and did it quickly. Seven months ago, I couldn't lift my arms, couldn't sleep due to pain, so painful getting into bed and out of bed and throughout the night, just like you, but different reason. Family doctor said, "You need an Ortho/Pain Specialist. He didn't fool around and mess with this, immediately sent me to the right doc. I've been through this doc putting me to sleep four different times, entering my spine in about the center, then running a needle up my spine to my neck and putting in steroids. The pain was gone the next day. I could use my arms and sleep without pain.
This doc gave my arms back to me, I could use them, and I could sleep without pain. How much is that worth? How much is it worth for your doc giving your breathing back to you? I was an EMT (Emergency Medical Technician) and I know from what you say you were drowning more and more each day - you were dying.
Sneaky, I am glad you are alive and let me know what the doc finds out, PM me and I mean that. Let's discuss living and how precious our time is.
Marcella
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@sneakypete
I’m so sorry this happened to you. I’m glad you are doing better now. I wish doctors would listen to their patients and have a little hubris instead of G-d complexes that they know everything and anything. And we know nothing
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@sneakypete
Glad you are doing better! Had no idea anything like this was going on and cannot help but wonder if anyone has advised you as to why you had so much fluid in your lungs to begin with.
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@sneakypete
I was an EMT (This doc gave my arms back to me, I could use them, and I could sleep without pain. How much is that worth? How much is it worth for your doc giving your breathing back to you?
That's almost like asking "What is the smile of a child worth?" Some things are beyond pricing.
Emergency Medical Technician) and I know from what you say you were drowning more and more each day - you were dying.
I went from being ok to barely able to walk in less than 3 weeks. I suspect I would have died within 2 weeks if I hadn't gotten lucky and found the right doctor. And that's all it was,pure luck. Better to be lucky than smart any day of the week. The truth is I was so oxygen-deprived I was having trouble thinking.
Sneaky, I am glad you are alive and let me know what the doc finds out, PM me and I mean that. Let's discuss living and how precious our time is.
Marcella
My plan is to see if I can still find this thread,and then post any future developments here so other people can learn from my experiences.
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@sneakypete
I’m so sorry this happened to you.
Thanks,but in a way I am glad it happened because I WAS lucky enough to survive it,and maybe I can spread the word and help someone else survive it. This stuff creeps up on you so slowly you are not really aware of what is happening. You think that if you stay inside and take care of yourself that it will pass,but with this stuff it is YOU that passes,not the disease. If it had taken me a few more days to see the right doctor,it would have probably been too late.
One of the few negatives of living alone is that you have no one to nag you to do what you need to do.
Of course,that is also one of the big bonuses of living alone.
Ironically enough,the doctor I went to see to get the referal is my ex's oldest daughter. She recently graduated from medical school and opened a family clinic.
I’m glad you are doing better now. I wish doctors would listen to their patients and have a little hubris instead of G-d complexes that they know everything and anything. And we know nothing
Well,in this case the doc knew everything,and I didn't know squat. I would have bet it would be impossible to drain almost 2 liters of water from ONE lung. I would have believed a tea spoon full,but no way in hell would I have believed 1-3/4 liters. It still doesn't make any sense to me,and I saw the bottles. In fact,it was seeing those bottles that finally convinced me I had been dying in slow-motion.
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@sneakypete
Glad you are doing better! Had no idea anything like this was going on and cannot help but wonder if anyone has advised you as to why you had so much fluid in your lungs to begin with.
@Bigun
I have been wondering about the how and why myself. The new pulmo guy said to wait until the results of the fluid he drained come back,and then we will discuss future plans.
What gives me brain freeze is that no one before this guy even suspected I had fluid in my lungs. How is that even possible?
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@sneakypete
Glad you're ok you old curmudgeon! Merry Christmas and best wishes for a Happy and Prosperous New Year!
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@Bigun
I have been wondering about the how and why myself. The new pulmo guy said to wait until the results of the fluid he drained come back,and then we will discuss future plans.
What gives me brain freeze is that no one before this guy even suspected I had fluid in my lungs. How is that even possible?
@sneakypete
Yeah! That would get my attention as well. Doesn't make any sense at all.
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@sneakypete
Oh, Pete...I had no idea. My best wishes are with you at this tough time....
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@sneakypete
Glad you're ok you old curmudgeon! Merry Christmas and best wishes for a Happy and Prosperous New Year!
@SZonian
Thanks,and the same to you.
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@sneakypete
Oh, Pete...I had no idea. My best wishes are with you at this tough time....
@Cyber Liberty
Thanks!
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@SZonian
Thanks,and the same to you.
@sneakypete Hang in there bro!
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Hope you come through it Pete... We're all pullin for ya!
:beer:
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@sneakypete, I had wondered what was going on with you. I figured it was just an attack of curmudgeon. Sorry I was wrong, and I'm very glad you got it figured out.
034
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Wishing you a sneaky, speedy, very full recovery with minimum discomfort, anxiety, etc.
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@sneakypete Glad you found someone who knows what the hell they're doing.
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@sneakypete
Wishing you the very best, my friend! I hope you're not alone and that you have people upon which you can depend until you get through this.
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@sneakypete
Don't you Dare up and die on me or I'll never speak to you again.
As it is there's only 'bout 8 or 9 people here who unfailingly make Sense to me and you're up very high on that list.
As for Docs missing this, Nowhere beyond the field of Big Medicine is the old saw of Buyer Beware more applicable.
Gotta watch them like a hawk and then go home, get on line and Check out what the want to do or not do.
And remember that most of them get their 'continuing medical education' through the advertorials in the magazines they litter their waiting rooms with.
The amount of dirty money that changes hands between Docs and Drug Co. Reps is Staggering.
Really glad you got this correctly diagnosed and dealt with.
Hang in there.
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@sneakypete
Glad you are doing better! Had no idea anything like this was going on and cannot help but wonder if anyone has advised you as to why you had so much fluid in your lungs to begin with.
See if the inhalers did it.
Wouldn't surprise me.
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@sneakypete
I had no idea you were going through this. I am glad you found a good doctor who was able to provide you with at least some short -term relief, and hope the new year will bring you continued health improvements.
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@sneakypete
You describe a horrible and frightening condition. I pray you are on the road to recovery. Lando
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@EdJames
Thanks!
Hoping that they can find out why you "filled up" like that too!
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See if the inhalers did it.
Wouldn't surprise me.
Wouldn't surprise me either.
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I post stuff like this to maybe help others who are sick and as ignorant of medical care as I am.
Well, I'm glad you did. Also glad you found the right doctor! Please continue to let us know how you're doing.
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@sneakypete
You describe a horrible and frightening condition. I pray you are on the road to recovery. Lando
Damn! It's old home week!
MERRY Christmas @Lando Lincoln !!! 7777sleigh
GREAT to see you here again!
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Well, I'm glad you did. Also glad you found the right doctor! Please continue to let us know how you're doing.
@mountaineer
Me to! But I'm not worried about him now because as a brother in arms I know @sneakypete is too damned mean to die like that!
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Me to! But I'm not worried about him now because as a brother in arms I know sneakypete is too damned mean to die like that!
No argument from me! :laugh:
Seriously, though, it's such a relief to hear Pete got the treatment he needed. Having spent years going to various doctors for my own ailments and finding very few who even wanted to listen, I enjoy a "feel good" story like this.
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@roamer_1 @Sanguine @truth_seeker @RoosGirl @DCPatriot @To-Whose-Benefit @BassWrangler @Lando Lincoln @EdJames
I thank you all for your concern and well-wishes,but unless things don't continue to go well I won't have anything else to report until after I see the pulmonary surgeon again on the 8th of Jan.
In the meantime I am trying to stay out of the cold,get some sleep,and am taking anti-congestion tablets to help me cough up slime now that I have air to cough it up,
"See" you all here again on the 9th.
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@sneakypete
I'm sure glad that you seem to be in the right hands now. Make sure you give a good word to that doc back to that family doc that suggested him to you.
We had a insurance mix-up at my doc's office I've been going to for some 25 yrs. When my wife went for blood work they wouldn't accept our insurance anymore. I should have asked around for a good family doc to go to. Instead I looked for who was close that accepted our plan. The very day I called to set up an appointment for my wife, I fell down the attic stairs and ripped open my hand and arm on that damn folding stair assembly. So I went to that new doc. He butterflied me up and said come back the next day. I came back and he said I should go to the emergency room. He wouldn't even stitch me up.
My wife went in to him for the blood work and they pushed her to take a genetics test. She saw no reason for it, but since they were really pushing her she acquiesced. When the lab bill came in it showed a $28,000 bill for that genetics test alone. The insurance would cover around $800 of it. My wife exploded on that doc and they agreed and finally zeroed out our bill for that test.
That was the last dealings we had with that doc. And it turned out our insurance was accepted by our old doc all along.
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@sneakypete
I'm sure glad that you seem to be in the right hands now. Make sure you give a good word to that doc back to that family doc that suggested him to you.
We had a insurance mix-up at my doc's office I've been going to for some 25 yrs. When my wife went for blood work they wouldn't accept our insurance anymore. I should have asked around for a good family doc to go to. Instead I looked for who was close that accepted our plan. The very day I called to set up an appointment for my wife, I fell down the attic stairs and ripped open my hand and arm on that damn folding stair assembly. So I went to that new doc. He butterflied me up and said come back the next day. I came back and he said I should go to the emergency room. He wouldn't even stitch me up.
My wife went in to him for the blood work and they pushed her to take a genetics test. She saw no reason for it, but since they were really pushing her she acquiesced. When the lab bill came in it showed a $28,000 bill for that genetics test alone. The insurance would cover around $800 of it. My wife exploded on that doc and they agreed and finally zeroed out our bill for that test.
That was the last dealings we had with that doc. And it turned out our insurance was accepted by our old doc all along.
@Elderberry
Unfortunately there is a LOT of that going on in the medical field.
The pulmonary surgeon I fired had started demanding payment in advance at each visit. Even from people like me who had been seeing him for years and never had a late or missed payment.
Neither the new pulmonary surgeon or anyone on his staff has even mentioned the words "bill payment" yet.
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@sneakypete Glad to here you got some relief and hoping the news you get back from the analysis is positive. It's important to remember that doctors aren't God, even if some of them think so, and it's our prerogative to find another practitioner if we aren't happy with the one we have seen. As you have shown us, that can critically important to our well being and even our lives.
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I thank you all for your concern and well-wishes,but unless things don't continue to go well I won't have anything else to report until after I see the pulmonary surgeon again on the 8th of Jan.
@sneakypete , plz ping me to new events. Hope it goes good.
In the meantime I am trying to stay out of the cold,get some sleep,and am taking anti-congestion tablets to help me cough up slime now that I have air to cough it up,
If you want to hack it up and get air, try thyme tea.
Only fresh thyme, about a handful in 2 to 3 quarts water... bring to a rolling boil for 5 minutes, off heat, let steep over night. Strain and refrigerate. Makes a strong mix. ease into it to see where you are with it (start with a shot or so and see what it does to you), and dilute accordingly. Serve hot w. honey for sweetener (provides relief to throat and anti-bacterial properties).
Most stuff I know works on nasal activity, but thyme works on the lungs. you'll get better air, and you'll want to cough, if you've the air to push it out. I fixed a medium case of pneumonia this spring with it.
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I am sorry to hear this @sneakypete . But so very glad you found a good dr.
Please update when you are able to.
Stay safe.
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@sneakypete
We butt heads more often than not, but wishing you the very best in this, cause this is precious life and it is far more important than any of this silly futility arguing we do on a web site. I pray you recover enough to bang heads for many years to come, and come to accept something very special to my heart so it would be even longer.
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So no wonder you have been more ornery than usual with me. LOL
Praying for successful treatment and a speedy recovery.
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@Right_in_Virginia @EdJames @Victoria33 @Freya @Bigun @SZonian @Cyber Liberty @roamer_1 @Sanguine @truth_seeker
@RoosGirl @DCPatriot @To-Whose-Benefit? @BassWrangler @Lando Lincoln @mountaineer @Elderberry @GT Hawk @berdie
@Sighlass @Applewood
Update.
Back home a couple of hours ago.
Good news is I do not have lung cancer. Bad news is I do have other problems,and will list them below.
#1 Had water in my lungs again,and had it drained again. Got a quart and a half this time. The doc is sending it off to be analyzed,but what was drained before had no cancer cells,so there is no reason to believe this might.
#2 I need to find out WHY my lungs keep filling with fluid,and where the fluid is coming from,starting from the fluid in my stomach. Which means I need to see a Gastroenterologist to have my stomach drained,the fluid analyzed,and what is causing it. I will get an appointment with one tomorrow.
#3: Abdomen and legs are still swollen from fluid. Have an appointment with my pulmo surgeon on Tuesday,and my heart surgeon next Wednesday
#4 I need to find a lymph gland specialist because the lymph glands in my groin are swollen,and since I am an Agent Orange Veteran and lymph glands are a favorite place for cancer to hide and grow I need to get this diagnosed pretty quickly. I will see about getting an appointment with a local clinic that specializes in this tomorrow.
#4 Until I take the three steps above this problem is only likely to get worse or cause other things to go bad. I can't accept half-measures and "probably good enough" answers. I need to take them on one by one to treat them and eliminate them as problems.
IF I find out there are problems and what they are as well as what to do about them,I will post the answers as I discover them,as well as any treatments I get and how effective it is.
There is a very good possibility those of you reading this have already read and heard more about this than you want to know,so I won't be doing updates on this subject unless there is a demand to hear them.
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@sneakypete
The prime demand is that Whatever any Doc tells you, or orders for you, the minute you get home you get online and Check It Out.
Understand that most of these people sell pills and procedures over and above actual patient care.
Best Pete.
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@Right_in_Virginia @EdJames @Victoria33 @Freya @Bigun @SZonian @Cyber Liberty @roamer_1 @Sanguine @truth_seeker
@RoosGirl @DCPatriot @To-Whose-Benefit? @BassWrangler @Lando Lincoln @mountaineer @Elderberry @GT Hawk @berdie
@Sighlass @Applewood
Update.
Back home a couple of hours ago.
Good news is I do not have lung cancer. Bad news is I do have other problems,and will list them below.
#1 Had water in my lungs again,and had it drained again. Got a quart and a half this time. The doc is sending it off to be analyzed,but what was drained before had no cancer cells,so there is no reason to believe this might.
#2 I need to find out WHY my lungs keep filling with fluid,and where the fluid is coming from,starting from the fluid in my stomach. Which means I need to see a Gastroenterologist to have my stomach drained,the fluid analyzed,and what is causing it. I will get an appointment with one tomorrow.
#3: Abdomen and legs are still swollen from fluid. Have an appointment with my pulmo surgeon on Tuesday,and my heart surgeon next Wednesday
#4 I need to find a lymph gland specialist because the lymph glands in my groin are swollen,and since I am an Agent Orange Veteran and lymph glands are a favorite place for cancer to hide and grow I need to get this diagnosed pretty quickly. I will see about getting an appointment with a local clinic that specializes in this tomorrow.
#4 Until I take the three steps above this problem is only likely to get worse or cause other things to go bad. I can't accept half-measures and "probably good enough" answers. I need to take them on one by one to treat them and eliminate them as problems.
IF I find out there are problems and what they are as well as what to do about them,I will post the answers as I discover them,as well as any treatments I get and how effective it is.
There is a very good possibility those of you reading this have already read and heard more about this than you want to know,so I won't be doing updates on this subject unless there is a demand to hear them.
Just getting caught up, here. Glad you got a good doc, hope you find out what's causing the fluid accumulations and that something can be done about that aside from installing a spigot to drain it...
Wishing you the best.
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@sneakypete
Good to see you back here, sir. Still keeping up those prayers for you. Praying the root cause of your breathing trouble can be found and successfully treated and your lymph nodes test negative. Sounds like your new doctor is on the ball.
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Please do keep us updated.
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@Right_in_Virginia @EdJames @Victoria33 @Freya @Bigun @SZonian @Cyber Liberty @roamer_1 @Sanguine @truth_seeker
@RoosGirl @DCPatriot @To-Whose-Benefit? @BassWrangler @Lando Lincoln @mountaineer @Elderberry @GT Hawk @berdie
@Sighlass @Applewood
Update.
Back home a couple of hours ago.
Good news is I do not have lung cancer. Bad news is I do have other problems,and will list them below.
#1 Had water in my lungs again,and had it drained again. Got a quart and a half this time. The doc is sending it off to be analyzed,but what was drained before had no cancer cells,so there is no reason to believe this might.
#2 I need to find out WHY my lungs keep filling with fluid,and where the fluid is coming from,starting from the fluid in my stomach. Which means I need to see a Gastroenterologist to have my stomach drained,the fluid analyzed,and what is causing it. I will get an appointment with one tomorrow.
#3: Abdomen and legs are still swollen from fluid. Have an appointment with my pulmo surgeon on Tuesday,and my heart surgeon next Wednesday
#4 I need to find a lymph gland specialist because the lymph glands in my groin are swollen,and since I am an Agent Orange Veteran and lymph glands are a favorite place for cancer to hide and grow I need to get this diagnosed pretty quickly. I will see about getting an appointment with a local clinic that specializes in this tomorrow.
#4 Until I take the three steps above this problem is only likely to get worse or cause other things to go bad. I can't accept half-measures and "probably good enough" answers. I need to take them on one by one to treat them and eliminate them as problems.
IF I find out there are problems and what they are as well as what to do about them,I will post the answers as I discover them,as well as any treatments I get and how effective it is.
There is a very good possibility those of you reading this have already read and heard more about this than you want to know,so I won't be doing updates on this subject unless there is a demand to hear them.
Thanks for the update, Pete. It is good that you are in the process of getting the symptoms (of something!) analyzed. Big crowd of folks here that care about you and are keeping you in our thoughts and prayers for a positive outcome for you. Please keep us updated as you can.
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@sneakypete
The prime demand is that Whatever any Doc tells you, or orders for you, the minute you get home you get online and Check It Out.
Understand that most of these people sell pills and procedures over and above actual patient care.
Best Pete.
@To-Whose-Benefit?
AMEN,AMEN,AMEN!
Little do they know,but I have a secret weapon they don't know about to advise me. A former career SF Medic that went to medical school and is now a doctor. If we lived in the same state he would treat me for free,but what he is doing now is advising me and making suggestions.
You would have to know how smart and how sincerely these people dedicate themselves to anything they take on to fully understand what this means. It's almost like having a Super Power looking over your shoulder.
If any of you ever go "doctor shopping" and discover any of the doctors you are considering used to be a Special Forces medic,THAT is the guy you want to pick. Trust me on this.
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@sneakypete I’m glad your doctor and your friend seem to be able to figure out what is wrong I hope they figure out what is wrong and fix it fast.
I wish you lived near me so I could bring over some chicken soup.
Didn’t know you served. :patriot: bless you sir.
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#2 I need to find out WHY my lungs keep filling with fluid,and where the fluid is coming from,starting from the fluid in my stomach. Which means I need to see a Gastroenterologist to have my stomach drained,the fluid analyzed,and what is causing it. I will get an appointment with one tomorrow.
#3: Abdomen and legs are still swollen from fluid. Have an appointment with my pulmo surgeon on Tuesday,and my heart surgeon next Wednesday
@sneakypete
I know this sounds overly simple, but don't forget to get horizontal as often as you can...
I don't have troubles at your level, but I do have drainage issues... Often pain will drive me to sit in a chair for long periods, to include sleeping in the chair... Over a fairly short amount of time (some days), being continually upright, my legs will begin to become painfully swollen and my lungs will begin to gather fluid... It greatly exacerbates my existing problems.
The solution for me is to literally get horizontal for some long period of time... If I wind up sleeping in the chair all night, I will make it a point to go lay down for an hour or more, say half an hour on each side...
It can be incredibly uncomfortable at first - the advantage for my lungs in being able to eject fluids can be rather uncomfortable for breathing, with a lot of coughing and hacking and expectoration, but I will persist, and eventually things begin to clear... Likewise, lower legs and feet get uncomfortable and tingly, as fluids start to move, but I persist and eventually things get moving and comfort returns.
Mine is driven by pain, but I can imagine your breathing problems often drive you to remain vertical too, perhaps exacerbating things... Don't forego simple solutions.
Best wishes, Pete. Get better!
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@sneakypete I’m glad your doctor and your friend seem to be able to figure out what is wrong I hope they figure out what is wrong and fix it fast.
I wish you lived near me so I could bring over some chicken soup.
Didn’t know you served. :patriot: bless you sir.
@Freya
Thanks,Freya.
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Sounds like you're in good hands, Pete. Hoping for a resolution soon!
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Sounds like you're in good hands, Pete. Hoping for a resolution soon!
@mountaineer
Thanks.
Once I get this stuff resolved,I will post what was needed.
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https://www.mayoclinic.org/diseases-conditions/pulmonary-edema/symptoms-causes/syc-20377009 (https://www.mayoclinic.org/diseases-conditions/pulmonary-edema/symptoms-causes/syc-20377009)
My sister had something similar and it was related to mold in the HVAC system at work. She works for a veterinarian. She, of course, still works for the Vet and still has issues. Never care about someone's problems more than they do.
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@mountaineer
Thanks. Once I get this stuff resolved,I will post what was needed.
@sneakypete
I don't know how old you are, but when older people retire, they think they will have time for whatever they want to do; however, after retirement, your time is used up by having doctor appointments.
Didn't know you are an agent orange survivor. You have great courage - God bless you.
Marcella
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Hope it all goes well for you, @sneakypete ! :patriot:
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@sneakypete, keep me on the updates list.
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@sneakypete
I don't know how old you are, but when older people retire, they think they will have time for whatever they want to do; however, after retirement, your time is used up by having doctor appointments.
@Victoria33
LOL! I spent close to 15 years traveling around the country on my Harley or in a old pu after getting out of the army in 1970,doing what I wanted to do when I wanted to do it with no concern whatsoever about what anyone thought or how much money I was making. I'd stop somewhere to eat,get to talking with a waitress,and end up staying there for a few days,or even a month or so,and then hit the road again. I took no shit from neither man nor beast,and *I* was the one that decided my destiny. I was a Free Man in every sense of the word.
It was 1985 before I got my first steady job. Hell,it was 1985 before I had an actual mailing address of my own. I used my parents address,and would occasionally come home for a few months at a time to check on them to see if they needed anything,then I would get bored and hit the road again.
I now have a house on multiple acres on an island and the house and land are paid for and in my name. Other than payments on a new truck,I don't really owe anyone a damn thing,and I can call GM any day of the week and tell them to come get THEIR truck out of MY yard and be done with that debt if I want. I do have other trucks that are paid for,including a 4x4 diesel 06 3/4 ton GMC. I bought the new truck so I wouldn't have to drive the 06 in bad weather. I LOVE that diesel truck!
Still have my Harley too,although I am no longer limber enough to get on it and go anywhere. Still,I can't walk past it in the shop without smiling.
So,"No,I am not really worried about living a life of regrets as life slips away. My only regret is I can't do it again. The mind is willing,but the body is too beaten up.
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@sneakypete
It sounds like you have your hands full, lining up all the doctors. It sure would be nice if they could coordinate together so you could come in once and they would all take turns checking you out. Then it would be like a racer pulling into the pits.
Keep us all posted!
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I started at Appalachian State in 1976 and the town was eat up with hippies. Kinda funny because that fad was supposed to have already run its course. They were living in ratty apartments, smoking weed, eating lentils, not working, girls in granny dresses everywhere, playing music for change downtown. I moved into one of the apartments with a former Marine Recon named George. George never closed the door of the apartment at night but kept a machete under the bed. He informed me that all the hippies were former military, about half were Vietnam vets. All of them had a wooden trunk(footlocker?) in the living area, always with a padlock. George said I didn't want to know what was in there. By the time I graduated, the hippies had either opened a shop in the area or learned a trade and moved on.
I told my dad about it and he admitted he gambled professionally for 5 years after he got out of WW2.
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@sneakypete
It sounds like you have your hands full, lining up all the doctors. It sure would be nice if they could coordinate together so you could come in once and they would all take turns checking you out. Then it would be like a racer pulling into the pits.
Keep us all posted!
@Elderberry
No big deal. I am retired,and as long as I am sick and unable to work in my shop,I don't have anything else to do,anyway. So I might as well irritate a few doctors to try to keep myself amused. Plus there are nurses to look at and flirt with.
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I started at Appalachian State in 1976 and the town was eat up with hippies. Kinda funny because that fad was supposed to have already run its course. They were living in ratty apartments, smoking weed, eating lentils, not working, girls in granny dresses everywhere, playing music for change downtown. I moved into one of the apartments with a former Marine Recon named George. George never closed the door of the apartment at night but kept a machete under the bed. He informed me that all the hippies were former military, about half were Vietnam vets. All of them had a wooden trunk(footlocker?) in the living area, always with a padlock. George said I didn't want to know what was in there. By the time I graduated, the hippies had either opened a shop in the area or learned a trade and moved on.
I told my dad about it and he admitted he gambled professionally for 5 years after he got out of WW2.
@Restored
I haven't been in western NC for years,but I strongly suspect those people are still there. Look for people with Elizabeth Warren bumper stickers,and there they are.
Yeah,sometimes when you leave a lifestyle that is very intensive for a lifestyle more relaxed,you need some time to get your mind to adjust.
Or at a minimum fool people into thinking you have adjusted. It's all about learning local standards.
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Thanks for the update, Pete. It is good that you are in the process of getting the symptoms (of something!) analyzed. Big crowd of folks here that care about you and are keeping you in our thoughts and prayers for a positive outcome for you. Please keep us updated as you can.
@EdJames @sneakypete
:amen: :amen: and :amen: to all you said!
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@sneakypete @Smokin Joe
Thanks for the update / ping.
Can only pass on my best wishes and you're in our prayers that the docs will figure this out and help to get you squared away Pete.
Stay strong.
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Hang in there @sneakypete ! Hopefully they will find out the cause and cure it soon.
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@sneakypete
Let me know how this turns out.
I have COPD, and having another wonderful bout with bronchitis as I type this, went to the doctor yesterday for the usual.
Antibiotics, steroids and prescription cough syrup. still at work yesterday and today though.
(Kind of getting used to it).
Similar experience with out the drainage issues, where I couldn't take 4 steps without losing my breathe, and spent 4 days in the hospital for that one.
I also started with the rescue inhaler quite a few years ago, Spiriva added 2 years ago and Symbicort add 1 year ago.
I don't think they are changing much of anything as far as I can tell.
I do live in a soupy climate, to be sure (Houston area).
Lots of mold, pollen, and allergy issues here in the area.
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Mulled around thread, went and picked up my meds from the doctor only to come back to this tread. How to say something without offending.
To heck with it, Praying for ya Sneaky and not just for getting better of the lung problem. Praying one day you will pray for me and my family back (Lord knows we need the prayers too). It was good to hear the fight in your voice over this condition, that is a good sign.
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Mulled around thread, went and picked up my meds from the doctor only to come back to this tread. How to say something without offending.
To heck with it, Praying for ya Sneaky and not just for getting better of the lung problem. Praying one day you will pray for me and my family back (Lord knows we need the prayers too). It was good to hear the fight in your voice over this condition, that is a good sign.
@Sighlass
I wish you and yours nothing but happiness and good health. That's not good enough?
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@Victoria33
LOL! I spent close to 15 years traveling around the country on my Harley or in a old pu after getting out of the army in 1970,doing what I wanted to do when I wanted to do it with no concern whatsoever about what anyone thought or how much money I was making. I'd stop somewhere to eat,get to talking with a waitress,and end up staying there for a few days,or even a month or so,and then hit the road again. I took no shit from neither man nor beast,and *I* was the one that decided my destiny. I was a Free Man in every sense of the word.
It was 1985 before I got my first steady job. Hell,it was 1985 before I had an actual mailing address of my own. I used my parents address,and would occasionally come home for a few months at a time to check on them to see if they needed anything,then I would get bored and hit the road again.
I now have a house on multiple acres on an island and the house and land are paid for and in my name. Other than payments on a new truck,I don't really owe anyone a damn thing,and I can call GM any day of the week and tell them to come get THEIR truck out of MY yard and be done with that debt if I want. I do have other trucks that are paid for,including a 4x4 diesel 06 3/4 ton GMC. I bought the new truck so I wouldn't have to drive the 06 in bad weather. I LOVE that diesel truck!
Still have my Harley too,although I am no longer limber enough to get on it and go anywhere. Still,I can't walk past it in the shop without smiling.
So,"No,I am not really worried about living a life of regrets as life slips away. My only regret is I can't do it again. The mind is willing,but the body is too beaten up.
This made me smile. I've done nothing so much as you on my bike, but enough to know exactly what you mean when you say "free man".
I hope your feeling well enough soon to at least give that bike a little more road time.
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This made me smile. I've done nothing so much as you on my bike, but enough to know exactly what you mean when you say "free man".
I hope your feeling well enough soon to at least give that bike a little more road time.
@BassWrangler
Thanks.
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@sneakypete - just catching up. Hope the health is on the right side of the curve. Lando
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@sneakypete - just catching up. Hope the health is on the right side of the curve. Lando
@Lando Lincoln
Thanks,
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@Right_in_Virginia @EdJames @Victoria33 @Freya @Bigun @SZonian @Cyber Liberty @roamer_1 @Sanguine @truth_seeker @RoosGirl @DCPatriot @To-Whose-Benefit? @BassWrangler @Lando Lincoln @mountaineer @Elderberry @GT Hawk @berdie @Sighlass @Applewood
UPDATE!
Ok,after going here,going there,and being spoken to in a foreign language spoken by medicos,here is the run down.
1: I have two forms of Stage 4 lymphatic cancer. They are so closely related that they are treated the same way,so I just get the one treatment.
2: Docs say killing it won't be a problem. They say they can almost always kill it with chemo,and if chemo doesn't do the trick,they have a pill that does. If chemo is the light approach and the pill is kept in reserve,I am guessing those are the pills least stolen in every pharmacy everywhere.
Also,I guess "Stage 4 Cancer" doesn't imply what it used to imply,so don't freak out if those words are ever whispered in your ear.
3: Symptoms:
I guess the biggest one was retaining fluid and blowing up like a blowfish. I was retaining so much water in my stomach I could actually hear it slosh around as I hit bumps while driving. For some reason every non-specialist MD I talked with about this for years ignored it. Come to find out,retaining fluid is the key sign you have cancer in your lymph glands.
Early on my feet and legs got swollen,and my stomach got flooded,but once again,the GP docs ignored it. When my left leg got so big it burst open and stared leaking water,all the VA wanted to do was give me fluid pills,and when that didn't work,they wanted to amputate my leg. Now you know why I went to see non-VA doctors.
What caused me to realize I had some sort of problem was when I was gasping for breath,and falling down out in the yard because I had ran out of breath from walking from my house to my truck. Imagine my shock when I went to the ER and they drained 2 QUARTS of fluid out of my right lung. That's right,2 quarts. I was literally drowning in my own fluids.
After having my right lung drained 3 times in a month,I was referred to a doctor "that will fix your problem". Not mention of what the problem was. I am GUESSING that doc knew I had cancer,but he wasn't a cancer doc and didn't want to get sued for a false alarm.
The cancer doc visited me in the ER ahead of the appointment after I checked in due to not being able to breath. She told me she thought she knew what was wrong and that it was "fixable",and to come see her when I got out of the hospital.
Meahwhile,I had another little drama going on that caused some confusion. Irregular heartbeat. My heart was sometimes dropping down to 20 beats per minute. Was in the hospital a couple of times for 3-4 days,and it beat just fine. Finally the heart surgeon just taped a portable heart monitor to my chest that monitored my heart 24/7 for 3 weeks. At the end of 3 weeks I took it off and mailed it to them,and they gave the heart doc the results. The first thing he said to me when I went to see him a few days later was "You are going into the hospital tomorrow to get a Pacemaker Implant. The cancer can wait because if you don't do this now you might not live long enough to get it treated". So,into a hospital in a nearby state I went to have the Pacemaker installed,a bone marrow sample taken from my hip,and for my right lung to get drained once again.
Right up to this point,my lung had been drained of fluid 3 times with no cancer cells found in the fluid,but this time there was. So I guess that technically I now have lung cancer,too. Come to find out the "nodes" in my lung the docs had been refereeing to were lymphatic cancer nodes,and THAT is how my lung was flooding with water. It had been driving me nuts trying to figure out where the hell the water was coming from. Now I know.
4: Waited a week for my Pacemaker surgery to heal up a little,and went into the hospital to have a "port" installed in my left shoulder to take the chemo. I am one of those lucky souls who doesn't have to take radiation treatments.
Had to wait for this to heal before we could start the chemo,but it is healed now and my chemo starts on Monday. I have it pretty easy. I get chemo on Monday and Tuesday once a month for 6 months. At month 3 the doc starts running more tests to see how well I am responding to the chemo. I get the full-strengh chemo on Monday,and on Tuesday they give me a mix that doesn't take as long and that addresses some other issues as well as the cancer.
BIG NEWS!!!!!!!
I have been told they have the chemo mix down now for lymphatic cancer to the point where about half the cancer cells in your body are killed after the first chemo period,and you immediately start to feel better as the swelling and fluid levels start to fall.
How freaking GREAT is that??????
Of course the treatment has to continue,and since there is less to kill,the progress will be less dramatic. The chemo treatment itself has me sitting in a big,comfortable recliner chair and reading a book,looking at movies or whatever on a tablet,or maybe just napping out. It lasts 5+ hours,so it's ok to snack,and they provide the snacks. I can get up and walk around,and go to the restroom if needed. My horror visions of being strapped flat to a hard table with tubes running in and out of me was wildly off-base.
AFAIK,I won't have anything new to report until some time down the road I am declared cancer-free,so I am hoping this will be my last post here on this subject until that time.
I will,of course respond to any posts here on this thread directed to me,and answer then to the best of my ability.
I want to thank you all for your concern and suggestions,and if any of you are having similar problems and need some advise,please PM me and I will do my best to answer them.
BTW,I want to thank Victoria33 for helping me find this thread today so I could post the update. I spent a couple of hours looking for it yesterday with no luck at all.
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@Right_in_Virginia @EdJames @Victoria33 @Freya @Bigun @SZonian @Cyber Liberty @roamer_1 @Sanguine @truth_seeker @RoosGirl @DCPatriot @To-Whose-Benefit? @BassWrangler @Lando Lincoln @mountaineer @Elderberry @GT Hawk @berdie @Sighlass @Applewood
UPDATE!
Ok,after going here,going there,and being spoken to in a foreign language spoken by medicos,here is the run down.
1: I have two forms of Stage 4 lymphatic cancer.
2: Docs say killing it won't be a problem. They say they can almost always kill it with chemo,and if chemo doesn't do the trick,they have a pill that does. If chemo is the light approach and the pill is kept in reserve,I am guessing those are the pills least stolen in every pharmacy everywhere.
Also,I guess "Stage 4 Cancer" doesn't imply what it used to imply,so don't freak out if those words are ever whispered in your ear.
3: Symptoms:
I guess the biggest one was retaining fluid and blowing up like a blowfish. I was retaining so much water in my stomach I could actually hear it slosh around as I hit bumps while driving. For some reason every non-specialist MD I talked with about this for years ignored it. Come to find out,retaining fluid is the key sign you have cancer in your lymph glands.
Early on my feet and legs got swollen,and my stomach got flooded,but once again,the GP docs ignored it.
What caused me to realize I had some sort of problem was when I was gasping for breath,and falling down out in the yard because I had ran out of breath from walking from my house to my truck. Imagine my shock when I went to the ER and they drained 2 QUARTS of fluid out of my right lung. That's right,2 quarts. I was literally drowning in my own fluids.
After having my right lung drained 3 times in a month,I was referred to a doctor "that will fix your problem". Not mention of what the problem was. I am GUESSING that doc knew I had cancer,but he wasn't a cancer doc and didn't want to get sued for a false alarm.
The cancer doc visited me in the ER ahead of the appointment after I checked in due to not being able to breath. She told me she thought she knew what was wrong and that it was "fixable",and to come see her when I got out of the hospital.
Meahwhile,I had another little drama going on that caused some confusion. Irregular heartbeat. My heart was sometimes dropping down to 20 beats per minute. Was in the hospital a couple of times for 3-4 days,and it beat just fine. Finally the heart surgeon just taped a portable heart monitor to my chest that monitored my heart 24/7 for 3 weeks. At the end of 3 weeks I took it off and mailed it to them,and they gave the heart doc the results. The first thing he said to me when I went to see him a few days later was "You are going into the hospital tomorrow to get a Pacemaker Implant. The cancer can wait because if you don't do this now you might not live long enough to get it treated". So,into a hospital in a nearby state I went to have the Pacemaker installed,a bone marrow sample taken from my hip,and for my right lung to get drained once again.
Right up to this point,my lung had been drained of fluid 3 times with no cancer cells found in the fluid,but this time there was. So I guess that technically I now have lung cancer,too. Come to find out the "nodes" in my lung the docs had been refereeing to were lymphatic cancer nodes,and THAT is how my lung was flooding with water. It had been driving me nuts trying to figure out where the hell the water was coming from. Now I know.
4: Waited a week for my Pacemaker surgery to heal up a little,and went into the hospital to have a "port" installed in my left shoulder to take the chemo. I am one of those lucky souls who doesn't have to take radiation treatments.
Had to wait for this to heal before we could start the chemo,but it is healed now and my chemo starts on Monday. I have it pretty easy. I get chemo on Monday and Tuesday once a month for 6 months. At month 3 the doc starts running more tests to see how well I am responding to the chemo. I get the full-strengh chemo on Monday,and on Tuesday they give me a mix that doesn't take as long and that addresses some other issues as well as the cancer.
BIG NEWS!!!!!!!
I have been told they have the chemo mix down now for lymphatic cancer to the point where about half the cancer cells in your body are killed after the first chemo period,and you immediately start to feel better as the swelling and fluid levels start to fall.
How freaking GREAT is that??????
Of course the treatment has to continue,and since there is less to kill,the progress will be less dramatic. The chemo treatment itself has me sitting in a big,comfortable recliner chair and reading a book,looking at movies or whatever on a tablet,or maybe just napping out. It lasts 5+ hours,so it's ok to snack,and they provide the snacks. I can get up and walk around,and go to the restroom if needed. My horror visions of being strapped flat to a hard table with tubes running in and out of me was wildly off-base.
AFAIK,I won't have anything new to report until some time down the road I am declared cancer-free,so I am hoping this will be my last post here on this subject until that time.
I will,of course respond to any posts here on this thread directed to me,and answer then to the best of my ability.
I want to thank you all for your concern and suggestions,and if any of you are having similar problems and need some advise,please PM me and I will do my best to answer them.
BTW,I want to thank Victoria33 for helping me find this thread today so I could post the update. I spent a couple of hours looking for it yesterday with no luck at all.
Congratulations on the fight. Good luck and best wishes.
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@Bill Cipher
Thanks.
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WOW! Thanks for the update @sneakypete. Glad the problem has finally been tracked down and the doctors attacking it. Sounds like they have made a LOT of progress in treating that type of cancer recently and that's great to hear.
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@sneakypete
Thanks for that update, sir. That great winning attitude that I read throughout your post will serve you well and make all the difference in the world!
Onward and upward!! :patriot:
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@Bill Cipher
Thanks.
You are most welcome, and I’m glad to see you fighting.
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WOW! Thanks for the update @sneakypete. Glad the problem has finally been tracked down and the doctors attacking it. Sounds like they have made a LOT of progress in treating that type of cancer recently and that's great to hear.
@Bigun
No kidding. A local elderly woman I swap books with was still getting chemo when I met her. She told me that when she was first diagnosed 5 years earlier she was told there was no cure for that form of cancer,but they would give her chemo and hope to extend her time.
In less than a month a breakthrough had been announced,and her local docs started that treatment. She had her cancer port taken out of her shoulder about 6 months ago after having been found cancer-free and cured.
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@sneakypete, that's some really good "bad-news"! Thank you for the update, and I'm glad you're already feeling better.
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@Bigun
No kidding. A local elderly woman I swap books with was still getting chemo when I met her. She told me that when she was first diagnosed 5 years earlier she was told there was no cure for that form of cancer,but they would give her chemo and hope to extend her time.
In less than a month a breakthrough had been announced,and her local docs started that treatment. She had her cancer port taken out of her shoulder about 6 months ago after having been found cancer-free and cured.
And That is the exact outcome I will ask for in your case my friend!
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WOW @sneakypete so sorry to hear this but the prognosis sounds great..you will have a lot of prayers from TBR members I guarantee!
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Nothing helps the chemo work its miracle like a fighting spirit and a sense of humor @sneakypete You've an abundance of both! And from the sound of it, some pretty damn good docs who are up-to-date on treatment modalities. (Always helpful happy77 )
Praying for your continued recovery. Please post another update when you can. I'll see you around campus in the meantime.
Love ya, Pete ... :bighug:
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@sneakypete
Wishing you the best Pete. 888high58888
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Nothing helps the chemo work its miracle like a fighting spirit and a sense of humor @sneakypete You've an abundance of both! And from the sound of it, some pretty damn good docs who are up-to-date on treatment modalities. (Always helpful happy77 )
Praying for your continued recovery. Please post another update when you can. I'll see you around campus in the meantime.
Love ya, Pete ... :bighug:
@Right_in_Virginia
I will post again when they tell me I am cured or terminal. Probably won't post again otherwise unless someone else is starting this process and has questions
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@sneakypete
We're here standing by you, all the way.
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@sneakypete Glad to hear they not only figured out what is going on with you, but that the prognosis is good. Get well, my friend. Whether you like it or not, I'll keep you in my prayers. :tongue2:
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@sneakypete
You're tough, Pete, and have always be tough. You'll kick its ass right down to the curb.
When you're better, we can talk about your posting style... :laugh:
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Thanks for the update @sneakypete. I'm glad they finally figured it out! I will be keeping you in my prayers.
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Well, that ain't the best of news @sneakypete ... But it's good to know what you're fighting. And it's good to know you have a (surprisingly) good prognosis. Still a long row to hoe. Ain't fun getting drug through that particular knothole, I'd imagine.
Prayers up. We're pulling for ya.
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@sneakypete
My best wishes as well, Pete. Hang tough!
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@sneakypete
Keeping you in my thoughts and prayers that all goes well
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@sneakypete
Making a post here so I can find this thread the next time you want it when you declare yourself free of cancer.
You could relent a little and tell us how you are doing after a few months of treatment. The thread would be easier for me to find and send to you. You know we pray for you every day.
Marcella
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@sneakypete
Making a post here so I can find this thread the next time you want it when you declare yourself free of cancer.
You could relent a little and tell us how you are doing after a few months of treatment. The thread would be easier for me to find and send to you. You know we pray for you every day.
Marcella
@Victoria33
What I did this time is what I should have done last time. I saved the URL to my desktop.
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Keep fighting the good fight, @sneakypete
We'll be thinking you you, (and praying, but don't tell @sneakypete,LOL).
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Hang in there @sneakypete . I trust you'll be back in tip top shape in no time.
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Hoping for a quick and painless resolution of your health issues, pete.
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Bumping this thread for prayers
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Prayers, for sure.
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Prayers, for sure.
:thumbsup:
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Kick its ass, @sneakypete!
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The old goat is always in my prayers, whether he wants them or not.
Be strong @sneakypete
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Hi @sneakypete
Prayers up for you. I'd appreciate it if you'd ping me when this subject comes up, since I have a stake in the Big C game too.
Always trying to learn Something.
And a link to the "Lymph Diet" I remember you mentioning.
Thanks.
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Hi @sneakypete
Prayers up for you. I'd appreciate it if you'd ping me when this subject comes up, since I have a stake in the Big C game too.
Always trying to learn Something.
And a link to the "Lymph Diet" I remember you mentioning.
Thanks.
I am praying for both of you....
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@sneakypete
@To-Whose-Benefit?
My most heartfelt prayers for both of you. Sincerely.
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@sneakypete
@To-Whose-Benefit?
Keeping you both in my prayers as well.
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@mystery-ak
@Lando Lincoln
@Smokin Joe
And I can't Thank all of you near enough, and return your efforts.
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@mystery-ak
@Lando Lincoln
@Smokin Joe
And I can't Thank all of you near enough, and return your efforts.
Prayers to you @To-Whose-Benefit? and @sneakypete.
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@To-Whose-Benefit?
You are in my prayers too.
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@sneakypete
Went to church today - took you with me in thought and said a prayer for you.
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@Right_in_Virginia @EdJames @Victoria33 @Freya @Bigun @SZonian @Cyber Liberty @roamer_1 @Sanguine @truth_seeker @RoosGirl @DCPatriot @To-Whose-Benefit? @BassWrangler @Lando Lincoln @mountaineer @Elderberry @GT Hawk @berdie @Sighlass @Applewood
UPDATE 7 Apr 2019
Yes,boys and girls,there really is such a thing as "Chemo Brain". Unfortunately. I figured I would give a short update while I still have enough mind left to do so. Some people claim it goes away after a few months,and some others say it never goes away. I don't know which is the most common outcome,but I will tell you it is real and not a fun thing or a pleasant future to contemplate. I like to read,and sometimes will read a whole page from a good book now,and not remember a damn thing from that page as I start the next one,and have to go back and read it again. Truth to tell,if it weren't for spell check,I am not sure how much of what I am writing would be understandable.
I have moments during the day when my mind seems as close to normal as it has ever gotten,and am dumber than a damn fence post a few minutes later. Had chemo 4 times now and have 8 treatments left,assuming I agree to keep taking it.
So far I have lost 40 lbs of fluid weight,and need to lose more. The good news is this greatly lessened the pressure on my diaphragm,and it is MUCH easier for me to breath now.
The chemo played hell with my appetite at first. Everything had all the flavor of cold oatmeal. I would find something with some flavor,and after eating it two or three times it would have no taste,either.
Getting my taste buds back,but still don't have much of an appetite for regular meals. Had a craving for french fries this week and ate them 3 times in two days. First time I had eaten french fries in probably 3+ years. Might eat some again today when I go feed the stray cats behind the grocery store.
Went to get the results from my latest chemo blast a couple of days ago,and the surgeon gave me a big smile and said I was doing MUCH better than expected. Going to do a PET scan soon (can't remember when right now) to check the cancer level in my body,and maybe adjust the chemo blast. Seems like I have at least 3 or 4 doctor or hospital appointments every week,and every one of them is 25 or more miles from home. Given that I have virtually no energy at all anymore,even that wipes me out.
Then again,one more treatment and I am half-way trough the chemo treatment,and may even start getting lighter doses if the PET scan comes back favorable.
I just hope I have a mind left when it is all done.
I will update again in a few weeks if there is anything to report,and I can remember to do it.
If you want to be added to this ping list,PM me and I will add your name.
If you want to check back in on your own occasionally,my best advise is to copy and paste the URL above. That was the only way I found it last time.
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That sounds very positive @sneakypete. I've always heard how brutal Chemo is, but it sounds like its having a positive effect on you. Keep working on finding foods that appeal to you, so you can keep up your strength. If french fries are appealing, then try other fried foods to see if they are flavorful to you as well.
If we don't hear back from you, we'll pester you until you do.
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Sounds like good news @sneakypete
I know you don't necessarily believe in the power of prayer, but I do ... and will keep praying for you. happy77 BTW, about this "chemo brain" that's concerning you, I have not noticed it --- and I read every post of yours I can find. Your posts are as wickedly witty and spot on as always.
Keep fighting, Pete .... 6666kiss
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Thanks for the update, sounds like it is working well!!
I agree with RIV, your posts still look like the old SneakyPete posts!! Concise and spot on!!
:patriot:
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@sneakypete
PM later today.
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@sneakypete
Love you, brother! Keep up the fight.
:beer:
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@To-Whose-Benefit?
Yes, please do check in if you're able!
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Your update is encouraging, Pete. Glad to hear a positive report.
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@sneakypete
Your brain must be all right if you can bitch at me and call me a Bush Bot. LOL
Seriously, thank you for the update and for keeping me in the loop. Sounds like there is some positive and/or hopeful news on the health front. Like @Right_in_Virginia and other prayer warriors here, I'm praying for you whether you like it or not. Stay strong, you old goat.
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@sneakypete
It is good to hear, that you have come through it this well, so far.
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Stay strong, you old goat.
@sneakypete
Strong smellin anyway... :tongue2:
Don't worry the brain fog too much... When you stop exposure to all the medical poison and can get your chemical equilibrium back (which may take steps the doc don't have, but your Apache heritage will), acuity will return.
Sounds like a good report
Hang in there!
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@sneakypete
Good news, bro.
Now get a little notebook and write the important stuff in it, if you don't have one already. Keep in in a shirt pocket or where you won't lose it. You are probably already doing that. Use your phone if you have one that fancy.
Keep getting well, and I'll keep praying for your ornery ass. :patriot:
Don't worry so much about losing a little cognitive function, you can cut a few percent and still be way ahead of most of the planet, even if it's permanent. Besides, there's plenty of folks around who'll tell you if they think you got something wrong... :tongue2:
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@sneakypete
Strong smellin anyway... :tongue2:
Don't worry the brain fog too much... When you stop exposure to all the medical poison and can get your chemical equilibrium back (which may take steps the doc don't have, but your Apache heritage will), acuity will return.
Sounds like a good report
Hang in there!
@roamer-1
I am reading and hearing mixed reports about that. It all depends on your health when you got the cancer,what type of cancer it is you have,and the chemo mix you have to take.
It was real minor with me at first. Wasn't even sure it was a real "thing". Then it got worse and remained with me longer. I have spells where I am normal for me,and then I will get hit with several hours of confusion before going back to "normal" again,but very,very tired.
What worries me is I am only a fourth of the way through my projected treatment,and everybody says the last couple of chemo treatments hit you the hardest.
I never expected this to be fun,but I was expecting stuff like throwing up,not confusion.
Due for a PET scan soon,so maybe the chemo mixture will be changed a little after the results are in,and it won't be so bad.
I can even deal with "bad". What worries me is permanent "bad". That seems to be a hit or miss thing and unpredictable.
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@sneakypete
Have you spoken to your oncologist or other doctor(s) about your mental issues from the chemo? Perhaps he/she/they can give you the definitive word on the prognosis for this condition and/or suggest a treatment that might help. The internet has a wealth of information, but not all of it is reliable. When it comes to my health, I will usually ask the doctor about what I see online. I trust him before I trust some website.
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@To-Whose-Benefit?
Yes, please do check in if you're able!
@DCPatriot
Hi;
Responding is possible, but the chemo involuntary nerve and muscle twitchings make it quite a Pavlovian exercise in frustration.
1st, it's Stage 4. Started in prostate, went into my blood, lymph, and bone mets. Got plenty of different doctors. Mostly same opinion. "Forget about getting out of this alive. NOT going to happen. Looked up plenty of online test results. Same Diagnosis.
@sneakypete
Started me on a JNJ drug/against my better judgement and ALL over my protests. That POS quit working on me in 15 weeks.
I wouldn't trust a 6 pack of robotic Pinschers against 3AM guests from those people. Too many lawsuits, baggage and evidence already.
Next up was Docytaxel/Taxotere. That quit in 11 weeks. I'm off to another consulting oncologist at another address now, for yet A third drug.
@sneakypete
My chemo brain is the stuff wrecking all Hell on all of my senses. Had a restaurant open faced baked potato.
I could Not smell the phony toppings on it.
But I Could smell the effing Chemical Plant greases, aromas, and cruds individually comprising it. It Stank like Vitalis Hair Oil!
What I can hear is all frequency dependent. Which makes TV and movies with visitors a PITA.
Thank God the meat was real, and not Star Trek Replicated! I can only Imagine "shudder with revulsion" what That would have tasted and stunk like!!
Needless to say, my Primary Oncologist concludes Every appt with his offer to scrape me Off his day and onto Hospice's.
I got one assurance after another, earlier, they had LOTS of different drugs, but now after failing 2, they're all out? Nothing else?
As For Effing Hospice:
There is NO Serial number and expiration date tattoed on the bottom of my feet, signed God.
There is Also no Expiration date signed Doctors at large.
Motto being, If God hasn't tossed in the towel on me, then human Doctors with an MD License haven't got any business quitting on me Either, Since, They can't promise any of us will even make it out the front door!
@sneakypete
FWIW:
My Hair has started back in about a month after the 2nd chemo, so, most of this whole body scramble May reverse itself, and they warned me about Blood not drying and hardning right but That's coming 'round now too.
Hope it comes out OK for you.
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@sneakypete
Don't worry the brain fog too much... When you stop exposure to all the medical poison and can get your chemical equilibrium back (which may take steps the doc don't have, but your Apache heritage will), acuity will return.
@roamer_1
Half Greek,1/4 Tuscarora,1/4 Scots-Irish. The Tuscarora are a branch of the Mohawks.
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@sneakypete
Have you spoken to your oncologist or other doctor(s) about your mental issues from the chemo? Perhaps he/she/they can give you the definitive word on the prognosis for this condition and/or suggest a treatment that might help. The internet has a wealth of information, but not all of it is reliable. When it comes to my health, I will usually ask the doctor about what I see online. I trust him before I trust some website.
@Applewood
Not yet. Just got bad this week. I will speak with her about it after the PET test.
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@DCPatriot
My Hair has started back in about a month after the 2nd chemo, so, most of this whole body scramble May reverse itself, and they warned me about Blood not drying and hardning right but That's coming 'round now too.
Hope it It comes out OK for you.
@To-Whose-Benefit?
Your situation sounds MUCH more serious than mine,although the hair growing back seems to ME to be a very positive sign.
I wish I knew what advise to give you to help you,but all I can offer is a suggestion to check various cancer research hospitals,with a focus on the ones most focused on the type you have,and see if you can get yourself in on their drug trials. The good news is it will be free,and that seems to be your best hope for a cure. No one in any of them is going to promise you a cure,but we all know there are effective drugs being developed that can be used right this minute by research schools that might not be available on the open markets for several years.
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@roamer-1
I am reading and hearing mixed reports about that. It all depends on your health when you got the cancer,what type of cancer it is you have,and the chemo mix you have to take.
[...]
I can even deal with "bad". What worries me is permanent "bad". That seems to be a hit or miss thing and unpredictable.
Brain fog has been an epic part of my illness @sneakypete , so I know where you are coming from.
What it is is still incidental at this point, because if your bid is unsuccessful, you won't need it anyway...
So for now it must be go-with-the-flow, no doubt.
Kinda where I was too... Just ceasing all the poisons they were putting into me helped somewhat, but healing for me has come more from exceptional natural nutrition, and natural medicines to purge the poisons and aid in healing.
Get some seriously soluble enzymes, electrolytes, and vitamins... Half of my problem was my ability to assimilate what I needed because my system was so far gone... everything that worked was liquid or sublingual.
Go heavy to forage and garden, native meat and fish. And don't forget the spirit - old school sweat lodge, brother... And mean it.
Chaga tea every day, nettle tea, pine needle tea, Dandelion coffee, (Ojibwe Tea, once you can stand the purge)... essential oils
I think most of the mixed report is in what you do to fix it. Western med will only take you so far. The old ways have value. Talk to a medicine man.
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Hi @sneakypete
Yes I checked the in State/Near By Clin Trials.
Same Story. 1: They ain't gonna cure squat.
2: They Might get me 2 more years.
But They Do Not Know.
What I Am certain of is I'm gonna continue looking/shopping.
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My chemo brain is the stuff wrecking all Hell on all of my senses. Had a restaurant open faced baked potato.
I could Not smell the phony toppings on it. But I Could smell the effing Chemical Plant greases, aromas, and cruds individually comprising it. It Stank like Vitalis Hair Oil!
I know what that is @To-Whose-Benefit? ... Restaurant food and store bought food still makes me gag. I figure that is my body telling me something...
There is NO Serial number and expiration date tattoed on the bottom of my feet, signed God.
There is Also no Expiration date signed Doctors at large.
Motto being, If God hasn't tossed in the towel on me...
There is tremendous solace in that - and where my hope was found too! There is a reason he put you on this path. May it be that he has done so to make you an astonishment to those doctors and give you a testimony that changes hearts!
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Hi @sneakypete
Yes I checked the in State/Near By Clin Trials.
Same Story. 1: They ain't gonna cure squat.
2: They Might get me 2 more years.
But They Do Not Know.
What I Am certain of is I'm gonna continue looking/shopping.
A lot can happen in two years, too.
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Hi @sneakypete
Yes I checked the in State/Near By Clin Trials.
Same Story. 1: They ain't gonna cure squat.
2: They Might get me 2 more years.
But They Do Not Know.
What I Am certain of is I'm gonna continue looking/shopping.
@To-Whose-Benefit?
Good for you! It's never over until it is over,and in the last several years cancer has been exploding with new drug treatments that cure formerly "uncurable" cancers. It wasn't that long ago the words "You have Stage 4 lymphatic cancer" was a death sentence. When I heard that sentence a couple of months ago it was accompanied by the words,and "and I think we can beat it."
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@Smokin Joe
@roamer_1
@sneakypete
@DCPatriot
I figure, not Being a Church goer, Bible Scholar etc, if I haven't asked enough goodly folk who Are, (I'm in the last half of my 60s and I've Still never even lived in America Yet, just 2 Very dark blue Dem/Commie Crap Holes my whole life, . . . . . . .
How much Worse can hell be?
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@Smokin Joe
@roamer_1
@sneakypete
@DCPatriot
I figure, not Being a Church goer, Bible Scholar etc, if I haven't asked enough goodly folk who Are, (I'm in the last half of my 60s and I've Still never even lived in America Yet, just 2 Very dark blue Dem/Commie Crap Holes my whole life, . . . . . . .
How much Worse can hell be?
Well, if all the past Democrats are there, and the no good Republicans, then add in all the worst of the worst around the globe, even one of America's deep blue sh*tholes would be a pleasant alternative.
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@sneakypete, good to hear from you. I'd wanted to ask how you were doing, but didn't want to bother you.
@To-Whose-Benefit?, praying for you. Sounds like you're fighting it.
To both of you, I had some serious brain fog during and after I completed chemo. I read an article about the efficacy of SSRIs, specifically Bupropion. My doc let me try it, and I found it very helpful.
This was a number of years back, but it has become an accepted treatment now:
Lifting the Fog on 'Chemo Brain' - Cure Today
https://www.curetoday.com/publications/cure/2018/summer-2018/lifting-the-fog-on-chemo-brain (https://www.curetoday.com/publications/cure/2018/summer-2018/lifting-the-fog-on-chemo-brain)
Aug 2, 2018 ... JUSTIN BIRCKBICHLER experienced chemo brain after undergoing chemotherapy for testicular cancer. - ERIN RAE PHOTOGRAPHY.
Bupropion sustained release treatment reduces fatigue in cancer ...
https://www.ncbi.nlm.nih.gov/pubmed/15065748 (https://www.ncbi.nlm.nih.gov/pubmed/15065748)
Bupropion sustained release treatment reduces fatigue in cancer patients. ... Thirteen patients had minor, expectable side effects, and 10 patients were able to ...
How to Manage Chemobrain - SlideShare
https://www.slideshare.net/DanaFarber/managing-chemobrain (https://www.slideshare.net/DanaFarber/managing-chemobrain)
Aug 8, 2012 ... Audio and slides for this presentation are available on YouTube: http://youtu.be/ (http://youtu.be/) 49JdPPPRFNw Cognitive effects of cancer and cancer ...
Chemo Brain May Last 5 Years or More - Well - The New York Times
https://well.blogs.nytimes.com/2011/05/04/chemo-brain-may-last-5-years-or-more/ (https://well.blogs.nytimes.com/2011/05/04/chemo-brain-may-last-5-years-or-more/)
May 4, 2011 ... “Chemo brain,†the foggy thinking and forgetfulness that cancer patients often complain about after treatment, may last for five years or more for ...
Potential new treatment found for 'chemo brain' - Medical News Today
https://www.medicalnewstoday.com/articles/316955.php (https://www.medicalnewstoday.com/articles/316955.php)
Apr 17, 2017 ... New research explains the brain chemistry behind chemotherapy-induced cognitive dysfunction and finds a potential new therapy for ...
Pharmacologic Treatment of Cancer-Related Fatigue - The Oncologist
theoncologist.alphamedpress.org/content/12/suppl_1/43.long
Fatigue is the most commonly reported symptom in patients with cancer, with a .... In these open-label case series, bupropion SR (100– 300 mg/day) was associated ... Another recent ...
Chemo brain - Symptoms and causes - Mayo Clinic
https://www.mayoclinic.org/diseases-conditions/chemo-brain/symptoms-causes/syc-20351060 (https://www.mayoclinic.org/diseases-conditions/chemo-brain/symptoms-causes/syc-20351060)
Mar 22, 2019 ... Learn about the memory and thinking changes that sometimes happen during and after cancer treatment. Find out about chemo brain ...
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@Smokin Joe
@roamer_1
@sneakypete
@DCPatriot
I figure, not Being a Church goer, Bible Scholar etc, if I haven't asked enough goodly folk who Are, (I'm in the last half of my 60s and I've Still never even lived in America Yet, just 2 Very dark blue Dem/Commie Crap Holes my whole life, . . . . . . .
How much Worse can hell be?
Do you have children of your own, @To-Whose-Benefit? ??
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@sneakypete
I'm late to this party, but I'm glad to hear you're doing so well in your treatment. I will keep you in my prayers.
@To-Whose-Benefit?
I will be praying for you, as well. Hopefully the treatment you need will be announced tomorrow... but either way, I will pray that your story is ultimately victorious.
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@sneakypete, good to hear from you. I'd wanted to ask how you were doing, but didn't want to bother you.
@To-Whose-Benefit?, praying for you. Sounds like you're fighting it.
To both of you, I had some serious brain fog during and after I completed chemo. I read an article about the efficacy of SSRIs, specifically Bupropion. My doc let me try it, and I found it very helpful.
This was a number of years back, but it has become an accepted treatment now:
Lifting the Fog on 'Chemo Brain' - Cure Today
https://www.curetoday.com/publications/cure/2018/summer-2018/lifting-the-fog-on-chemo-brain (https://www.curetoday.com/publications/cure/2018/summer-2018/lifting-the-fog-on-chemo-brain)
Aug 2, 2018 ... JUSTIN BIRCKBICHLER experienced chemo brain after undergoing chemotherapy for testicular cancer. - ERIN RAE PHOTOGRAPHY.
Bupropion sustained release treatment reduces fatigue in cancer ...
https://www.ncbi.nlm.nih.gov/pubmed/15065748 (https://www.ncbi.nlm.nih.gov/pubmed/15065748)
Bupropion sustained release treatment reduces fatigue in cancer patients. ... Thirteen patients had minor, expectable side effects, and 10 patients were able to ...
How to Manage Chemobrain - SlideShare
https://www.slideshare.net/DanaFarber/managing-chemobrain (https://www.slideshare.net/DanaFarber/managing-chemobrain)
Aug 8, 2012 ... Audio and slides for this presentation are available on YouTube: http://youtu.be/ (http://youtu.be/) 49JdPPPRFNw Cognitive effects of cancer and cancer ...
Chemo Brain May Last 5 Years or More - Well - The New York Times
https://well.blogs.nytimes.com/2011/05/04/chemo-brain-may-last-5-years-or-more/ (https://well.blogs.nytimes.com/2011/05/04/chemo-brain-may-last-5-years-or-more/)
May 4, 2011 ... “Chemo brain,†the foggy thinking and forgetfulness that cancer patients often complain about after treatment, may last for five years or more for ...
Potential new treatment found for 'chemo brain' - Medical News Today
https://www.medicalnewstoday.com/articles/316955.php (https://www.medicalnewstoday.com/articles/316955.php)
Apr 17, 2017 ... New research explains the brain chemistry behind chemotherapy-induced cognitive dysfunction and finds a potential new therapy for ...
Pharmacologic Treatment of Cancer-Related Fatigue - The Oncologist
theoncologist.alphamedpress.org/content/12/suppl_1/43.long
Fatigue is the most commonly reported symptom in patients with cancer, with a .... In these open-label case series, bupropion SR (100– 300 mg/day) was associated ... Another recent ...
Chemo brain - Symptoms and causes - Mayo Clinic
https://www.mayoclinic.org/diseases-conditions/chemo-brain/symptoms-causes/syc-20351060 (https://www.mayoclinic.org/diseases-conditions/chemo-brain/symptoms-causes/syc-20351060)
Mar 22, 2019 ... Learn about the memory and thinking changes that sometimes happen during and after cancer treatment. Find out about chemo brain ...
@Sanguine
Thank you VERY much!
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@Sanguine
Thank you VERY much!
You're so welcome, Pete. I hope it can help.
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Do you have children of your own, @To-Whose-Benefit? ??
HAHAHAHA!
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Ladies and Gentlemen, to Have such friends as you, is the truest strength anyone could be gifted with.
Thank You and Bless You One and All!
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@sneakypete
Don't go putting Too much stock in this one (especially by the Minimal relief from it, But)
I did have a lot of involuntary hand and finger movement when I quit my 2nd chemo.
And it does seem to be going away.
Good luck Pete. At this rate it'll prolly be 6 to 10 months.
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Prayers for both of you guys... and I want to say thanks for the prayers that were sent on my behalf a year or so ago.
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@sneakypete
Don't go putting Too much stock in this one (especially by the Minimal relief from it, But)
I did have a lot of involuntary hand and finger movement when I quit my 2nd chemo.
And it does seem to be going away.
Good luck Pete. At this rate it'll prolly be 6 to 10 months.
@To-Whose-Benefit?
Since it is the only treatment proven to work,and since I don't believe in the whole "rebirth in heaven" thing,I won't be quitting my chemo early. Chemo sickness is an even more temporary thing than life itself,but death is the personal end of everything forever.
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@sneakypete I’m so sorry, I had no idea. Of course I will put you in my prayers and thoughts.
@To-Whose-Benefit? Um, you know you are my best friend in real life and I’ll be up in less than two weeks to see you again.
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@To-Whose-Benefit?
Since it is the only treatment proven to work,and since I don't believe in the whole "rebirth in heaven" thing,I won't be quitting my chemo early. Chemo sickness is an even more temporary thing than life itself,but death is the personal end of everything forever.
@sneakypete
Just Be Advised:
1 st chemo I had was some watered down crap Hormone blocker to keep testosterone from forming. So that don't really count.
However the Real Chemo which is out on a microtubular Search and Destroy mission (the substandard cappilaries the cancer cells Feed on, is a Real @@s kicker cause its accumulalation Stays in you for Months.) So round 1 ain't near's bad as round 2, etc .
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@sneakypete
Have you spoken to your oncologist or other doctor(s) about your mental issues from the chemo? Perhaps he/she/they can give you the definitive word on the prognosis for this condition and/or suggest a treatment that might help. The internet has a wealth of information, but not all of it is reliable. When it comes to my health, I will usually ask the doctor about what I see online. I trust him before I trust some website.
@sneakypete
Bring on the Happy Pills Peddlars!
Same shit heads who are still without a licence, trying to convince us Trump's non fit to serve.
Where is everyone's Memory of Who these Quacks are?
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@sneakypete
Bring on the Happy Pills Peddlars!
Same shit heads who are still without a licence, trying to convince us Trump's non fit to serve.
Where is everyone's Memory of Who these Quacks are?
Actually, I've never suggested that Trump is not fit to serve, nor have I ever thought that.
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@sneakypete
However the Real Chemo which is out on a microtubular Search and Destroy mission (the substandard cappilaries the cancer cells Feed on, is a Real @@s kicker cause its accumulalation Stays in you for Months.) So round 1 ain't near's bad as round 2, etc .
@To-Whose-Benefit?
Yeah,believe it or not,but I happened to notice that myself.
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@sneakypete
Bring on the Happy Pills Peddlars!
@To-Whose-Benefit?
Nope,not gonna do it.
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@To-Whose-Benefit?
Nope, not gonna do it.
I should Hope not!
They'll cause you as much damage as a real disease like this one will!!
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@sneakypete
Pete, am I guessing right that you Got that Precision Chemo that was cooked up just for your blood etc?
And if so, what were the Magic Words you used to get it?
Cause what I'm Hoping to get next is Another Control Drug they've been using in the trials already for 10 years.
I'd really like to get the feeling I'm more than just a statistic/number.
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@sneakypete
Pete, am I guessing right that you Got that Precision Chemo that was cooked up just for your blood etc?
Yup! Special Blend.
And if so, what were the Magic Words you used to get it?
None at all. Went to see the cancer doc and she told me that was what I was going to get. First I had ever heard of it.
Cause what I'm Hoping to get next is Another Control Drug they've been using in the trials already for 10 years.
AFAIK,there is no longer anything exotic about the chemo I am receiving,other than it is one of numerous "special blends tailored to the patient". I have Stage 4 Mantle Cell Lymphatic Cancer,and 10 or so years ago that was the kiss of death. Not so much anymore unless they catch it and you begin treatment really late.
I understand there are other forms of cancer the docs don't have "dialed in" yet,and you can still be in deep doo doo if you get one of them and don't catch it early.
And,as is true with any disease,the luck of the draw in getting the "right" doctor/clinic.
I'd really like to get the feeling I'm more than just a statistic/number.
What is your diagnoisis? What type and stage cancer is it that you have?
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Interesting Pete, since Your Diagnosis appears (aside from Stage 4 Prostate) to be More Specific than mine.
I think it's gonna be more Q&A with my people before I get back to you.
Just Tired Pete.
Beyond Tired of asking question after question Over and Over again.
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Hang in there @sneakypete ! Sounds like you have a good medical team. happy77
@To-Whose-Benefit? I had no idea you were battling as well...prayers up.
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Cancer 'vaccine' shows promise in human trial of lymphoma patients
https://www.cnbc.com/2019/04/08/cancer-vaccine-shows-promise-in-human-trial-of-lymphoma-patients.html (https://www.cnbc.com/2019/04/08/cancer-vaccine-shows-promise-in-human-trial-of-lymphoma-patients.html)
Everyday there are new breakthroughs and hope..
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Interesting Pete, since Your Diagnosis appears (aside from Stage 4 Prostate) to be More Specific than mine.
I think it's gonna be more Q&A with my people before I get back to you.
Just Tired Pete.
Beyond Tired of asking question after question Over and Over again.
@To-Whose-Benefit?
Yeah,I understand the tired. Trust me on that.
Ask your cancer doc to be specific,and then post a stand alone thread asking all posters if they have ever had or know someone that has had that type of cancer,what the treatment was,the survival rate,and how long ago this all was.
We are no longer alone in this day of the internet. All you have to do is ask.
Get proactive! Don't just sit back and allow others to control the flow of information.
BTW,PLEASE ping me to that thread. You might also want to ping everyone to that thread that posted to this one since they all seem to be interested in cancer,or have had cancer. If anyone doesn't like being pinged,all they have to do is ignore it.
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@To-Whose-Benefit?
Ask your cancer doc to be specific,and then post a stand alone thread asking all posters if they have ever had or know someone that has had that type of cancer,what the treatment was,the survival rate,and how long ago this all was.
We are no longer alone in this day of the internet. All you have to do is ask.
Get proactive! Don't just sit back and allow others to control the flow of information.
Moderators!!!
How about a seperate Section on threads for various cancers?
Most of us old Conservatives are At That Age.
The incidences of these horrid diseases are WAY UP over what they were 100 years ago, . . And So are the damn Quack Cures.
If you've been through it or are going through it,
Let everyone know.
BTW,PLEASE ping me to that thread. You might also want to ping everyone to that thread that posted to this one since they all seem to be interested in cancer,or have had cancer. If anyone doesn't like being pinged,all they have to do is ignore it.
BTW;
This is @To-Whose-Benefit?
Ping @sneakypete and me. My quotes here got jumbled.
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Cancer 'vaccine' shows promise in human trial of lymphoma patients
https://www.cnbc.com/2019/04/08/cancer-vaccine-shows-promise-in-human-trial-of-lymphoma-patients.html (https://www.cnbc.com/2019/04/08/cancer-vaccine-shows-promise-in-human-trial-of-lymphoma-patients.html)
Everyday there are new breakthroughs and hope..
@mystery-ak
Myst,I am going to ping everyone on my ping list for this thread,and IMHO you should start a stand-alone thread about this because there are a lot of people who will never see it here.
BTW,this is just for Lymphoma at this time,which is the type of cancer that I have. This will not affect people like me who are already being treated,but is BIG news for younger people who may suffer from it a few years down the road if they don't get the vaccination.
@Right_in_Virginia @EdJames @Victoria33 @Freya @Bigun @SZonian @Cyber Liberty @roamer_1 @Sanguine @truth_seeker @RoosGirl @DCPatriot @To-Whose-Benefit? @BassWrangler @Lando Lincoln @mountaineer @Elderberry @GT Hawk @berdie @Sighlass @Applewood
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Yes. Using the human immune system is The way to go.
Because the crap has this horrid propensity for mutating Out of a drug's reach.
The immune sys identifies mutated or broken DNA and orders it to Die at a certain point, not just keep on reproducing.
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Taking your suggestions, we've started a thread for members to share their cancer information, experience, advice, etc.
We hope it will be a good resource for our members and help them through this difficult journey.
http://www.gopbriefingroom.com/index.php/topic,357703.0.html (http://www.gopbriefingroom.com/index.php/topic,357703.0.html)
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Thank You @Mod 1
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Great to hear from you @sneakypete. And hope the side effects of the chemo will be short-lived (but not the patient!)
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@sneakypete @To-Whose-Benefit?
I'm not here often but my prayers continue. They are.
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Great to hear from you @sneakypete. And hope the side effects of the chemo will be short-lived (but not the patient!)
@BassWrangler
@Lando Lincoln
Thanks,guys 1/3 of the way through the chemo now.
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@BassWrangler
@Lando Lincoln
Thanks,guys 1/3 of the way through the chemo now.
@sneakypete 888high58888 888high58888
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@BassWrangler
@Lando Lincoln
Thanks,guys 1/3 of the way through the chemo now.
:patriot:
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HAHAHAHA!
You’ve had cats though. Very good cat.
I hope everyone here is feeling better.
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@Right_in_Virginia @EdJames @Victoria33 @Freya @Bigun @SZonian @Cyber Liberty @roamer_1 @Sanguine @truth_seeker @RoosGirl @DCPatriot @To-Whose-Benefit? @BassWrangler @Lando Lincoln @mountaineer @Elderberry @GT Hawk @berdie @Sighlass @Applewood
Starting new thread about latest cancer/meds problems.
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Interesting Pete, since Your Diagnosis appears (aside from Stage 4 Prostate) to be More Specific than mine.
I think it's gonna be more Q&A with my people before I get back to you.
Just Tired Pete.
Beyond Tired of asking question after question Over and Over again.
@To-Whose-Benefit?
BTW,are you still with us,or are you posting somewhere else now?
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@To-Whose-Benefit?
BTW,are you still with us,or are you posting somewhere else now?
he passed away a while ago.
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he passed away a while ago.
@jmyrlefuller
Thanks for the update,even though I am sorry to hear it.
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@jmyrlefuller
Thanks for the update,even though I am sorry to hear it.
@Gefn was very close to him in his final days. She would know more.
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@Gefn was very close to him in his final days. She would know more.
(https://i.imgur.com/DFUjrCE.png)
She sent me this photo.
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(https://i.imgur.com/DFUjrCE.png)
She sent me this photo.
@Cyber Liberty
Somebody PLEASE tell me he wasn't that young when he died.
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@Cyber Liberty
Somebody PLEASE tell me he wasn't that young when he died.
Pete, he was 67 when he died. He had turned 67 about two weeks before. It will be four years this May.
I have 1/3 of his ashes with me. I’ll tell him you were asking about him. He was very concerned for you, and really respected the heck out of you.
@sneakypete
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Pete, he was 67 when he died. He had turned 67 about two weeks before. It will be four years this May.
I have 1/3 of his ashes with me. I’ll tell him you were asking about him. He was very concerned for you, and really respected the heck out of you.
@sneakypete
@Gefn
Thank you.